Posted: Sat Sep 12, 2009 7:25 am
I really don't know how many people read that site or the comments, but thought I'd mention there is a skeptical commenter on Lew's interview that could use responding to (it's mostly just misunderstandings resulting from not really reading much about it, but if nothing else it'll be good practice 'cause we're probably going to be hearing a lot of this stuff - not all MS patients are as "researchy" as we are here) ... his main questions/issues being:
at http://www.healthcentral.com/multiple-s ... 1/commentsthe biology of the whole thing doesn't make sense to me. I don't really understand how our own blood can essentially attack our nervous system.
they talk about blocked veins a lot. Now, I reiterate I'm not a doctor, but when I think of a "blocked vein" I think of a blood clot. So are they saying that people with CCSVI are throwing a lot of blood clots, which then leak blood...etc. Isn't a blood clot in a vessel in the brain a stroke?
(repeats notion that MS is autoimmune - that axons are destroyed AFTER sheath, which is not true)
Maybe I'm being picky here but, isn't the myelin sheath the "antigenic target"?
There have been a few published studies, yes, linking CCSVI with MS. That in NO way means that we ALL have it. Maybe we do, maybe we don't. But without further studies and a way to screen people for that, it is just a gross generalization.
(mistakes Lew's discussion of newer drugs that wipe out the immune system with CRABs)
etc