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Posted: Sun Sep 13, 2009 1:46 pm
by Rokkit
cheerleader wrote:Dr. Dake is having a joint meeting with the neurology and vascular depts at Stanford this coming week.
I guess getting you in there with your notepad and pencil would be out of the question. :D

Rokkit

Posted: Sun Sep 13, 2009 2:02 pm
by LR1234


lol.....Is it out of the question? :wink:

Posted: Sun Sep 13, 2009 2:14 pm
by CureOrBust
Christmass isnt that far away..

Image

Posted: Sun Sep 13, 2009 4:50 pm
by Terry
how can I as a men achieve the more favorable course of a pre-menopausal women?
A well-balanced diet contains sufficient iron to meet body requirements. About 10% of the normal 10 to 20 mg of dietary iron is absorbed each day, and this is sufficient to balance the 1 to 2 mg daily losses from desquamation of epithelia. Greater iron utilization via growth in childhood, greater iron loss with minor hemorrhages, menstruation in women, and greater need for iron in pregnancy will increase the efficiency of dietary iron absorbtion to 20%.
From this, men and women would be equal. Also looks like giving blood would cause more iron to be absorbed.

Posted: Sun Sep 13, 2009 8:26 pm
by radeck
Terry wrote:
A well-balanced diet contains sufficient iron to meet body requirements. About 10% of the normal 10 to 20 mg of dietary iron is absorbed each day, and this is sufficient to balance the 1 to 2 mg daily losses from desquamation of epithelia. Greater iron utilization via growth in childhood, greater iron loss with minor hemorrhages, menstruation in women, and greater need for iron in pregnancy will increase the efficiency of dietary iron absorbtion to 20%.
From this, men and women would be equal. Also looks like giving blood would cause more iron to be absorbed.
I suppose if a women during and after menstruation, or any person during and after blood-donation, lowers iron-intake, even the bodies increase of absorption efficiency couldn't compensate for the lack. However it seems like we really don't know what will happen.

Heck, there's got to be some way to chelate/make ourselves anemic! ;-)

Posted: Mon Sep 14, 2009 7:49 am
by cheerleader
Would love that pocket video camera, cure! Maybe next Christmas! Can't get up to Stanford this week, but I'm sure Dr. D will let us know how it goes.
cheer

Posted: Mon Sep 14, 2009 11:44 am
by daniel
I know it's been said numerous times before, but I just want to echo in here and give many thanks to Joan for all her super helpful work in researching and getting the word out. A great deal many thanks

Posted: Mon Sep 14, 2009 1:47 pm
by Sawdoggie
I just got my iron bloodwork back and I am ready to rust so to speak. My ferritin count is north of 500 which is higher than it was when I was diagnosed with hemochromatosis 10 years ago. The plot thickens. I get to start dumping two units a month ASAP for the foreseeable future to get my Fe stores down.

Posted: Mon Sep 14, 2009 3:09 pm
by loobiesmom
Cheer, I think you are an amazing, tenacious, brilliant, and very caring woman! Reading about your trip has been fascinating. Thank you for all the time and energy you have given to learning about CCSVI and getting that info out to this incredible MS community. You have helped so many and given so much hope to those with MS, including my son. Thank you from the bottom of my heart.

Posted: Mon Sep 14, 2009 4:31 pm
by Jamie
Alright who posted the big ass picture that messed up the formatting?

Cure?!

Posted: Mon Sep 14, 2009 11:35 pm
by whyRwehere
Sawdog,
That is very interesting...I can't wait to hear how it affects you.

Posted: Mon Sep 14, 2009 11:45 pm
by CureOrBust
there's just "more of the picture to love"

Posted: Tue Sep 15, 2009 5:36 am
by Rokkit
CureOrBust wrote:there's just "more of the picture to love"
ROFL!

HH and MS

Posted: Sat Oct 31, 2009 5:33 pm
by paulmur
I just sent Sawdoggie a personal but I thought I'd be in touch with all of you too. I was dx'd with ms about 1.5 years ago. About 8 months later I was dx'd with Hemachromotosis. Ferritin level of 1500. I thought it very suspicious that I just happened to get both at the same time. But neither my hematologist nor my MS doctor were interested in discussing it in more than passing.
I too am doing phlebotomies and my ferritin level is about 700 now. I experience passing ms symptoms the primary being fatigue and depression.

Man, I just think the Italians and Buffaloians are on to something great. javascript:emoticon(':P')

I've just sent out an e-mail to my ms doc asking if I could get a Doppler scan. I've also submitted a request to become part of the UB research.

This is the first time, and I know I'm a newbie but, this is the first time I really feel like someone can even see the puzzle. Most of the rest was just dealing with the periphery.

-Paulmur

Posted: Fri Feb 12, 2010 3:36 pm
by happydance
I just wanted to bump this up for all those who have not seen it. I've always wondered about the fibrotic changes Dr. Guilio Gabbiani was talking about. Could congential for some mean a birth defect, but for others it has to do with fibrotic changes causing the stenosis. Could this be why the worse the stenosis the worse the MS?

Just rambling. Any thoughts.