Not MSer, but wondering...
Posted: Mon Sep 14, 2009 11:01 am
Hi, there,
My brother has RR MS. I have many symptoms (the usual: tingling, numbness, loss of strength and balance, cognitive issues) but I don't show any lesions. He has been diagnosed with celiac disease (as has 1/2 of our family) and I surely have it but stopped eating gluten so long ago and am so sensitive to it I can't get the blood test to confirm if I have the antibodies.
Since the neuro insists I don't have MS, I've always wondered if my problem is vascular. Most of my issues are numbness, though I do have some burning. It's also worse on the right side, but sometimes will suddenly shift to the left (this is so weird and no one believes me). My feet and hands go to sleep all the time.
I have very low blood pressure, it was even worse when I was pregnant. I'm on the high-end of normal for cholesterol. My brother's cholesterol is actually on the low-end of high, last time I asked. Not sure about about his BP.
And can anyone help me understand the issue of iron deposits? I'm always anemic and take a lot of B/Iron supplements, at least when I remember to.
Since I'm not an official MSer I always feel like I'm crashing the party, but know that I'm doing this research for my brother, too.
My brother has RR MS. I have many symptoms (the usual: tingling, numbness, loss of strength and balance, cognitive issues) but I don't show any lesions. He has been diagnosed with celiac disease (as has 1/2 of our family) and I surely have it but stopped eating gluten so long ago and am so sensitive to it I can't get the blood test to confirm if I have the antibodies.
Since the neuro insists I don't have MS, I've always wondered if my problem is vascular. Most of my issues are numbness, though I do have some burning. It's also worse on the right side, but sometimes will suddenly shift to the left (this is so weird and no one believes me). My feet and hands go to sleep all the time.
I have very low blood pressure, it was even worse when I was pregnant. I'm on the high-end of normal for cholesterol. My brother's cholesterol is actually on the low-end of high, last time I asked. Not sure about about his BP.
And can anyone help me understand the issue of iron deposits? I'm always anemic and take a lot of B/Iron supplements, at least when I remember to.
Since I'm not an official MSer I always feel like I'm crashing the party, but know that I'm doing this research for my brother, too.