This Is MS Multiple Sclerosis Knowledge & Support Community

seeva wrote:HI member would you please let me know the contact details of ROYAL VICTORIA HOSPIAL'S BELFAST to do LP the one you had.Also contact details for the VS MR. ROBINBAKER. Who has paid the cost for the treatment ?
Thank you.
regards
SEEVA

Hi seeva, Leanne is right on the button, no one yet going it in the UK but not long now. Come and join us at www.ms-ccsvi-uk.org for the latest news. As soon as we can we will tell everyone what is going on, but at the moment the systems are not in place to deal with the many enquiries that are sure to follow.

Hello,
I'm Anna and I suffer from MS ; I have rcently followed the new possibility to cure SM with the liberation. I'm trying to find a palce in the long lists here in Italy by Prof. Zamboni but thing so very slowly I've just read about the experience of GICI and I kindly ask if someone can tell me a specialised centre in the UK?
Thanks to all
Anna

Hi Anna, there is currently not a clinic in UK, although there are a couple in the offing who are taking names.
the essential health clinic
and
Dr Paul Crowe.
if you put this information into a google box you will find them.

additionally you may like to join http://www.facebook.com/ms.ccsvi.uk
where the latest information is always available.

I've been searching the internet to find out how to go about getting the scan and treatment in Belfast but keep coming up with dead ends. Can you please tell me how to go about it and if you don't mind give me an idea of how much it costs. Thank you. Odd1

Sorry Odd1, there is nothing available in Belfast. The only one which took place was done as a favour by a colleague of the patient. If it were to take place in Belfast, I have no idea how much it would cost.

It cost us about 7000 Euros to have it done in Poland.

I confirm that Belfast is not offering liberation procedure at present.
GiCi

Good afternoon TiMS & GiCi,
Would you think there is any chance your friend's might start up doing the Colour Dopler & the CCSVI Procedure in the near future again?
Slainte Mo Chara
Edser & Anna

Edser,
I believe that Belfast will follow when evidence in favour of CCSVI as cause of MS is produced.
GiCi

Thank's for replying GiCi
Slainte Mo Chara
Edser & Anna

Sigh... it's a chicken or the egg problem, LOL. Neuros and other doctors won't accept CCSVI until it's approved, but patients seeking help are finding doctors willing to step up and help prove/disprove CCSVI. Other doctors are more cautious.

ozarkcanoer