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Petition
Posted: Sat Dec 12, 2009 9:08 am
by fiddler
A problem with this petition is that it appears to say that MS is not an autoimmune disease, but what I've gleaned from this forum is that though the initial cause may be CCSVI in most cases, the reaction of the immune system to the iron passing the BBB and the brain cell damage then takes it into an autoimmune disease phase. So setting ourselves up as being "anti-autoimmune disease" is not what we want to do, IMHO.
...Ted
Posted: Sat Dec 12, 2009 9:09 am
by ErikaSlovakia
I`ve signed the petition as well.
Erika
Posted: Sat Dec 12, 2009 9:10 am
by ozarkcanoer
Isn't the petition just for Canadians ?
ozarkcanoer
Posted: Sat Dec 12, 2009 9:29 am
by ClaireParry
I guess it is just for Canadians, but who knows, may be I could live in Canada one day
Posted: Sat Dec 12, 2009 9:30 am
by ErikaSlovakia
ozarkcanoer wrote:Isn't the petition just for Canadians ?
ozarkcanoer
I do not care! I have MS just as people in Canada. I want to support them.
My signature was accepted.
Erika
Posted: Sat Dec 12, 2009 9:34 am
by ClaireParry
Hear hear Erika, this is world wide movement now!
CCSVI
Posted: Sat Dec 12, 2009 9:36 am
by Edser
He's booking me for tests in March, although no space for procedure until September he says. He said they can't cope with demand!! This is what was said on TiMS earlier on today. Last week he was booked out for Procedure's untill March & when Anna rang Dr Simka in November he asked us "WHEN" did we want to come for the Procedure. WOW Dr M.Simka & his team are very busy.
I've also signed the petition.
Slainte Mo Chara
Edser & Anna
Posted: Sat Dec 12, 2009 9:38 am
by ozarkcanoer
OK, I signed the petition too !!!
Dr Simka Booked up
Posted: Sat Dec 12, 2009 9:44 am
by Dovechick
I think there has been a turn in the tide in the last couple weeks. I think that when I got in touch at the end of November things were still manageable but I have noticed that since then many more people are seeking treatment in Poland. Maybe we got in because we made the intial enquiry before this happened.
Regarding the petition, we could start one for the UK but maybe we should run it past the people who post here before we circulate it.
Posted: Sat Dec 12, 2009 9:45 am
by Edser
ClaireParry wrote:I've just signed that petition Edser, but can we do one of those Government petitions for the UK?
I'd happily sort it if it's possible...
http://www.antrimtimes.co.uk/nhshealth/ ... 5866808.jp
Antrim,Co Antrim.I'll say IRELAND & you will say UK.But it dosn't matter.CCSVI is getting out there & people are talking about it.That's all that matters.
Slainte Mo Chara
Edser & Anna
Antrim Times
Posted: Sat Dec 12, 2009 9:59 am
by Dovechick
Edser. It would be good to be able to comment on the article in the Antrim times but I could not find a way. Some of concerns it raises are answered in the thread Cheerleader created called Just the facts ma'am' and would put right some of the misconceptions of the article, unfortunately there is nowhere to post these.
Petition wording
Posted: Sat Dec 12, 2009 10:03 am
by fiddler
Yes, I have no problem with the idea of a petition, but let's get the wording right. An improperly worded petition could just slow things down, because instead of getting people on our side, we'll confuse them by taking indefensible positions.
...Ted
Posted: Sat Dec 12, 2009 10:07 am
by sunlounger
Hi all,
Would someone be interested in starting up a petition for the U.K.?
http://petitions.number10.gov.uk/
You can sign online and also send in written signatures
Re: Petition wording
Posted: Sat Dec 12, 2009 10:10 am
by sunlounger
Re: Dr Simka Booked up
Posted: Sat Dec 12, 2009 10:14 am
by sunlounger
Dovechick wrote:Regarding the petition, we could start one for the UK but maybe we should run it past the people who post here before we circulate it.
I think this would be a good idea