This Is MS Multiple Sclerosis Knowledge & Support Community

that's fantastic Edser - keep it up!

great news thanks for sharing

This is brilliant Edser.
Good to hear
Keep it coming.

EXCELLENT!

WOW Edser, I am so excited for you. It is amazing how much each positive piece of news affects me when I read this forum!! As I do not know anyone here, but feel the way I feel about each person's journey ,is enough to keep me motivated until I can actually get on that road myself!!!!


THANK YOU ALL xx

ErikaSlovakia wrote:

fiddler wrote: Does anyone know another part of this forum where people who have been treated (by whoever) provide information about their progress?

Hi,
I was the second in Poland 30 days ago.
You can find more here: http://www.thisisms.com/ftopict-8640.html
Erika

Hi Erika, My name is Debbie and my husband has MS. We believe that he would be a perfect canidate for CCVSI procedure. How do i get in contact with a Dr. that performs this procedure? Also, how are you doing after you procedure? If you would call me that would be wonderful. My number is 651.592.7890

Edser wrote:Good morning,
Thank's to everyone who has replied to date All i need now is to book some flight's to Katowice(Poland) So if there anyone out there that might know the cheapst way from Cork(Ireland) it would be most appreciated,Hotel's,Taxis etc...My appointment is 30/11/09.Ihope Dr Simka can do something for me.I beleive he can/will
Best Regard's
Edser

PS:Michelle,NYC is still in the pipe line,i'll see how this goes first.

Hi Esther, How do you get in contact with this doctor in Poland? Also where did you have your testing done? My husband had a thermography test done a few months ago and they said there is issues in the artery's in the in neck area. Please call me if you can help us 651.592.7890.

Hi DebChazin:
Here are the doctors in Poland who are treating CCSVI:

mariansimka@poczta.onet.pl (massive waiting list!)
kosteckj@op.pl

Also there is, apparently, one in Bulgaria:

grozdinski@mail.bg (accepting patients from April)

...Ted

HI Deb, First Edser is a man, not Esther...
I can send you information about how to get in touch with Dr Simka in a private message here. So look out for that.
It is too soon to be thinking about booking flights at the moment as Dr Simka in Poland is fully booked until 2011.
Also the problems of CCSVI are in the veins not the artery.
It might be worth for you to join our fanpage in the UK as things are in progress at the moment and there may well be testing facilities by the end of March: www.ms-ccsvi-uk.org
Until that time the patients travelling to Poland are having their tests done there.
In the meantime I suggest you get yourself acquainted with what this is all about by reading the 'stickys' at the top of this forum.

I am new on this site, and am trying to find out as much information as I possibly can to help my brother. He was recently diagnosed with MS (about 10months ago). Your posts give so much hope! Keep them coming, I am glued to them to see how your progress is coming along!

Welcome Muriel,
There is so much information available here that it may take you a while to digest it all, but it is well worth the effort.

Good afternoon TiMS,
I'm just back from my Physco appointment & she was totally stuned with my improvements Roll on my NEURO appointment 02/02/2010 I've so much i want to say to him(& I WILL)
I would like to take this time to thank every indivual who commented about my progress to date & to those people who have not made a profile yet,PLEASE PLEASE make a profile & get involved in this FANTASTIC forum.Don't be SHY..."THE TRUTH IS OUT THERE"
Slainte Mo Chara
Edser & Anna

PS:MurielC welcome Dóchas

Thanks Edser and Dovechick. Happy to be on the forum, I cannot get over the sheer wealth of information.

Edser that is fantastic news about the physco's reaction. This sounds like it really works - it's very exciting!

Edser you'll be on the Late Late (Ireland's answer to Oprah) yet talking about it!

Hi everyone

I think I've made some progress which I wanted to let you know about. We had a meeting last night with my brothers GP and a couple of other people that were interested in CCSVI and the corrective procedure.

First of all, which I think is HUGE, is that the GP is 100% on board with this. We showed him lots of research and articles and forums and web demos, Dr Zamboni's paper (you know what I'm talking about!) and he says YES let's look into this - there must be something in this!!

First port of call is getting a good radiographer on board to do the doppler ultrasound which is now in hand. So I'm thinking babysteps, but very very productive steps!

Edser I would love to speak to you about who you spoke to in Eire - did you get a vascular consultant on board here? I'm thinking that is our next step, but power in numbers!

Everyone have a great day!!!

Well done Muriel, make sure you take Dr Simka's paper on how to perform a doppler, also it is important that they have the right kind of equipment to carry out the test. But one step at a time is best.