This Is MS Multiple Sclerosis Knowledge & Support Community

fiddler wrote:Hi DebChazin:
Here are the doctors in Poland who are treating CCSVI:

mariansimka@poczta.onet.pl (massive waiting list!)
kosteckj@op.pl

Also there is, apparently, one in Bulgaria:

grozdinski@mail.bg (accepting patients from April)

...Ted

Good Morning TiMS,
Treatment in Bulgaria.How good or bad i honestly don't know.
http://liberation-treatment.com/treatment-bulgaria

Dovechick wrote:make sure you take Dr Simka's paper on how to perform a doppler, also it is important that they have the right kind of equipment to carry out the test.

Appreciate the feedback, thank you Michele.

Good Morning TiMS,
I'm after discovering "3" Irish people on this forum One of which is meeting Dr Simka & his team 01/04/2010 & the other is trying to get an appointment A.S.A.P.Are there any more???Stand up to the plate & let's be counted "YOU'LL NEVER BEAT THE IRISH"I'd like to help ye in any which way i can.
Slainte Mo Chara
Edser & Anna

Edser I have tingles!! I feel like this is the start of something BIG in this country - look at what you've started!!! I really feel this is the start of a CCSVI network here in Ireland!

Good Morning TiMS,
Abbott Laboratories here in ireland are about to release a stent to the market which has been specifically designed for use in veins. It should be released to market soon.
I'm Irish & i've had the procedure done in Poland 02/12/2009
Has anyone got any News or an update on the above item.
I've seen this in a CCSVI FACEBBOK page in the past & i've asked for more details.But that CCSVI group has not responded.Can anyone on TiMS shead some light on this subject for me PLEASE.
Slainte Mo Chara
Edser & Anna

http://www.abbottvascular.com/av_dotcom/url/home/en_US

http://www.facebook.com/pages/CCSVI-Mul ... 598?ref=ts
It's on this page i found it,but i can't find it now.
FOUND IT
JUST FANS
7th down

Stint***STENT
Slainte Mo Chara
Edser & Anna
http://www.abbottvascular.com/av_dotcom/url/home/en_US

I could not find any info on these stents on facebook

Does anyone have a link or know more details ?

Hello
I'm new to this site but not to MS, thanks to you I've found out loads of "stuff" and last week sent mails to Drs Simka and Kostechki in an attempt to get myself on a waiting list for CCSVI diagnosis and treatment. So far no response but I guess that's no surprise.

Have to confess I'm somewhat wary of having stents and thought I would go for the balloon option, however reading that there may be a specific stent in the offing is very encouraging, unfortunately I can't find it either.

Thanks to everyone who contributes on this site, great help and encouragement to us all. Linda

Hi Linda

My brother (the MSer) also emailed both doctors last week, to get onto the waiting list for an appointment. So far no response either, but what I'm seeing from the threads on this forum is that it appears to be a waiting game and all you can do is wait for the reply.

Hope everything goes well for you.

Muriel

Good Morning TiMS,
Workshop for CCSVI & MS

http://www.ms-mri.com/news.php

Slainte Mo Chara
Edser & Anna

Hi Everyone,

i just wanted you all to know that I have my date for the procedure with Dr.Simka. This is the email that I received:

April 13th doppler and MRV
April 14th procedure
you will be contacted regarding details by the administration

M.Simka.

I feel very blessed to be able to be going. I just wanted to thank you all for your posts as without them I would not be going. The time that each of you have put forth with encouragement, information, and your own stories have ment so much to me. I will start a thread with my experience once I arrive to keep you all posted. Thank you Erika for you PM's and Johnson lol really not Johnson . The information on this fourm has allowed myself as well as my husband and extended family to have less anxiety about my travels. thank you thank you .

Ally

AllyCanada wrote: Thank you Erika for you PM's and Johnson lol really not Johnson . The information on this fourm has allowed myself as well as my husband and extended family to have less anxiety about my travels. thank you thank you .

Ally

You are welcome!
GOOD LUCK!!!
Erika

I wish you all the very best Ally and I look forward to reading your thread.

Can you tell what date you sent your initial email to Dr Simka asking to join the waiting list?

I'm really just trying to get an idea of timeframe.

thanks,
Muriel

Can you tell what date you sent your initial email to Dr Simka asking to join the waiting list?


Hi Muriel,

I first contacted Dr.Simka Nov.25/2009.

Thanks Ally.
BEST OF LUCK!