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CCSVI
Posted: Sat Feb 06, 2010 2:18 am
by Edser
Good Morning TiMS,
CCSVI Victory Club Worldwide
http://ccsvivictory.club.officelive.com/default.aspx
Slainte Mo Chara
Edser & Anna
Posted: Sat Feb 06, 2010 6:35 am
by irishmum
Hi Edser,
You mentioned sometime ago about seeing you neuro and reporting your improvements. Have you seen him/her yet be interesting to hear their thoughts opinions
M
CCSVI
Posted: Sat Feb 06, 2010 7:40 am
by Edser
Good afternoon TiMS & Irishmum (Gaillimh)???
I didn't go & see my NEURO.The day i was suppose to go & visit him 02/02/2010,i e-mailed him asking was i going to meet him this time or someother Dr as per usual.He or his secretary has not responded to me.So i'm totally pi**ed off with him(NEURO) & the IRISH medical system.I'm making an appointment,true my own GP to go & visit an eye doctor & a vascular suergon... 1 ...Eye Dr because the sight appears to be coming back very slowly in my BLIND eye... 2 ... Vascular Suergon,to see if he has heard of CCSVI & too see if he might be interested in helping me out with my 3 mounth check-up.This would save me time & money by not returning to Katowice(Poland)
I don't have an update as i'm staying away from my laptop,as myself & Anna are getting out more for walk's,drives in the car.In general i'm getting my life back & it's not getting away from me,Life is for living... so ... i'm going to live it to the best of my abbility.
Slainte Mo Chara
Edser & Anna
...LiveTo Ride...Ride to Live...
CCSVI
Posted: Thu Feb 11, 2010 3:29 am
by Edser
Good Morning TiMS,
Interventional Radiologist Dr Paul Crowe is now offering a MR protocol privately for CCSVI.Interventional Radiologist Dr Paul Crowe Spire Parkway Hospital,1 Damson Parkway,Solihull,West Midlands,B91 2PPTel. 0121 - 424 0287 (secretary, direct line at Birmingham Heartlands Hospital)E-mail
paul.crowe@drpaulcrowe.com
Slainte Mo Chara
Edser & Anna
Posted: Thu Feb 11, 2010 3:36 am
by ClaireParry
Wow Edser.
Thats great news, and he is only up the road from me!!
CCSVI
Posted: Tue Feb 16, 2010 1:37 pm
by Edser
Good Evening TiMS,
I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st...then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna
Re: CCSVI
Posted: Tue Feb 16, 2010 1:56 pm
by happy_canuck
Edser wrote:Good Evening TiMS,
I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna
That's fantastic news! I haven't hit the ground with my heel-toe correctly for years. With me, it's more like "shuffle, shuffle..."
Sandra
Tracking project
Posted: Tue Feb 16, 2010 2:10 pm
by fiddler
Edser, you old trout, I love to follow your progress - I've been following your story since before you went to Poland - but I can't find your posting in the CCSVI thread. Now why would that be?
...Ted
Posted: Tue Feb 16, 2010 2:20 pm
by berriesarenice
Edser,
I'm thrilled for you! Please keep posting updates.
and Fiddler, I quite hope we'll be in Poland in the same part of April...this goes for anyone who uses a phrase like "you old trout..."
Posted: Tue Feb 16, 2010 8:57 pm
by Reytan
Edser you are simply the best
I love all yours and Anna’s updates, every inch of them
Do it again “you old trout”
Posted: Tue Feb 16, 2010 9:17 pm
by Maestro
Hi Edser,
...I feel normal...
That's wonderful
Thank you, it is also a great hope for the MS people.
love your updates.
V.
Posted: Wed Feb 17, 2010 12:15 am
by ClaireParry
Hi Edser,
I'm praying that after my op at the end of March my recovery mirrors yours!!
Great stuff Edser
Claire
CCSVI
Posted: Wed Feb 17, 2010 1:27 am
by Edser
Good Morning TiMS,
To-Day is OFICALLY my 1st anniversary with MS 17/02/2009-17/02/2010.PPMS??? That is the QUESTION??? As my NEURO has never confermed this.
Slainte Mo Chara
Edser & Anna
Posted: Wed Feb 17, 2010 1:56 am
by crocky
All your progress reports are just fantastic - keep them coming, you are a real inspiration to many people on this site.
Posted: Wed Feb 17, 2010 6:41 am
by AllyCanada
WOW fantastic Edser...I also love reading your posts...
Fiddler and berriesarenice do you both have your dates yet for Poland in April...I am there April 9-19th ..testing is on April 13th and procedure April 14th. I love the saying "you old Trout" as I live in Northern Manitoba and Trout is plentiful
stay well,
Ally