Funding for Buffalo CTEVD study !! What can WE do !!??
Posted: Sun Nov 08, 2009 9:53 am
From Sawdoggie on another thread :
"The good news is, they are very optimistic that they are on to something and the first phase of the study will be released either late this month or early in December. I specifially mentioned to Dr. Weinstock-Guttman that the press release and press conference seemed very confident and she confirmed that it was. The first phase is going to include roughly 500 people and after this they will make a determination (as I understood it) if they actually need to continue with the full 1700 or if the results are strong enough to stand as they are. There are some funding issues as well that could limit the study."
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NOTE : "THERE ARE SOME FUNDING ISSUES AS WELL THAT COULD LIMIT THE STUDY" !!!!!!!!!!!!!!!!!!!!!!!!!!!!!
OK, I've been a fundraiser for the NMSS ever since my diagnosis. I have raised somewhere on the order of $6,000-$7,000 in the past few years by organizing an MS Walk team for 2 years, by encouraging my family to donate to the NMSS in lieu of Christmas gifts, and by sponsoring 6 bike riders for the past 2 years via the MS Bike Ride at $75 a person !!!
HOW CAN WE MAKE SURE THAT THE BUFFALO CTEVD STUDY HAS THE FUNDING THEY NEED !!!!!!!!!!!!!!!!!!!
"The good news is, they are very optimistic that they are on to something and the first phase of the study will be released either late this month or early in December. I specifially mentioned to Dr. Weinstock-Guttman that the press release and press conference seemed very confident and she confirmed that it was. The first phase is going to include roughly 500 people and after this they will make a determination (as I understood it) if they actually need to continue with the full 1700 or if the results are strong enough to stand as they are. There are some funding issues as well that could limit the study."
--------------------
NOTE : "THERE ARE SOME FUNDING ISSUES AS WELL THAT COULD LIMIT THE STUDY" !!!!!!!!!!!!!!!!!!!!!!!!!!!!!
OK, I've been a fundraiser for the NMSS ever since my diagnosis. I have raised somewhere on the order of $6,000-$7,000 in the past few years by organizing an MS Walk team for 2 years, by encouraging my family to donate to the NMSS in lieu of Christmas gifts, and by sponsoring 6 bike riders for the past 2 years via the MS Bike Ride at $75 a person !!!
HOW CAN WE MAKE SURE THAT THE BUFFALO CTEVD STUDY HAS THE FUNDING THEY NEED !!!!!!!!!!!!!!!!!!!