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New to the forum

Posted: Mon Nov 09, 2009 9:22 am
by zipfed
While I have been lurking for a while so I thought I would introduce my self. My name is Jason I am 36 and I was DX'd almost 1 year ago RRMS and found the CCSVI info about 2 months ago so I am scheduled with my PCP the 23rd to get a refferal to Stanford then hopefully that portion can happen quickly, luckily I live just north of Phoenix so Stanford is not to far of a drive for me and my wife.

Posted: Mon Nov 09, 2009 9:29 am
by ozarkcanoer
Good luck, zipfed !!!! It would be so great if your neurologist is open-minded about CCSVI.... Please keep up posted...

ozark

Posted: Mon Nov 09, 2009 11:58 am
by whyRwehere
I think he is getting referred by his general practitioner and not a neurologist, which is probably the best idea.

Posted: Mon Nov 09, 2009 12:12 pm
by kinga
hello zipfed! good luck with your Stanford appointment!

Posted: Mon Nov 09, 2009 12:45 pm
by zipfed
Thanks everybody, and yes I am getting referred by my GP as I cant even get my neuro to return my calls most of the time.

Posted: Tue Nov 10, 2009 1:37 am
by ErikaSlovakia
whyRwehere wrote:I think he is getting referred by his general practitioner and not a neurologist, which is probably the best idea.
I also went to GP and before to an angiologist. My neuro is my friend, but I still have not tol her a word about CCSVI.
Only one neurologist in Slovakia wants constantly more info from me, which is very good, she is young, she speaks very good English, I go to see her tomorrow.
Another neurologist is from Prague - my ex teacher. He also wants more info, he finds it positive.

Posted: Wed Nov 11, 2009 7:32 am
by CRHInv
Hi Zip! I'm Beth, I'm from chandler. I am sitting in Stanford medical center right now waiting to see Dr. Dake and get released. I'm not an expert or anything, but if you ever want to chat, feel free to pm me. Take care!

Posted: Mon Nov 23, 2009 7:33 pm
by grant
Hi Zipfed and CRHinv,

I am Grant and I live in North Phoenix. I am extremely interested in trying to get in to see Dr Dake.

Can you give me some information about how you approached your Dr and how you got into Stanford?

I hope you don't mind if I PM you both.

Thanks,

Grant