This Is MS Multiple Sclerosis Knowledge & Support Community

The MS Society's position taken in this documentary is just terrible. I hope they reply and explain themselves .

But on the other hand ..... are they the ones who decide which course of action an MS patient takes ? Does it really matter what they think ?

I would suggest ..... visit a Primary Care Giver - your doctor- ask for a referral to see a vascular specialist . Send the VS the Zamboni CCSVI story we just viewed .

Skip the Neuro ....and the MS Society ..... they have had their chance ..



Thanks W5 ............




Mr. Success

Wow, I just can't say enough about the wonderful job this journalist did. I can't believe how informed she was going in to this project. Congratulations to CTV.

My husband & I had to drive over 50km to the next town and back to see the documentary in an internet café because we are living in the sticks/in the woods of NZ without broadband.
What a fantastic work by all of you! It’s really a long time ago I’ve seen such damned good documentary about a medical topic. BRAVO!
Best
Arne aka muse
www.csvi-ms.net/en

OMG I've forgot to show the image of my stenosis diagnosed 4 days ago at own expense in NZ!

I’m Canadian and I’ve grown up watching CTV news (and W5). I will keep doing it!


Tonight, I was watching CTV National News and they talked about the documentary again and gave a brief update. Just click the link below


http://watch.ctv.ca/news/ctv-national-n ... clip237906

(they talk about it from 3:43 to 6:55)


Avis says that she spoke to some doctors and they are now talking about having a meeting about this on Monday to start looking if there is a way to check patients and to see how important CCSVI is in MS

Very informative update, flipflopper, the bit that she heard from doctors who are going to have meetings on Monday to talk about what they can do...And CTV journalists are still following the conversations here and on facebook! Avis et al, fantastic work indeed...

As much as the internet is getting the word out, the US broadcast media needs to jump on this now.

They had no interest in covering the Bologna conference, but now that word is out, they'll be shamed into it when they see the amazing job Avis and CTV did.

very very remarkable man / it is unbelievable how dedicated dr zamboni is / cash 4 him is truly not king / it is so very refreshing 2 see a dr that truly just wants 2 help people out not caring abt anything else but that / my liberation continues 2 be good -no attacks and some improvements/ as i have said this is 4 real/ now why can t the rest of the medical community have that goal / STAY STRONG ALL ----PEACE

Off topic, but really interesting how much less dumb Canadian TV is.

bestadmom wrote:As much as the internet is getting the word out, the US broadcast media needs to jump on this now.

They had no interest in covering the Bologna conference, but now that word is out, they'll be shamed into it when they see the amazing job Avis and CTV did.

Oh you know that's a fact lol. Scooped! I was writing to a reporter for our local paper this Friday on a story she was doing, made sure to mention this just in case they wanted to get out in front of it as they say... never know!

Mark.

I haven't been on here in a long time (hi all!), I've been off DMDs for nearly a year now and eating a Swank-type diet for 1.5 years, been in remission too thankfully!

I watched the w5 show, and I'm so hopeful about this treatment. It just makes entirely too much sense, which would take me hours to explain why I believe in this treatment (which I'm sure would be a lot of repetition of the same thoughts others are having about this).

I've sent my email in offering up my goods (MRIs and such). My doctor switched during this past year to a new doc who's totally cool about trying new things, and exploring other avenues.

I'm sure asking for a referral to a vascular specialist in my region wouldn't be a big deal. Though the wait time may be over the top. It'll be worth the wait though if this turns out to be the missing piece of the pie.

Hi

I've found another link
http://watch.ctv.ca/news/w5/the-liberation-treatment/

I think this link has not been posted yet. If so, sorry for the duplicate.

I've to watch the video now.

Regards,
ibex

I was watching all segments as well. VERY WELL DONE!
Thanks to Joan and Jeff and their son!
I just do not know which e-mail or which from the Forums answer first.
It will be busy Sunday but I am happy to do that.
Erika

My husband and I agree about Augusto...that was too moving...and with my husband it's playing football, although he may never get that well again even with the liberation.
And the MS society saying no one should even get tested are they crazy?

What a wonderful DOCUMENT! I was very excited to see it and very happy too. This means some sort of change, things go now faster than before - Im very sure about that. Big pharma isn't happy with this, but we are.

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