I made contact with Stanford and this is my first post
Posted: Sat Nov 21, 2009 8:47 am
Hello to all on this forum!
I have been monitoring thisisms.com since my RRMS dx in 2004. I've been following the CCSVI forum since April or May. I recently went off Tysabri after 24 doses (last dose 8 weeks ago). The CCSVI model and research makes so much sense to me. I think it is a very exciting time for the MS community. I made the decision to explore my possibility of being treated by Dr. Dake. I've made the contact and received a response from the girl named Alex, those of you on the forum speak so highly of. It will take me a few weeks to compile all the information requested with the need to obtain copies of records and such. Being on the east coast, this will quite an adventure for me but I am excited that I have put the ball into motion.
I wanted to thank everyone who has blazed this trail and spread the wealth of information and research!
Heather
I have been monitoring thisisms.com since my RRMS dx in 2004. I've been following the CCSVI forum since April or May. I recently went off Tysabri after 24 doses (last dose 8 weeks ago). The CCSVI model and research makes so much sense to me. I think it is a very exciting time for the MS community. I made the decision to explore my possibility of being treated by Dr. Dake. I've made the contact and received a response from the girl named Alex, those of you on the forum speak so highly of. It will take me a few weeks to compile all the information requested with the need to obtain copies of records and such. Being on the east coast, this will quite an adventure for me but I am excited that I have put the ball into motion.
I wanted to thank everyone who has blazed this trail and spread the wealth of information and research!
Heather
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