There's something going on in Italy: Zamboni blocked
Posted: Mon Nov 30, 2009 3:58 am
Hi all,
On our Dutch forum, someone posted a mesage from an Italian MS forum, about Zamboni being very frustrated because eveyone is blocking his research.
Because my Italian is very bad (it only can buy food in restaurants ), I am looking for help. Can someone translate and understand what's going on?
This is the information I could gather:
Taken form the italian MS forum:http://www.ideamultipla.it/forum/viewtopic.php?t=9828
il prof. zamboni stamattina è stato qui a cremona, c/o
una clinica convenzionata, x tenere una conferenza tra
SOLI doc e prof.
incalzato da una dr.ssa con sm, al corrente di tutto,
con visita da salvi e flebografia fatte, e lì presente x
lavoro, ha risposto amareggiato ke E' TUTTO
BLOCCATO, PURTROPPO NON POSSONO MUOVERSI,
INTERVENIRE, PROSEGUIRE CON LO STUDIO E AGIRE!
a suo dire, purtroppo LA SOLA POSSIBILITA' PER
SMUOVERE E SBLOCCARE QUESTA ASSURDA
SITUAZIONE DI OSTRUZIONISMO, TUTTA ITALIANA,
E' CHE I MALATI DI SM, GLI UNICI CHE PER 'DIRITTO'
DEVONO ESSERE ASCOLTATI, SI ATTIVINO PRESSO I
PROPRI CENTRI DI CURA. SUGGERISCE DI INONDARE
DI MAIL E LETTERE I MASS MEDIA, GIORNALI, TV, SITI
WEB, OSPEDALI E TUTTI I COMITATI ETICI, presenti nei
centri di ricerca e ospedali italiani.
Rough translation:
Prof. Zamboni came this morning to Cremona, for a conference with doctors and professors. To a female doctor who has MS and who is well informed (visited Dr. Salvi, done flebography etc), Zamboni bitterly spoke that EVERYTHING IS BLOCKED, they have no where to go.
The only way out is that patients become active themselves, aproaching their own doctors. hospitals etc. He request to continously mail, approach media etc. Also approach the Ethical commission.
The Ethical commission is an independent organisation which is responsible for the public guarantee of safety and well being of persons joining a medical experiment. They oust their ethical and scientific opinion before a study where people are involved, can proceed.
There were some links:
http://www.facebook.com/pages/CCSVI-nel ... 9997017782
The italian MS forum is calling everyone to send a petition to the European parliament. They specifically ask not to e-mail, but to collect signatures/hardcopy and send it in by mail.
http://www.facebook.com/pages/CCSVI-nel ... 9997017782
This sounds serious. Can someone please help to make understand what's going on? In The Netherlands, we are thinking of collecting signatures, but it would be great if the US (and canada!) would also join in.
But before we start, I would very much like to understand the problem fully.
Thanks in advance for your help.
Inge
On our Dutch forum, someone posted a mesage from an Italian MS forum, about Zamboni being very frustrated because eveyone is blocking his research.
Because my Italian is very bad (it only can buy food in restaurants ), I am looking for help. Can someone translate and understand what's going on?
This is the information I could gather:
Taken form the italian MS forum:http://www.ideamultipla.it/forum/viewtopic.php?t=9828
il prof. zamboni stamattina è stato qui a cremona, c/o
una clinica convenzionata, x tenere una conferenza tra
SOLI doc e prof.
incalzato da una dr.ssa con sm, al corrente di tutto,
con visita da salvi e flebografia fatte, e lì presente x
lavoro, ha risposto amareggiato ke E' TUTTO
BLOCCATO, PURTROPPO NON POSSONO MUOVERSI,
INTERVENIRE, PROSEGUIRE CON LO STUDIO E AGIRE!
a suo dire, purtroppo LA SOLA POSSIBILITA' PER
SMUOVERE E SBLOCCARE QUESTA ASSURDA
SITUAZIONE DI OSTRUZIONISMO, TUTTA ITALIANA,
E' CHE I MALATI DI SM, GLI UNICI CHE PER 'DIRITTO'
DEVONO ESSERE ASCOLTATI, SI ATTIVINO PRESSO I
PROPRI CENTRI DI CURA. SUGGERISCE DI INONDARE
DI MAIL E LETTERE I MASS MEDIA, GIORNALI, TV, SITI
WEB, OSPEDALI E TUTTI I COMITATI ETICI, presenti nei
centri di ricerca e ospedali italiani.
Rough translation:
Prof. Zamboni came this morning to Cremona, for a conference with doctors and professors. To a female doctor who has MS and who is well informed (visited Dr. Salvi, done flebography etc), Zamboni bitterly spoke that EVERYTHING IS BLOCKED, they have no where to go.
The only way out is that patients become active themselves, aproaching their own doctors. hospitals etc. He request to continously mail, approach media etc. Also approach the Ethical commission.
The Ethical commission is an independent organisation which is responsible for the public guarantee of safety and well being of persons joining a medical experiment. They oust their ethical and scientific opinion before a study where people are involved, can proceed.
There were some links:
http://www.facebook.com/pages/CCSVI-nel ... 9997017782
The italian MS forum is calling everyone to send a petition to the European parliament. They specifically ask not to e-mail, but to collect signatures/hardcopy and send it in by mail.
http://www.facebook.com/pages/CCSVI-nel ... 9997017782
This sounds serious. Can someone please help to make understand what's going on? In The Netherlands, we are thinking of collecting signatures, but it would be great if the US (and canada!) would also join in.
But before we start, I would very much like to understand the problem fully.
Thanks in advance for your help.
Inge