This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Johnson,
I get what you are saying now--interesting conumdrum you present-I am still planning on starting EDTA chelation in January--I am counting on fact I am still alive to mean that my veins are at least somewhat open. And the chelation process is slow, need at least 30 sessions, so huge amts are not released each time. So I am assuming these small amts will get thru.
So much of what we are discussing on this site, in various spots, is experimental--we don't have enough info to be sure of a lot of things. But there is enough literature on chelation for me to feel it is a safe process--I am not going after the iron in particuar--there are a number of minerals that cause problems when lodged in organs, or in clots within veins and arteries, and it is all of them I wish to address.
There have been a bit of anecdotal references to chelation helping MS, but since they could not explain why, it is not spoken of as much as removal of calcium deposits and cardiovascular healing. Possibly the EDTA is chelating the iron from the brain in MS?? I can only hope...

Jak7Ham9

Warning I had weird reaction last week with addition of 30G viatim c to edta my neck shoulders got really tight and I got something I can only describe as lock jaw (similar ex tetnus) This only lasted for a couple hours after chelation but made me think of iron reaction

that is a lot of Vit C I know excess C destroys copper--and could be interfering with other stuff-- do they include trace minerals in your drip?

hi shye yes trace min included.just got results on doppler ultasound from vascular surgeon nj.jugglars totally stenosed. i think chelation will work great after opening veins.really take a look into deferroamine chelate iv or exjade oral.b

Hi everyone,

I read on the internet that giving blood once a month helps with iron build up. This makes sense because all my problems started when I started perimenopause.

Hi Jak7ham9
how did you get the doppler ultrasound? I mean, did you try to follow zamboni's protocol, or just ask for a doppler of the jugglars?
My Dr wrote a script for me, and told me to do the work to find someone who could do it (ie, as Zamboni wants), but then I read that is almost impossible, so gave up. But am thinking of just going to the the large teaching hospital here in NYC where I've had many other radiology tests done for # of things and just finding someone who will do the test however.
Thanks for any input

I don't know anything about chelation but I'd avoid chocolate as far as possible as it has a very high iron content.

I copied all doppler protocol zamboni off internet and gave it to surgeon who had it followed and performed in his office. He was shocked over stenosis and i am having mrv done in cape may ct house today by neuro radiologist I set all protocols to. Barbara

After many years of reading around MS, with a health professional hat on, my advice is not to mix CCSVI and Iron Chelation. After CCSVI treatment (say 3-6 months later) there are many therapeutic options but doing both together is not predictable.

MarkW

Thanks for the info jak7ham9--
so i guess I can indeed get someone at the teaching hospital to do the doppler.
Keep us posted on how you are doing, and what you are doing with the info--good luck with it all, and a healthier New Year to us all!

MarkW wrote:After many years of reading around MS, with a health professional hat on, my advice is not to mix CCSVI and Iron Chelation. After CCSVI treatment (say 3-6 months later) there are many therapeutic options but doing both together is not predictable.

MarkW

I would agree with that sentiment. It seems to me that chelating iron, without proper drainage from the brain, could be "dangerous", or at the least, exacerbating.

Of carts and horses...

I have had my iron levels checked and they were slightly on the low side. One of my MS diet friends has found the same thing. Am I right in thinking that that doesn't matter with this theory and the iron you do have in your body tends to chelate in the brain still?

Can somebody explain this to me in an easy to understand way please?

personally i'm not going to chelate iron. i just try to make sure i have good anti-inflammatory foods and supplements going in, to help protect against anemia of chronic disease, and i take zinc too because it helps your body regulate iron.

just throwing this out there once more: Zinc Deficiency-induced Iron Accumulation, a Consequence of Alterations in Iron Regulatory Protein-binding Activity, Iron Transporters, and Iron Storage Proteins
http://www.jbc.org/content/283/8/5168.full.pdf

I have also read that high aluminum levels can result in elevated iron levels.

http://www.ithyroid.com/aluminum.htm

LouK
My understanding is that the circulating blood has a hard time getting out of the brain due to vein problems (twisted, or blocked), so it goes back into or stays in the brain--from this blood, iron seeps out (not sure of the mechanics--pressure causes cells to burst and release the iron? ) and that is where the iron comes from. So you are right, you can be low in iron and this would still happen.

@ dan:
magnesium depletion and aluminum deposition

http://www.mgwater.com/dur16.shtml
Mg depletion, particularly in the hippocampus, appears to represent an important pathogenic factor in Alzheimer's disease. It is associated with high aluminium incorporation into brain neurones. This type of Mg deficit cannot respond to mere Mg supplementation, but requires correction of the dysregulation inducing this Mg depletion. Further research should seek to control the alterations of albumin, which may induce this brain Mg depletion.

interesting avenue to explore..