Nube Post
Posted: Thu Dec 03, 2009 9:26 am
I'm new, but I've been reading for a bit. My husband (who has MS) and I found out about CCSVI from a post on Reddit.com.
Cheer I've been following your advice from a post I found on Facebook, but haven't had any luck yet. When I do I will post my findings on http://ccsvi-multiple-sclerosis.com ( http://ccsvims.com for short)
You stated:
In the end we finally came to grips with the fact, bad things happen in the world. For what ever reason, sometimes people die.
I hope I don't offend anyone by my next statement because I know some people really die badly. We met a couple who lost all three of their children in a fire, so if there is anyone in here who lost someone in a painful death I apologize.
The greatest consolation I had when it came to our son's death was he died in his sleep. He did not suffer any pain or terror as some people do. When someone does die, we grieve for ourselves not the deceased because that person is at peace -- or at least that's the way I look at it now.
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As a side note, since everyone is concerned over stints, I don't remember Dr. Zamboni saying his team used stints in the Canada TV program http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5 I thought he merely stretched the vein so blood could flow through. Does anyone know if the Zamboni team uses stints?
Cheer I've been following your advice from a post I found on Facebook, but haven't had any luck yet. When I do I will post my findings on http://ccsvi-multiple-sclerosis.com ( http://ccsvims.com for short)
You stated:
But as Sharon stated:cheerleader wrote:Times like these I wish Jeff and I had just gone to Stanford, had his treatment, gone home and gotten on with life.
But I asked Dr. Dake if he minded if I shared the information with a community of friends online...and he said fine. I sometimes wonder if we will both regret that decision. I hope not, but it's not looking so good.
In the end, I know we are only responsible for ourselves- but I don't think folks understand how upsetting this is-
later,
cheer
You should not feel responsible at all. Death is an unfortunate part of life. It's not quite related, but my husband and I lost our son to SIDS four years ago. We both beat up on ourselves thinking we may have done something that caused it, or maybe we could have done something to prevent it.Sharon wrote:Jay123 and Ozark,
I was in contact with Holly's family soon after she arrived at the hospital in Phoenix. I ask that everyone who is interested in the circumstances on Holly's death, please read the following thread
http://www.thisisms.com/ftopic-7886-day ... ly-30.html
From that thread - written on Aug 19, 2009. . .
Trudi, Holly's sister wanted to make sure that we understood the stroke was not caused by the procedure at Stanford. This was confirmed by the neurologists at St. Joe's and Dr. Dake (Dr. D was with Holly in Phoenix Sunday afternoon ). . . .
In the end we finally came to grips with the fact, bad things happen in the world. For what ever reason, sometimes people die.
I hope I don't offend anyone by my next statement because I know some people really die badly. We met a couple who lost all three of their children in a fire, so if there is anyone in here who lost someone in a painful death I apologize.
The greatest consolation I had when it came to our son's death was he died in his sleep. He did not suffer any pain or terror as some people do. When someone does die, we grieve for ourselves not the deceased because that person is at peace -- or at least that's the way I look at it now.
-------------------------------------------------------------------------------------
As a side note, since everyone is concerned over stints, I don't remember Dr. Zamboni saying his team used stints in the Canada TV program http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5 I thought he merely stretched the vein so blood could flow through. Does anyone know if the Zamboni team uses stints?