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Myelin Repair Foundation Shares Optimism for CCSVI
Posted: Sat Dec 05, 2009 12:02 am
by marcstck
This was posted on the Myelin Repair Foundation's blog today, by Rusty Bromely, the gentleman I spent three hours talking to yesterday at a café here in New York. Mr. Bromely is a brilliant and gracious man, and I'm still trying to figure out the best way to thank him (and Hollie Schmidt from The Accelerated Cure Project) for taking the time to meet with me.
Was the timing of this MRF post a coincidence? Don't want to blow my own horn or anything...
http://tinyurl.com/yae6erq
Posted: Sat Dec 05, 2009 2:05 am
by LR1234
Well done Marc! The more people that know about CCSVI the quicker it can be investigated:)
How are you doing these days? Any more news from NIH?
L
Posted: Sat Dec 05, 2009 6:23 am
by bestadmom
No coincedence, this is statstically significant! Blow your own horn. I'm happy they contacted you.
Posted: Sat Dec 05, 2009 6:27 am
by mrhodes40
Excellent! I am glad that you had an opportunity to speak with those people and give them the information that you have picked up.
Posted: Sat Dec 05, 2009 7:07 am
by Loobie
Marc,
Toot that dude! I can almost guarantee if you speak like you write, that you were a big part of his understanding this like it really is.
Posted: Sat Dec 05, 2009 8:08 am
by cheerleader
Ditto on Lew's comment, Marc. I know your meeting had a specific affect. Also appreciate Rusty's mention of the FB page. Terrific job getting the information to this pro-active charitable foundation.
cheer
Posted: Sat Dec 05, 2009 9:11 am
by jr5646
Nice job, Marc... the more attention ccvsi gets, the better... THANKS
Wouldn't it be cool too if he were related to Ian -
http://www.thisisms.com/fsearch-author-bromley.html
Oops, different spelling !
Posted: Sat Dec 05, 2009 2:41 pm
by Sharon
Great job, Marc! Glad you were able to speak with Rusty Bromley and to see that he posted something from the MRF. The MRF blog has had a few comments about CCSVI since summer, so it is nice to see that it is now getting recognition.
Sharon
Posted: Sat Dec 05, 2009 3:45 pm
by Johnnymac
Fantastic man
Posted: Mon Dec 07, 2009 5:47 pm
by ozarkcanoer
I found this on The Myelin Repair Foundation website. Thought you would all be interested
:
http://myelinrepair.org/blog/?p=1466
ozarkcanoer
Posted: Mon Dec 07, 2009 6:43 pm
by marcstck
wow! That was nice of them...
Posted: Mon Dec 07, 2009 7:44 pm
by MS_mama
guess they blew your horn for you!
But seriously, what a great, down-to-earth attitude they have to sit down with someone like you who is actually dealing with MS and knows a hell of a lot about it, and get your take. That's awesome. I think they'll get some of my donation dollars this year...