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HI Member I ent to a radiology' center for MRV scan and i gave to him all the DR. HAACK'S protocol and othe papers publised by DR.SIMKA AND PROF. ZAMBONI.But after reading infomations he has told me that he can do the MRI OR DOPPLER TEST for me and cancelled the test. Yesterday i have contact the sonographer DR. J.GREGG at the MELBOURNE radiology clinic. she very helpfull sonographer and told me she has done few doppler scan as per the protocole and find most of M.S patient have the CCVI problem. So if i want to do the test she asked me to come her clinic with a refferal from my G.P But she does not know where are the M.S patients going for the treatment. I am planned to go her clinic in JAN.2010 for the doppler test BUT I have to find the a vascular surgeron in SYDNEY OR MELOBOURNE'P lease any member knows any surgeon who can do the procedure.Any help would be gratefully appreciated
regards
seeva :roll:

Good luck with your Doppler Ultrasound Seeva.

No one has had the "liberation procedure" in Australia yet. The only Australians who have had it have gone overseas.

I'm sure it's just a metter of time before Australian vascular surgeon's are offering the liberation procedure.

best regards, hwebb

Marzy wrote:Melbourne Radiology Clinic
3-6/100 Victoria parade
east melbourne
Phone 9667-1667
sonographer: Dr Julie Gregg.

I just looked this place up out of interest, and it looks like a jackpot for CCSVI diagnosis. (Good find Marzy!)

1st There is an ultra-sound radiologist willing to do the doppler tests.
2nd They have a new wide-bore SIEMENS MRI!

From my understanding, implementing Dr Haake's SWI exams should be a simple case of getting the updated software from Siemens. Dr Haake has worked VERY closely with Siemens.

Now, if the ultra-sound equipment they use is the same brand as the one they are giving training for in Ferrar, it would almost be too good.

I also note that their website has references to interventional radiologists...

I should point out that Dr Julie Gregg did a modified form of Zamboni's Doppler Ultrasound. She had read his relevant papers. She said she modified the technique to make the analysis a little less time consuming. She didn't make the modifications in a slap-dash way ...she'd put a protocol worksheet together before she analysed me.

She was able to detect slow flow in my jugular vein, so I was satisfied with her technique. However, the modified technique may not be best for all people requiring analysis. I believe one of the big teams doing analysis (in Stanford??) ended up calling patients back for re-analysis as they'd improved their technique over time, and realised they'd issued false-negatives to some subjects.

Looking at an old MRI of my neck..I reckon there is evidence for the problematic left jugular (my left internal jugular is only a small fraction of the size of a normal one). The radiologist missed it because he wasn't looking at the veins. I'm trying to contact him now to review.

hwebb

hwebb wrote:She was able to detect slow flow in my jugular vein, so I was satisfied with her technique. However, the modified technique may not be best for all people requiring analysis. I believe one of the big teams doing analysis (in Stanford??) ended up calling patients back for re-analysis as they'd improved their technique over time, and realised they'd issued false-negatives to some subjects.

That was at False Creek, BC, Canada - not Stanford.

NHE

Hi all,

I have forwarded all relevant literature to Dr Julie Gregg about the MRI protocol and she will pass it on to the MRI radiologist .I also have his email address and will endeavour to contact him to see if he is interested in performing the procedure(he owns the practice ).
I will update everyone on any progress re the MRI .
It may only be baby steps but hopefully we can collectively open the door to
more practices and specialists willing to take this on.

Take care everyone and Happy New year to all.
Marzy

I sent an email and rung the Melbourne radiology centre (with a referral) in the hope of getting an SWI and an MRV (from the top of my head to my Diaphragm). I know they have a Siemens MR machine, so they should be capable.

They rung me back, and said they did not purchase the SWI software for their scanner, and when I told them it had been released for free, they assumed they had been quoted a price from Siemens to install the software or something.

In short, they decline the oportunity to perform either of the above scans. Next.

Hi,

Major Bummer!
Thanks cureorbust for letting us know about the MRI info.
I guess we just have to keep on searching.......again.
Was really hoping that this place was a solid lead for the MRI.

Cheers everyone

Marzy

marzy wrote:Was really hoping that this place was a solid lead for the MRI.

I am guessing you mean "MRV"?
The Edgecliff centre is a solid lead for an MRV. I have an appointment booked there at the end of the month. I was hoping these guys in Melbourne would of accepted the referral to perform an SWI scan.

I understand the centre in Melb. was commenced and owned by a specific radiologist. I did not speak to this guy directly, but some other radiologist. Maybe if someone is able to speak with the guy that has invested all his money into the latest MR equipment from Siemens, he might be more open to discussing a new income stream to help pay for it...

Hi my name is Valerie I am in the same boat as you. Have you had any luck find someone to help you? seems the radiology over here isn't catching the CCCSI
let us know whats happening pls.

Hi all,
you may remember I mentioned inthis thread that I was going to ask the radiologist who did my MRI back in September (which diagnosed me with MS) to review the images....as I now have a Doppler Ultrasound indicating my left jugular is only allowing blood flow at about 5% the volume it should be. My right jugualr aint flash either!

Anyway, as a novice looing at my MRI images...it looked like my jugulars were not symmetrical. Radiologist agreed...and below is his review. I'm glad to know I at least have jugulars...and they are not blocked (though they may be narrow or piched...or something else...MRV will tell):

Dear hwebb,

I have reviewed your MRI scans. These scans were performed using protocols optimal for making an initial diagnosis of MS. I am afraid I cannot add further significant information regarding the state of or functional quality of your cerebral or neck veins other than that the vessels appear patent. Finer anatomic detail of the circulation would require MRV. Indeed functional information regarding the neck vessels is probably more accurate using ultrasound, which you have already had done, particularly since this can account for effect of change in positioning (erect to supine).

At FMIG we can perform cerebral MRV and MRA examinations to assess the anatomy of the vessels. However we are not currently able to do susceptibility weighted imaging or flow quantification of the venous sinuses which require particular software packages which we do not have, but may be available at a centre which does more of this type of imaging.

Your neurologist may know a particular centre to which they may refer.

Hope I have assisted with you queries.

Dr AT

hwebb wrote:However we are not currently able to do susceptibility weighted imaging or flow quantification of the venous sinuses which require particular software packages which we do not have, but may be available at a centre which does more of this type of imaging.

Do you know the brand of machine they are using?

My MRI to diagnose my MS was done on a Siemens Vision 1.5 Tesla (apparently one of the highest and powerful clinical magnets)

If its a Siemens, I am sure that Dr Haake has released the software to perform an SWI for free. I could be wrong, but I am pretty sure I have even downloaded it to my computer when it was first posted. One of the problems is that its basically only on a Siemens machine. The GE machine has a SWAN program, that Dr Haake can actually derive an SWI from with some additional data. But the Siemens should be pretty straight forward from my understanding. NB: I am not a radiologist, so I could be way off.

I had a look for the file on my disk, and found a record of the location I downloaded it from http://www.mrc.wayne.edu/download.htm

Following links, here is the details on running SWI (a WIKI on the software):
http://help.mrimaging.com/index.php?title=Main_Page
http://help.mrimaging.com/index.php?tit ... Processing

It all appears to be PC software that runs on the data files, after you have attained the scan

that's great info Cure.

I'll make sure the radiologist get's this, and I'll see if it changes his mind about being able to provide the MRV using the Haacke protocol.

If I get a positive response, I'll post on TIMS (don't wanna send TIMS people running in circles if this radiology group really can't help).

hwebb