This Is MS Multiple Sclerosis Knowledge & Support Community

Media coverage in UK
http://www.dailymail.co.uk/health/artic ... veins.html

That is a good piece of news. At last a high circulation paper publishes a story about CCSVI but typical Mail treatment of a serious matter. Not impressed with some of their pictures. Thanks Guru for giving us a heads up.

HKintheUK of the MS-CCSVI-UK fan page on Facebook made this video to help us make history....
Worth a watch:

That youtube link is very good.!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

This has been the only article in the newspapers north of the border:

http://www.eveningtimes.co.uk/news/edit ... r-1.987654

Badger, it has pipped the Scotsman to the post, and the are usually quick on the uptake with MS stories, so well done the Evening Times. I've commented on an MS story in the Scotsman but whether they take it up or not is another question. I do have a Scottish surname but I live in the south of England...
I'm in the process of writing a press release which I will send them...

I think I will go and post the video as a new thread, to get more people to see it.

Just an update on the petition.
1101 names at 6.30pm wed

keep up the good work and keep posting the link

http://petitions.number10.gov.uk/CCSVINOW/?showall=1

thanks
colmmc

To my embarrassment I have just been catching up on all the posts on this marvellous thread. Congratulations to all those people who are working hard to raise the awareness of people in the UK.

I have posted an update re my efforts to get the procedure carried out in the UK under our NHS procedure http://www.thisisms.com/ftopict-8446.html
- blissfully unaware that this is now the more appropriate thread. On reading this thread I see that I have something in common with DippyD. I wonder how you are getting on? Not sure which part of the country you are from but it would be interesting to share experiences. My radiologist (who is very experienced) was new to this procedure and she was uncertain where I could get an MRV. These tests may be mainstream in some parts of the country but not where I come from!

http://www.mirror.co.uk/news/top-storie ... -21973347/

This is just the beginning. I have been contacting all of my local press and media but they don't want to know.

Sorry to say I told you so......................

Just had a photographer from the Manchester Evening News round to take some pics to go with the story their going to run about th petition ect
It at 1738 now but its been a bit slow today,So can I ask everyone to give it a push
Thanks.

colmmc


http://petitions.number10.gov.uk/CCSVINOW/

Well done Colm, come and tell us all about it as www.ms-ccsvi-uk.org

I am meeting with a MP tonight who is sort of
a long friend. I will ask if he personally knows the
MPs who suffer with MS and if so do they know
about CCSVI and if so are they doing anything about it
, any other ideas?

we have a list of MPs with MS or with family with MS, if you email me at my address, at bottom of post I will send info.
Michele

Just a small point re costs to the NHS of people having MS. The government gives a budget to each local PCT (Primary Care Team). The PCT then carves the money up. Hospitals have agreements with PCTs and charge them for individual consultations that they have had with patients. PCTs also pay for treatments and drugs. My point is that Neurologists and hosptals won't care about costs because the PCTs fund them, PCTs and NICE (National Institute for Clincal Excellence) will care though.

Sweetpea,
Our angle at www.ms-ccsvi-uk.org is not about the cost to the NHS, but more about the cost to the State... The figure was some £1.5 billion pounds in 2008.

http://www.iop.kcl.ac.uk/news/default.aspx?id=261