This Is MS Multiple Sclerosis Knowledge & Support Community

This was posted on the NMSS website on Saturday December 19 :

http://www.nationalmssociety.org/news/n ... x?nid=2507

Now, how do we get a large part of the $4.5 million targeted for CCSVI research ???

"The first round of applications for 2010 that will be funded are expected to be announced this spring. "The tireless work of the thousands of MS activists who advocated across the country for these continued appropriations is a vivid example of the power that each of us have in working to create a world free of MS," said David Chatel, National MS Society Executive Vice President, Advocacy."


ozarkcanoer

If you have read the NMSS press release I referred to above you will notice the name David Chatel. You can find his email address here :

http://www.nationalmssociety.org/govern ... index.aspx

My letter to David Chatel, NMSS Executive Vice President for Government Affairs and Advocacy :

Dear Mr Chatel,

I am a person with MS so I was very happy to see the $4.5 million appropriation for MS research.

I hope that in light of the recent wonderful news about CCSVI, that the NMSS will actively fund research in this area with some of the $4.5 million. CCSVI promises to be a real breakthrough and the research is simple and well-defined. The researchers at BNAC, at Stanford and at Wayne State University are in need of funds to continue with their important research.

I am an advocate for MS and I believe that CCSVI holds greatest promise for MS sufferers.

Sincerely,

Jill Nolan

Ozark Jill

Thanks for this heads up. I think it could also be important to contact the Department of Veterans Affairs MS Centers of Excellence (one east, one west and it branches out from there)

Per the NMSS release

This program is funded through the Defense Department at the direction of Congress and was signed today by the President.

Other allies who helped petition Congress for this new MS research funding included the American Academy of Neurology, the Paralyzed Veterans of America, United Spinal, AMVETS, the Vietnam Veterans of America, and the Disabled American Veterans

Those so inclined might also want to contact those groups to thank them for their efforts and to ask that they consider funding CCSVI research.

Here's the link to the VA MS Centers of Excellence Directory I've contacted the VA East/West Centers of Excellence a couple times about CCSVI but so far no response. Time to do it again.

Now, if anyone knows exactly where these funds are appropriated in the Department of Defense that would be a great lead too. So far I haven't figured it out.

Thanks all....

Sharon

Sharon,

I hope that David Chapel would be aware of where in the Department of Defense the funds are appropriated. I wonder if Mr Chapel will reply to my email ? I send so many emails and get so few in return.

ozarkcanoer

Ozarkcanoer

I bet he does. It seems to me that the researchers at Buffalo, Detroit, Stanford, and anywhere else should have a "straight" shot to this potential pool of research funds via the Department of Defense (not just via the NMSS). They might already know how to go for it directly too....we hope.

It also seems like the VA MS Centers of Excellence could be well positioned to undertake some of the research--learn the protocol; initiate a study of clinical interventions, and monitor follow up.

Yeah, the no responses to emails is discouraging. We keep going though..

Sharon