CCSVI - get diagnosed ASAP
Posted: Thu Dec 31, 2009 2:53 pm
How can I get lined up to see Dr. Dake ? - I have been diagnosed with MS since 1993 and firmly believe in CCSVI and the treatments - I have dizziness and pain when I lay down on my left side, and then when I lay on my right side it goes away almost immediately - I get dizzy when the brakes get hit quickly, when I look up at the sky etc. I have seen real top notch MS neurologists and have been on all the MS Drugs, including trial drug (Zenapax) and am currently on Tysabri. My MS has improved immensely with Zenapax, but dizziness and fatigue go unchanged and ignored by MS doctor. I am tired of being dizzy and want to see a Vascular Neurologist or Vascular whatever to get tested ASAP. I understand more studies in Buffalo and elsewhere are going on, but I have done the study circuit a few times now and I know how long they take. Can anyone provide simple contact protocol to see Dr. Dake or anyone else in the country. I have contacted Dr. Haacke in Detroit and he is gearing up for a study/patients in January, so I will continue to pursue that if nothing else.
Angelo Papastamos, Salt Lake City, Utah 801-633-7712
b]1. What is CCSVI? [/b]
Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood cells and fluids into the delicate tissue of the brain and spine. Blood that stays in the brain too long creates “slowed perfusion”...a delay in deoxyginated blood leaving the head. This can cause a lack of oxygen (hypoxia) in the brain. Plasma and iron from blood deposited in the brain tissue are also very damaging.
[b]2.How is it related to MS? [/b]
Every MS patient tested so far has it. Over 500 MS patients in Italy have it. They were tested by Dr. Paolo Zamboni. Forty five MS patients in the US have it. They were tested by Dr. Michael Dake. Six clinically defined MS patients and 3 probable MS patients have it in Poland. They were tested by Dr. Marian Simka. 1700 patients and controls are being tested for it by Jacobs Neurological Institute at SUNY Buffalo.
None of the normal patients (controls) tested have it. None of the patients with other neurological diseases have it. Only people with MS.
Angelo Papastamos, Salt Lake City, Utah 801-633-7712
b]1. What is CCSVI? [/b]
Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood cells and fluids into the delicate tissue of the brain and spine. Blood that stays in the brain too long creates “slowed perfusion”...a delay in deoxyginated blood leaving the head. This can cause a lack of oxygen (hypoxia) in the brain. Plasma and iron from blood deposited in the brain tissue are also very damaging.
[b]2.How is it related to MS? [/b]
Every MS patient tested so far has it. Over 500 MS patients in Italy have it. They were tested by Dr. Paolo Zamboni. Forty five MS patients in the US have it. They were tested by Dr. Michael Dake. Six clinically defined MS patients and 3 probable MS patients have it in Poland. They were tested by Dr. Marian Simka. 1700 patients and controls are being tested for it by Jacobs Neurological Institute at SUNY Buffalo.
None of the normal patients (controls) tested have it. None of the patients with other neurological diseases have it. Only people with MS.