This Is MS Multiple Sclerosis Knowledge & Support Community

fiddler wrote:Hi Shiraz,
I understand what you are saying and wasn't implying that you should have gotten more information at the time (I probably wouldn't thought of it myself if I was in your shoes). But perhaps you can give me a contact name (by PM if you prefer) of someone in the department (or the name of the hospital, hopefully it has a website) so that we can follow up to try to find out how we can get some confirmed numbers.
...Ted

fiddler wrote:What I'd like to do is get the local or national media to do a follow-up on it. I understood that one or more of the people on this forum had contacts with the CTV people who did the original W5 story. It seems to me that CTV (or others) should want to add something to the story, and Barrie Vascular Imaging should be happy to provide the info for the free advertising it will give them.

I sent an e-mail to the BVI office manager as per their web site but it bounced back saying there was no such e-mail address. Perhaps I'll try by phone when I get the chance (tomorrow's a busy day).

jewelia wrote:Dear Shiraz,

That is great news! Thank you - I am so grateful that you have shared your experience in Barrie. Would you mind my asking where you received the doppler ultrasound? Perhaps my GP can write a requistion (in Toronto) to have it done at the clinic that you went to.
I am seeing my neurologist on Friday for a 6 month check up, but she is not open to the whole idea of Dr. Zamboni's discovery and probably will not order any ultrasound or MRV to be done.
Here's hoping that 2010 will bring more awareness to the medical community about CCSVI. Your GP sounds amazing! I anxiously await the outcome of your meeting with the vascular surgeon.

Julia

Shiraz wrote: Hi again Ted
I am in contact with Avis Favaro , the reporter from CTV. She is following my progress. Because I am also in TV, I offered my story details to her, and told her I would be willing to be the "Canadian woman" in her sequel. She is very up to date and well researched on what is happening with the CCSVI research.
S

fiddler wrote:

Shiraz wrote: Hi again Ted
I offered my story details to her, and told her I would be willing to be the "Canadian woman" in her sequel. She is very up to date and well researched on what is happening with the CCSVI research.
S

That sounds great, then, Sheri... so I assume that Avis would be sending someone in to get these facts? But is that follow-up story a ways down the road? I think that all TiMSers would be relieved to hear about confirmation that another place is getting CCSVI occurrence in MS patients at rates similar to those that Zamboni was getting.
...Ted

Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in MS is a new and potentially interesting area in MS research. Dr. Krolczyk will be traveling to Canada in early February to meet with Dr.'s Zamboni and Haacke and other experts to learn more about this new data. We will be holding an education program to discuss this research on February 18th at 6pm at the Byrd Center. Since this is an area of great interest, we expect a high attendance. We respectfully request you limit the number in your party to two. Please RSVP by February 3rd to reserve your seat. Please RSVP via email at rsoares@health.usf.edu or call 813-396-9656 813-396-9656 and leave your name and phone number. Thank you and we hope to see you there!

where did you get this from? Interesting. Do you know where the Byrd Center is?

dunkempt wrote:Zamboni and Simka to be in Canada

On another thread (CCSVI Education Program at USF in Tampa, FL 2/18/10), GinR quotes:

Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in MS is a new and potentially interesting area in MS research. Dr. Krolczyk will be traveling to Canada in early February to meet with Dr.'s Zamboni and Haacke and other experts to learn more about this new data. We will be holding an education program to discuss this research on February 18th at 6pm at the Byrd Center. Since this is an area of great interest, we expect a high attendance. We respectfully request you limit the number in your party to two. Please RSVP by February 3rd to reserve your seat. Please RSVP via email at rsoares@health.usf.edu or call 813-396-9656 813-396-9656 and leave your name and phone number. Thank you and we hope to see you there!

This suggests, um, that Dr. Zamboni will be in Canada in February for some kind of conference with Dr. Haacke. And we know already that Dr Simka is due to be in Vancouver in February to train people for the UBC study too.

Anybody know about these events, and whether they might be related, so that we can use it to perhaps lite a match under the powers that be?

Shiraz, do you know if Avis Favaro is on this already?

-d