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Posted: Fri Feb 05, 2010 4:09 am
by sunlounger
hi wonky
wow thanks for sharing this
great news
Posted: Fri Feb 05, 2010 4:13 am
by costumenastional
As i osted in another thread, there is no placebo effect or whatever. CCSVI and MS is a reality and the only question is:
i dont have ccsvi, so what is wrong with me cause obviously it s not MS.
Posted: Fri Feb 05, 2010 4:51 am
by gibbledygook
Bravo Wonky! I hope you continue feeling much better. I had some ups and downs after the stents were inserted but overall the changes have been significant. I hope you can get the British press involved. Perhaps in time for the Buffalo study publication?!!
Posted: Fri Feb 05, 2010 8:21 am
by tzootsi
Wonky, this is the kind of report we all love to hear! Your post, along with the BNAC newsletter, makes this a very good day for us all.
Posted: Fri Feb 05, 2010 8:23 am
by ozarkcanoer
"like I knew that you would !!!!".... That is a great CCSVI song !!! I'm so glad for you wonky !!!!
ozarkcanoer
Posted: Fri Feb 05, 2010 9:22 am
by pgm1
Hi Wonky 1
Nice,very nice improvements,this is great news.
Pam
Posted: Fri Feb 05, 2010 9:28 am
by Maestro
Great news Wonky 1,
placebo? i don't think so it's CCSVI
Another wonderful experience and a big hope for the rest of us.
Thank you for sharing.
V.
Posted: Fri Feb 05, 2010 9:42 am
by magoo
I am so happy for you! Enjoy each and every improvement!
Posted: Fri Feb 05, 2010 10:27 am
by Reytan
Posted: Fri Feb 05, 2010 12:22 pm
by wonky1
Thank you for all your kind words.
Yes this is a happy day! Love that newsletter!
Despite me mentioning improvements in cognition earlier, I forgot to mention the warm feet. They just feel normal already.
Posted: Fri Feb 05, 2010 12:52 pm
by ClaireParry
Woo Hoo Wonky - sounds amazing. I'm so happy for you!!!!!!!!!!!
Posted: Fri Feb 05, 2010 7:13 pm
by Brainteaser
XX
Posted: Fri Feb 05, 2010 8:06 pm
by Johnson
But, are ye goin' to change your nickname from wonky1 to winky? You must be over the moon. Wink.
Posted: Fri Feb 05, 2010 8:10 pm
by mshusband
The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice?
I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ...
I just wonder if it's worth it to start planning a trip abroad, or wait here in the US?
Posted: Sat Feb 06, 2010 12:03 pm
by tzootsi
mshusband wrote:The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice?
I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ...
I just wonder if it's worth it to start planning a trip abroad, or wait here in the US?
Neither - Start contacting Interventional Radiologists/Vascular Surgeons in your area. If you are persistent, you should find one who is interested in helping you.