QUESTION:CCSVI and CSF ???????
Posted: Thu Jan 28, 2010 4:40 am
From day number one (since i first heard about ccsvi that is) i am wondering: what about oligoclonal bands and proteins inside the CNS of the liberated patients?
CCSVI is supposed (and it makes sense to me) to be the cause of the BBB breach. After liberation shouldn't the spinal tap be giving normal or at least better results?
After all, isn't this the reason for one to be liberated?
As hard as i am trying to find case reports on that matter i couldn't find something solid...
Of course i dont have access to official medical data but i cant stop wondering if Zamboni has found such evidence, wouldn't it be the most solid proof? He has been liberating people (including his own wife) for the last three years!!!!! He should know by now. What do they talk about in the conferences???
I am no doctor but once one gets his veins unblocked having a spinal tap would be the better way to find out what s going on instead of waiting for symptoms to get better...
CSF doesn't always show pathological evidence, in fact in PPMS this is often the case. But still...
I find it very weird that this has not caught our attention so far. And please forgive me if it had and i missed it.
I am searching the best way i can. I am only a patient after all. Anyone out there wanna share his/her opinion-knowledge?
We are trying so hard to make this mainstream and widely accepted but some things could make it so much easier. The way i see it someone with no more pathological evidence in his CSF fluid is allow me to say cured. If bands are still present even after months or years then it didn't work. Sounds plain and foolish but this is what i believe.
CCSVI is supposed (and it makes sense to me) to be the cause of the BBB breach. After liberation shouldn't the spinal tap be giving normal or at least better results?
After all, isn't this the reason for one to be liberated?
As hard as i am trying to find case reports on that matter i couldn't find something solid...
Of course i dont have access to official medical data but i cant stop wondering if Zamboni has found such evidence, wouldn't it be the most solid proof? He has been liberating people (including his own wife) for the last three years!!!!! He should know by now. What do they talk about in the conferences???
I am no doctor but once one gets his veins unblocked having a spinal tap would be the better way to find out what s going on instead of waiting for symptoms to get better...
CSF doesn't always show pathological evidence, in fact in PPMS this is often the case. But still...
I find it very weird that this has not caught our attention so far. And please forgive me if it had and i missed it.
I am searching the best way i can. I am only a patient after all. Anyone out there wanna share his/her opinion-knowledge?
We are trying so hard to make this mainstream and widely accepted but some things could make it so much easier. The way i see it someone with no more pathological evidence in his CSF fluid is allow me to say cured. If bands are still present even after months or years then it didn't work. Sounds plain and foolish but this is what i believe.