Hello...
Posted: Fri Nov 04, 2011 11:46 am
Hi all,
I am very happy to see a forum for parents who have MS. I am 22 years old, and I have a daughter, Jayna, who will be 2 in December. She is my main concern in all of this, I fear that her life may not be as full as it could have been had I not had MS. I had her in 2009 and I was diagnosed this past July. My neurologist says that I have had it for about 10 or 11 years, its just going at full tilt now. I didn't know I had MS when I had my daughter, and due to this being such an unpredictable and difficult disease to live with and the increased risk of passing it on to children, we have decided to not have anymore. Since she is not even 2, she obviously doesn't understand why Mommy has trouble getting down the stairs somedays, and can't always pick her up and play with her. It can be a very difficult balance somedays as I am her primary caregiver most of the time as I do not work and my husband does. We're getting by fairly well as it stands, but some days I feel overwhelmed by the things I was able to do just 6 months ago that I can't do now. Does anyone else have these thoughts? Any suggestions as to how to raise her being concious to my condition, without her thinking Mommy can't be there for her like other Mommies?
I am very happy to see a forum for parents who have MS. I am 22 years old, and I have a daughter, Jayna, who will be 2 in December. She is my main concern in all of this, I fear that her life may not be as full as it could have been had I not had MS. I had her in 2009 and I was diagnosed this past July. My neurologist says that I have had it for about 10 or 11 years, its just going at full tilt now. I didn't know I had MS when I had my daughter, and due to this being such an unpredictable and difficult disease to live with and the increased risk of passing it on to children, we have decided to not have anymore. Since she is not even 2, she obviously doesn't understand why Mommy has trouble getting down the stairs somedays, and can't always pick her up and play with her. It can be a very difficult balance somedays as I am her primary caregiver most of the time as I do not work and my husband does. We're getting by fairly well as it stands, but some days I feel overwhelmed by the things I was able to do just 6 months ago that I can't do now. Does anyone else have these thoughts? Any suggestions as to how to raise her being concious to my condition, without her thinking Mommy can't be there for her like other Mommies?