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Just took myself off Avonex

Posted: Mon Jul 07, 2014 4:40 pm
by annabeth
I found the side effects were getting worse and worse after 8 weeks. I also had signs of hypothyroid: Temp 96.2, feeling of heat, but skin cold and dry to touch, enlarged tongue, weight gain, hair loss. And that awful achy feeling - 24/7, 7 days a week.

I tried to call the people at Avonex, but could not get through. I tried 7 times to find what to do for all this. NSAIDS stopped helping and I was taking so much, it was bound to damage my stomach.

So, I took myself off and now have 4 months of Avonex in my fridge.

Has anyone else had thyroid problems from Avonex? I read it is one of the effects.
Thank you!

Re: Just took myself off Avonex

Posted: Tue Sep 30, 2014 9:49 am
by Avonexveteran
annabeth wrote:I found the side effects were getting worse and worse after 8 weeks. I also had signs of hypothyroid: Temp 96.2, feeling of heat, but skin cold and dry to touch, enlarged tongue, weight gain, hair loss. And that awful achy feeling - 24/7, 7 days a week.

I tried to call the people at Avonex, but could not get through. I tried 7 times to find what to do for all this. NSAIDS stopped helping and I was taking so much, it was bound to damage my stomach.

So, I took myself off and now have 4 months of Avonex in my fridge.

Has anyone else had thyroid problems from Avonex? I read it is one of the effects.
Thank you!
Hi annabeth,
Yes, I had a touch of hypothyroid while on Avonex. It has been corrected with medication (Synthroid).