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who has experienced hair loss with Avonex?

Posted: Mon Jul 17, 2006 8:55 am
by sh8un
Hi everyone
I complained about my hair loss on "daily life" already but I just wanted to know who else out there on Avonex has lost thier hair??? Did you have to switch drugs? Did it stop after a while? How much of your hair did you lose?

Posted: Mon Jul 17, 2006 5:54 pm
by Shayk
Hi sh8un

I've been on Avonex about 2 1/2 years and I don't think it's contributed to any hair loss in my case, so I can't help with the exact questions you asked.

But, if I were you I'd be certain your gp checks for other medical conditions that might be causing it. Hypothyroidism is one which tends to be underdiagnosed, particularly in women.

Good luck trying to find out what's causing it.

Sharon

Posted: Mon Jul 17, 2006 7:21 pm
by sh8un
Hi Shayk,
Thank you for the post. I already went to the GP and he thinks it mostly likely is d/t stress because my tests were normal. He also said that it could be d/t MS but he said that is really rare. I just wante to be sure that there aren't others who have experienced it. I am sure people are now sick me and and my hair loss. I wanted to make sure I posted under the right section this time. With my last post I was just venting.
NN

Posted: Tue Jul 18, 2006 6:46 pm
by sh8un
Ok...so I just saw the earlier postings on hair loss. OOOps. I guess I missed that the first time. Sorry guys

Hair loss arrrgggg

Posted: Sat Feb 07, 2009 10:49 am
by Weena
I too have had a great amount of hair loss. I am on Avonex but can remember that this started after my flare before starting on A. When my scalp gets prickly I know I'm going to lose a bunch which I don't need because my hair is already thin enough on top.
My neuro and GP don't think it's drug related but as another poster said, possibly stress and the drug treatments aside from A. I think the steroid treatments, I had the taper dosage, then the 3 day infusion and another round of taper before I started on Avonex.

I am using a shampoo for fine/limp hair to volumize it somewhat. On days I don't go out I let it dry naturally so I don't aggitate my scalp further.

Good luck