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Does Aubagio help reduce symptoms?? Or mainly relapses??

Posted: Wed Jul 23, 2014 8:04 pm
by chowder1
Hi
Dragging my feet on getting started with Aubagio. It's mental.......I don't want to be sick again.

Does Aubagio help reduce symptoms?? Such as fatigue, spasticity?? Or is the main hope for it to prevent relapses??

Tysabri helped reduce symptoms. Does Aubagio help like that, I guess is what I am asking??

I know this is like a chemo drug. I've had my share of chemo and it's the pits. I REALLY, REALLY don't want to be sick again. If it mainly helps with relapses, I may just take my chances and continue to be DMD free.

And thanks for the bit of education, KRONK. I just assumed that is what 'failed' meant. What does it mean??

Thanks,
Diane

Re: Does Aubagio help reduce symptoms?? Or mainly relapses?

Posted: Mon May 18, 2015 9:23 pm
by Anunymouse
It doesn't touch old damage and doesn't touch progression. But at least it's expensive.

Re: Does Aubagio help reduce symptoms?? Or mainly relapses?

Posted: Sat Jul 04, 2015 10:58 am
by Cynde
I've been taking it for a month now, and I only feel worse. I've had a UTI in that time, so maybe it's not the Aubagio. I certainly don't feel better. No side effects, either, but maybe I haven't been on it long enough to get any results - positive or negative. %2 Years old, SPMS

Re: Does Aubagio help reduce symptoms?? Or mainly relapses?

Posted: Sat Jul 04, 2015 5:42 pm
by ElliotB
"Tysabri helped reduce symptoms"

Where did you read this? It is my understanding that none of the MS drugs do this. They appear to all be designed to reduce future flareups and possibly their severity, but should have no effect on any symptoms you may currently have.

From the TYSABRI website:

There are 3 ways TYSABRI can impact relapsing MS:
Reduces the number of flare-ups per year
Slows physical disability progression
Impacts the number of new brain lesions and existing lesion activity

You can get all their info here:

http://www.tysabri.com/about/choosing-tysabri

Re: Does Aubagio help reduce symptoms?? Or mainly relapses?

Posted: Sun Jul 05, 2015 8:32 am
by Adro
I've been on Aubagio for only a short time. And it is possible that with a few of the side effects I've had in this short time that I won't be on it very much longer. Have always been super-sensitive to medications, so doesn't surprise me! :D LOL

However, that said, I wanted to let you know of a few things I've been aware of WITH this particular medication during the time I've been on it.

I concurrently have arthritis with my MS (massive amounts of steroids through the years for exacerbation treatments and also several MVAs have certainly contributed to this fate). Something this medication does for arthritic patients is ease arthritic symptoms (the key ingredient is derived from a medication used to treat Arthritis). This relief I've had hasn't happened in ALL areas in which I have arthritis (as some are wayyyyyy worse than others), but it has helped in a few and maintained a stable range of motion for these areas. For me, that's better than having to BE on steroids to help with arthritis (which actually can end up hurting your bones worse while attempting to treat 8O !

I have tons of pain with my MS anyway; but I also have Fibro, Scoliosis, Spondylosis, TMJ, Migraines, Arthritis, Carpel Tunnel, and with the MS I have severe spasticity in legs, arms, and neck; all of these things play off of each other. I have a few mental disorders, too (Bi-polar, GAD, and PTSD). Taking that into consideration, STRESS :twisted: is the catalyst for setting off any number of symptoms I might experience (and it usually is for most people with MS -- that and heat), from cognitive dysfunction to lack of coordination to pain. So, alleviating stressors and managing any that arise is the number one goal for me.... not the meds.... not the side effects.... not the plethora of ailments I have.... and not worrying about potential outcomes (As you might imagine, I have to take things as they come and just deal with it). B-)

It's important to be acutely aware of anything that might happen, to be hopeful for remittance, to stay informed and observant. :idea: And when newly diagnosed with any major disease, I think we all delve into finding out as much as we can about it and its' treatments. But if one consumes themselves with these things, then the here and now of life is swept away. It is absolutely vital to our thriving in life to be able to hold on to today -- to embrace the color, the sounds, the beauty of what is offered NOW. @};- :YMPARTY:

ALL OF THAT SAID, if you're not currently having a relapse (and you aren't having any severe side effects to the medication), my very best suggestion would be to ENJOY EVERY MINUTE OF THIS DAY THAT YOU CAN. WE ARE NOT PROMISED TOMORROW. AND ANYONE WITH MS WILL TELL YOU HOW UNPREDICTABLE IT CAN BE (as I am sure you are very aware)...... TAKE NOTHING FOR GRANTED AND BE GRATEFUL FOR TODAY.

Much Love :peace:,
Adro