Hello, new here and wondering about my symptoms
Posted: Mon Jul 23, 2012 3:38 am
Hello Everyone,
I have been having symptoms on and off for a few years: twitching in my right hand- thumb and forefinger, now in my left hand also. Blurred vision, muscle & nerve pains, slurred speech, tingling and feeling like electric currents are going through me especially in the pelvis area, urgency urinating, pain and burning urinating, chronic yeast infections, not getting urine out when it's in there- this was seen on a urine flow test done, when i was catheterized, a lot more urine came out and the tester said he had never seen that- I felt nothing and felt I had emptied my bladder completely just before the catheter part of the test, palpitations, dizziness, muscle fatigue- I was once paralyzed with spasms in my calfs on a hot day, but it seemed it was due to low potassium, as I ate a banana and soda and I was eventually able to move. In addition to blurry vision, astigmatism I was also diagnosed with ocular rosacea and dry eye at the time I started going in and out of early menopause. I eventually went on hrt and this seemed to help a lot of my symptoms. I originally thought a lot this was due to chronic pain/injuries/fybromyalgia and due to early menopause, but recently I became very ill and it turned out I am type 1 diabetic and I was in dka at the time of diagnosis.
When I entered the hospital, I could see, without reading glasses or any glasses- i had been using reading glasses for two years or so prior to the events leading to dka, which all started with a very severe vaginal yeast infection which wouldn't resolve. Then all of a sudden I seemed not to need any glasses although a week before I couldn't see distance signs.
As I said, when i entered the hospital, I could focus, I was however seeing bursts of flashing lights as well as little balls of light floating around the edges of my vision. When I was given insulin therapy my sugars went crazy and were all over the place and eventually started to normalize- my ability to focus close and far was gone and my vision was totally blurry. It has improved but it is not back to normal yet I need glasses for close and far focus although in bright daylight I can see distance well now mostly. There appears to be no damaged to my retina or eyes, so I assume this is from sugar/fluid still in my lenses. I have read that insulin therapy can cause blurry vision so I'm wondering if that may be the case. I will be seeing a retinal specialist soon.
I'm just wondering now what to do and if you think this could be ms? Obviously, I hope not but I have to wonder now with everything else that has happened to me recently.
About 3 years ago I went to a neurologist who ruled out als and something else and said he thought my twitching was focal distonia, he ordered a neck mri to see if nerves compression could be causing this due to my past injuries, but I didn't do it. An mri of my brain showed a white spot which he said was due to chronic migraines. I think at that time my headaches were starting to come back again- they were mostly in remission for a long period before that. I was going through too many things in my life at that time and I didn't follow up with more tests. I was then re-injured in a car accident where my whole spine was strained again-this time I was a pedestrian and someone struck my shopping cart which hit me. This past spring/summer I had bursitis in my shoulder and had more pt for that as well as a steroid shot which allowed me to lift my arm again, the pain was terrible for a few weeks and increased exercise especially this past spring has helped. I'm not allowed to do more than walk currently due to dvt in my leg, I have symptoms in both legs but nothing has shown up on testing in one. I also have symptoms in my arms of a lot more tingling/pressure and blood flowing around, it is such an odd feeling. these all seem to get worse with exercise and my inr nurse and vascular doc say no exercise. coincidentally or not, I did some exercise for my arms only soon after my second hospital release and had pain in my left arm and swelling, it turned out to be another blood clot, but fortunately a superficial one. i feel like a freak lately.
When I was diagnosed type 1 diabetic I was low in vitamin D- I have been supplementing for a few years, but I'm on warfarin now and I can't take everything. I'm currently on insulin, potassium, fish oil, calcium, vitamin d, biotin, b12, lutein, chondroitin, hyaluronic acid, probiotic and a low carb diet high in fat and veggies/protein. I had numerous blood testing done when hospitalized but I'm not sure what it all was. the most recent test seemed to be normal except that my cholesterol levels were high, not really high though and my ratio hdl to ldl was very good at 3 I think- my endo wanted me to take statins but my other doc said not to do this as it causes muscle/nerve damage and he recommended slow niacin instead.
In spite of all of this happening to me, I still look well most of the time and people keep telling me how great I look, although I have to say I feel like a wreck inside a lot of the time and I'm still having a lot of fatigue which was one of my major symptoms in the past and especially before the diabetes diagnosis.
What do you think?
I have been having symptoms on and off for a few years: twitching in my right hand- thumb and forefinger, now in my left hand also. Blurred vision, muscle & nerve pains, slurred speech, tingling and feeling like electric currents are going through me especially in the pelvis area, urgency urinating, pain and burning urinating, chronic yeast infections, not getting urine out when it's in there- this was seen on a urine flow test done, when i was catheterized, a lot more urine came out and the tester said he had never seen that- I felt nothing and felt I had emptied my bladder completely just before the catheter part of the test, palpitations, dizziness, muscle fatigue- I was once paralyzed with spasms in my calfs on a hot day, but it seemed it was due to low potassium, as I ate a banana and soda and I was eventually able to move. In addition to blurry vision, astigmatism I was also diagnosed with ocular rosacea and dry eye at the time I started going in and out of early menopause. I eventually went on hrt and this seemed to help a lot of my symptoms. I originally thought a lot this was due to chronic pain/injuries/fybromyalgia and due to early menopause, but recently I became very ill and it turned out I am type 1 diabetic and I was in dka at the time of diagnosis.
When I entered the hospital, I could see, without reading glasses or any glasses- i had been using reading glasses for two years or so prior to the events leading to dka, which all started with a very severe vaginal yeast infection which wouldn't resolve. Then all of a sudden I seemed not to need any glasses although a week before I couldn't see distance signs.
As I said, when i entered the hospital, I could focus, I was however seeing bursts of flashing lights as well as little balls of light floating around the edges of my vision. When I was given insulin therapy my sugars went crazy and were all over the place and eventually started to normalize- my ability to focus close and far was gone and my vision was totally blurry. It has improved but it is not back to normal yet I need glasses for close and far focus although in bright daylight I can see distance well now mostly. There appears to be no damaged to my retina or eyes, so I assume this is from sugar/fluid still in my lenses. I have read that insulin therapy can cause blurry vision so I'm wondering if that may be the case. I will be seeing a retinal specialist soon.
I'm just wondering now what to do and if you think this could be ms? Obviously, I hope not but I have to wonder now with everything else that has happened to me recently.
About 3 years ago I went to a neurologist who ruled out als and something else and said he thought my twitching was focal distonia, he ordered a neck mri to see if nerves compression could be causing this due to my past injuries, but I didn't do it. An mri of my brain showed a white spot which he said was due to chronic migraines. I think at that time my headaches were starting to come back again- they were mostly in remission for a long period before that. I was going through too many things in my life at that time and I didn't follow up with more tests. I was then re-injured in a car accident where my whole spine was strained again-this time I was a pedestrian and someone struck my shopping cart which hit me. This past spring/summer I had bursitis in my shoulder and had more pt for that as well as a steroid shot which allowed me to lift my arm again, the pain was terrible for a few weeks and increased exercise especially this past spring has helped. I'm not allowed to do more than walk currently due to dvt in my leg, I have symptoms in both legs but nothing has shown up on testing in one. I also have symptoms in my arms of a lot more tingling/pressure and blood flowing around, it is such an odd feeling. these all seem to get worse with exercise and my inr nurse and vascular doc say no exercise. coincidentally or not, I did some exercise for my arms only soon after my second hospital release and had pain in my left arm and swelling, it turned out to be another blood clot, but fortunately a superficial one. i feel like a freak lately.
When I was diagnosed type 1 diabetic I was low in vitamin D- I have been supplementing for a few years, but I'm on warfarin now and I can't take everything. I'm currently on insulin, potassium, fish oil, calcium, vitamin d, biotin, b12, lutein, chondroitin, hyaluronic acid, probiotic and a low carb diet high in fat and veggies/protein. I had numerous blood testing done when hospitalized but I'm not sure what it all was. the most recent test seemed to be normal except that my cholesterol levels were high, not really high though and my ratio hdl to ldl was very good at 3 I think- my endo wanted me to take statins but my other doc said not to do this as it causes muscle/nerve damage and he recommended slow niacin instead.
In spite of all of this happening to me, I still look well most of the time and people keep telling me how great I look, although I have to say I feel like a wreck inside a lot of the time and I'm still having a lot of fatigue which was one of my major symptoms in the past and especially before the diabetes diagnosis.
What do you think?
important: not any old vit E. again, details in the 'signature' links (the regimen one would probably be best place to start).
You are still strong and will go on with you life fine, just think positively and never give up until your last breath. Just go and enjoy life for now but remeber to be careful with what you eat from now on.