Please Help
Posted: Wed Jun 19, 2013 12:01 am
Hey, Will try be brief. but please help me! im scared! thanks in advance!
had psychiatric problems for 2 years regarding depression, and anxiety and the 2 triggering one another, was cycled through anti-depressants for 2 years, being on easily 10-15 different psychiatric meds, usually about 5 at any given time, i was over medicated, and quit all meds in january against the advise of 3 psychiatrists..
I was miss-diagnosed as bi-polar in the mental health unit...
stopped all psychiatric meds in early January of 2013 and since then have had no issues really with depression
or anxiety, so this is NOT a psychiatric post, I'm completely mentally stable and have been for 6 months since i stopped the psychiatric meds..
~TO THE POINT~
turned 25 in early April of this year
and coincidentally distinguishable symptoms started around same time - March 28th was first noticed
what started off as numbness, tingling and loss of feeling in 4 toes on left foot while working a 50 hour week, I thought maybe i just stood funny that day working house renovation - drywalling, painting, demo, ect.
took 4 days off naturally as I had a long holiday weekend on march 28th this year, things seemed better went back to work a couple of days, and boom by 2nd day couldnt work again as it felt real weird standing on my left foot, and the shooting nerve pains were unbearable.
approx 1 week later, similar pains noted in right foot, now whole feet feeling funny, balls of feet losing feeling, toes tingling, feet feel like on fire on and off for a couple of weeks, in and out of hospital, seeing different doctors including GP.
toward the end of these couple of weeks the pain spread up into my legs, and my leg muscles felt very tight, sore, weird shooting nerve pains down sides of body ect. nerve pains occasionally below kneecaps and elbow caps... it started in my right leg, then moved to left leg a few days later..
the pain leaving me hardly able to walk still having the feet nerve pains at this point, this went on for the first 5 weeks. the pain was below waist 95% of time...
went to see GP on may 2nd, she prescribed me oxycodone 5mg for pain, and zopiclone for sleep
this same night i was up till 3am then tried getting to sleep, i had only had 3 hours sleep each night the 3 previous nights before may 2nd evening, this night, i went to bed at 3.00am
at 3.18am i started shaking uncontrollably for 6 minutes straight, it started above my ankles in each leg, and slowly moved up my entire body upto the top of my head within 15-25 seconds. I was concious the whole time, was SCARY, had blurred vision, felt dizzy but remained concious. had 2 more of these spread out 10 mins apart after the first one, but less intense each time - went to hospital they did nothing,
the whole right side seemed to be more effected then left after this..
but the complete tightness in my legs had disappeared with the shaking, my brain hurt a bit, and my nerves in my feet especially right side felt RAW like completley raw just messed up.
took me a couple of days to re-learn walking after this as my right side of my body lagged behind my left, or the opposite, hard to remember... since then this shaking has only happened once since, and it was REALLY minor
GP recommended I see an acupuncturist, went 5 sessions over 3 weeks, as after the first session the pain spread into my back.. stopped seeing the acupuncturist, as I often can never sleep at night due to pain and fatigue wondering what is going on with me, missed one morning appointment and thought this isn't for me, i was getting no relief..
its now june 19th, nearly 3 months since first symptom.. the feet arent as problematic anymore..
my legs are constantly sore.. my right or left leg clicks when i walk up stairs, cant figure out which one..
my back is toast...
the past 2 weeks i now get similar nerve pains in my fingers similar to the ones i had in my toes, started with right hand,
moved to left...
arms and shoulders often feel sore and weak
pain can be anywhere and every where..
migraines, and headaches, started just over 2 weeks ago, migraines i've had 2 real serious ones, and several mild-moderate headaches...
no energy - i work 3 hours going easy at my own pace on my property trying to do things like cut grass. Im dead the entire next day - drained cant do a thing.
the last 2-3 weeks, my bladder capacity has diminished, and if i do get more then 3 hours sleep at a time which never happens anymore. I wet the bed..
i havent been experiencing the "shooting" nerve pain nearly as frequent the past few weeks, but the pain overall is still really unmanageable even with oxycodone 5mg x2 cant sleep due to pain
this whole time i've not been getting adequate pain meds, my GP doesnt believe in oxycodone and its the only thing thats been working for pain SLIGHTLY she prescribed once - 20 pills, and after that said No More and i had hospital emerge doc pprescribe me emergency script on monday of this week of 10 percs same strength 5mg oxycodone..
ive seen an neurologist twice
he did nerve and muscle conduction tests, all results were normal
he did evoked potentials test - all results were normal.. he said there is Nothing to worry about and im fine! hahahaha what a JOKE!
waiting on an MRI for july 17th it seems years away even though its just a month away..
I experience clumsiness, lack of coordination sometimes
2 weeks ago was cutting grass at my house for 15-20 mins when i got dizzy and lost balance and fell over
I feel weak in arms and legs and back
Memory is awful, thoughts scattered sometimes
Thinking can often hurt
Have had vision problems here and there - had eyes tested 10 months ago had 20/20 vision
the thing is - i have all the symptoms of MS
after extensive blood work which all has come back great!, not diabetic, not lime disease, not vitamin deficient, ect...
my GP says i have all the symptoms of MS
except she says I shouldnt be in pain around the clock?
my pain floats, i never get a break from it, and its bringing back anxiety and depression problems (from being in pain 24 hours a day and not knowing why, no other reason)
june 18th, (yesterday) my GP prescribed me cymbalta for the nerve pain. 30 mg first week
2nd week bumps up to 60 mg
i have been refusing to take anti-depressants for pain because of the horrible experience i had for 2 years.... 4 months prior to all of this... but now i have little choice
as i cant cope with the pain, i opted to take the cymbalta, and tramacet for breakthrough pain
i have break through pains as well sorry for not mentioning
break through pains can last from 3 hours to a couple of days.. these are periods of time wear pain is more severe than usual
why am in pain? is this normal in early stages of MS? do others have pain problems?
im 25 years old and feel 85, use to be able to work 10 hour days no problem, skateboarded competitively for 10 years, always been healthy and very active...
now i cant even golf or do anything i like, or work or hold down a job...
walking is still painful, everything is painful
laying down is painful
any help would be greatly appreciated
i'm truly scared as i dont know what is going on with me
as i said i've read about early symptoms of MS on WebMD
and i have EVERY single one of them
any help would be greatly appreciated thanks in advance!!
man im scared
please help me..
any other questions feel free to ask its now 4am and i only slept 3 hours tonight so im not sure if i left anything out
oh yeah that's it pain can seem worse at night, symptoms can feel worse at night, but i think its because i know of how this is affecting my sleep so its discouraging me, not sure. and some times i have to urinate like every 20-45 minutes
THANKS IN ADVANCE
had psychiatric problems for 2 years regarding depression, and anxiety and the 2 triggering one another, was cycled through anti-depressants for 2 years, being on easily 10-15 different psychiatric meds, usually about 5 at any given time, i was over medicated, and quit all meds in january against the advise of 3 psychiatrists..
I was miss-diagnosed as bi-polar in the mental health unit...
stopped all psychiatric meds in early January of 2013 and since then have had no issues really with depression
or anxiety, so this is NOT a psychiatric post, I'm completely mentally stable and have been for 6 months since i stopped the psychiatric meds..
~TO THE POINT~
turned 25 in early April of this year
and coincidentally distinguishable symptoms started around same time - March 28th was first noticed
what started off as numbness, tingling and loss of feeling in 4 toes on left foot while working a 50 hour week, I thought maybe i just stood funny that day working house renovation - drywalling, painting, demo, ect.
took 4 days off naturally as I had a long holiday weekend on march 28th this year, things seemed better went back to work a couple of days, and boom by 2nd day couldnt work again as it felt real weird standing on my left foot, and the shooting nerve pains were unbearable.
approx 1 week later, similar pains noted in right foot, now whole feet feeling funny, balls of feet losing feeling, toes tingling, feet feel like on fire on and off for a couple of weeks, in and out of hospital, seeing different doctors including GP.
toward the end of these couple of weeks the pain spread up into my legs, and my leg muscles felt very tight, sore, weird shooting nerve pains down sides of body ect. nerve pains occasionally below kneecaps and elbow caps... it started in my right leg, then moved to left leg a few days later..
the pain leaving me hardly able to walk still having the feet nerve pains at this point, this went on for the first 5 weeks. the pain was below waist 95% of time...
went to see GP on may 2nd, she prescribed me oxycodone 5mg for pain, and zopiclone for sleep
this same night i was up till 3am then tried getting to sleep, i had only had 3 hours sleep each night the 3 previous nights before may 2nd evening, this night, i went to bed at 3.00am
at 3.18am i started shaking uncontrollably for 6 minutes straight, it started above my ankles in each leg, and slowly moved up my entire body upto the top of my head within 15-25 seconds. I was concious the whole time, was SCARY, had blurred vision, felt dizzy but remained concious. had 2 more of these spread out 10 mins apart after the first one, but less intense each time - went to hospital they did nothing,
the whole right side seemed to be more effected then left after this..
but the complete tightness in my legs had disappeared with the shaking, my brain hurt a bit, and my nerves in my feet especially right side felt RAW like completley raw just messed up.
took me a couple of days to re-learn walking after this as my right side of my body lagged behind my left, or the opposite, hard to remember... since then this shaking has only happened once since, and it was REALLY minor
GP recommended I see an acupuncturist, went 5 sessions over 3 weeks, as after the first session the pain spread into my back.. stopped seeing the acupuncturist, as I often can never sleep at night due to pain and fatigue wondering what is going on with me, missed one morning appointment and thought this isn't for me, i was getting no relief..
its now june 19th, nearly 3 months since first symptom.. the feet arent as problematic anymore..
my legs are constantly sore.. my right or left leg clicks when i walk up stairs, cant figure out which one..
my back is toast...
the past 2 weeks i now get similar nerve pains in my fingers similar to the ones i had in my toes, started with right hand,
moved to left...
arms and shoulders often feel sore and weak
pain can be anywhere and every where..
migraines, and headaches, started just over 2 weeks ago, migraines i've had 2 real serious ones, and several mild-moderate headaches...
no energy - i work 3 hours going easy at my own pace on my property trying to do things like cut grass. Im dead the entire next day - drained cant do a thing.
the last 2-3 weeks, my bladder capacity has diminished, and if i do get more then 3 hours sleep at a time which never happens anymore. I wet the bed..
i havent been experiencing the "shooting" nerve pain nearly as frequent the past few weeks, but the pain overall is still really unmanageable even with oxycodone 5mg x2 cant sleep due to pain
this whole time i've not been getting adequate pain meds, my GP doesnt believe in oxycodone and its the only thing thats been working for pain SLIGHTLY she prescribed once - 20 pills, and after that said No More and i had hospital emerge doc pprescribe me emergency script on monday of this week of 10 percs same strength 5mg oxycodone..
ive seen an neurologist twice
he did nerve and muscle conduction tests, all results were normal
he did evoked potentials test - all results were normal.. he said there is Nothing to worry about and im fine! hahahaha what a JOKE!
waiting on an MRI for july 17th it seems years away even though its just a month away..
I experience clumsiness, lack of coordination sometimes
2 weeks ago was cutting grass at my house for 15-20 mins when i got dizzy and lost balance and fell over
I feel weak in arms and legs and back
Memory is awful, thoughts scattered sometimes
Thinking can often hurt
Have had vision problems here and there - had eyes tested 10 months ago had 20/20 vision
the thing is - i have all the symptoms of MS
after extensive blood work which all has come back great!, not diabetic, not lime disease, not vitamin deficient, ect...
my GP says i have all the symptoms of MS
except she says I shouldnt be in pain around the clock?
my pain floats, i never get a break from it, and its bringing back anxiety and depression problems (from being in pain 24 hours a day and not knowing why, no other reason)
june 18th, (yesterday) my GP prescribed me cymbalta for the nerve pain. 30 mg first week
2nd week bumps up to 60 mg
i have been refusing to take anti-depressants for pain because of the horrible experience i had for 2 years.... 4 months prior to all of this... but now i have little choice
as i cant cope with the pain, i opted to take the cymbalta, and tramacet for breakthrough pain
i have break through pains as well sorry for not mentioning
break through pains can last from 3 hours to a couple of days.. these are periods of time wear pain is more severe than usual
why am in pain? is this normal in early stages of MS? do others have pain problems?
im 25 years old and feel 85, use to be able to work 10 hour days no problem, skateboarded competitively for 10 years, always been healthy and very active...
now i cant even golf or do anything i like, or work or hold down a job...
walking is still painful, everything is painful
laying down is painful
any help would be greatly appreciated
i'm truly scared as i dont know what is going on with me
as i said i've read about early symptoms of MS on WebMD
and i have EVERY single one of them
any help would be greatly appreciated thanks in advance!!
man im scared
please help me..
any other questions feel free to ask its now 4am and i only slept 3 hours tonight so im not sure if i left anything out
oh yeah that's it pain can seem worse at night, symptoms can feel worse at night, but i think its because i know of how this is affecting my sleep so its discouraging me, not sure. and some times i have to urinate like every 20-45 minutes
THANKS IN ADVANCE