My story so far
Posted: Tue Aug 06, 2013 10:14 pm
Thank you for taking the time to read my post. I am undiagnosed, and have been told by one neurologist that I absolutely can't have MS because I have no lesions (well, I have one but it's on the wrong part of my brain for MS apparently). I've also been told by another that I may have it but it's a wait and see thing.
I got my first symptoms about three months ago. Really strong pins and needles for hours on end but it seemed to be limited to one side. I'd had the flu the month before and a chest infection so I assumed it was the antibiotics I'd taken. I also had a massive migraine which was odd for me because I am not a migraine person. About a month later, I got it everywhere, as well as burning and numbness. Numbness doesn't seem the right word because I could feel the limb but it was like there was a layer of rubber on my skin. The second bout was much worse and I was in hospital for a couple of nights because the sensations were affecting my walking and I needed some relief to sleep.
An MRI came back "clean" for MS which I was extremely happy with. The problem is, the symptoms are still there and I have new ones. I have a weird sensation in the middle of my back which I'd had for some time but wrote-off as a temporary annoying thing but it's there many times a day. It's a strange buzzy, kinda tickly feeling that starts in the centre and then spreads outwards. It happens most times when I step into a hot shower. And the pins and needles and burning is there in some capacity every day.
I don't know what I want really. Obviously I want no symptoms and to not be diagnosed with anything. But I want answers and I want to know I'm not going crazy.
I did have Bell's Palsy about ten years ago (in my 20s) and I wonder if I just get weird neuro symptoms when I'm ill or stressed?
Thank you again.
I got my first symptoms about three months ago. Really strong pins and needles for hours on end but it seemed to be limited to one side. I'd had the flu the month before and a chest infection so I assumed it was the antibiotics I'd taken. I also had a massive migraine which was odd for me because I am not a migraine person. About a month later, I got it everywhere, as well as burning and numbness. Numbness doesn't seem the right word because I could feel the limb but it was like there was a layer of rubber on my skin. The second bout was much worse and I was in hospital for a couple of nights because the sensations were affecting my walking and I needed some relief to sleep.
An MRI came back "clean" for MS which I was extremely happy with. The problem is, the symptoms are still there and I have new ones. I have a weird sensation in the middle of my back which I'd had for some time but wrote-off as a temporary annoying thing but it's there many times a day. It's a strange buzzy, kinda tickly feeling that starts in the centre and then spreads outwards. It happens most times when I step into a hot shower. And the pins and needles and burning is there in some capacity every day.
I don't know what I want really. Obviously I want no symptoms and to not be diagnosed with anything. But I want answers and I want to know I'm not going crazy.
I did have Bell's Palsy about ten years ago (in my 20s) and I wonder if I just get weird neuro symptoms when I'm ill or stressed?
Thank you again.