Telling my story... advice please!!
Posted: Wed Oct 02, 2013 2:37 pm
My name is Charity and I am 38 years old. I have recently been told that my MRI results are pointing in the direction of MS. I am scheduled for a 2nd MRI in 6 months from now and am also going in for some sort of nerve test... as you can see, I am very new to all of this and don't even know what this nerve test is all about.
I have been experiencing symptoms for a very long time, but until this MRI result I had no idea what I was dealing with. Researching for a week straight I have realized that I had symptoms as long as 6 years ago and didn't think anything of it. I just chalked it up to bizarre things my body was occassionaly doing. Following are some of my symptoms...
Intense dizziness to the point of grabbing hold of something to balance myself so I don't fall; horrible muscle cramping in both of my feet and glutes (I have always called them "Charlie Horse Cramps"); same cramping in my right hand; foggy/cloudy thinking; bladder problems (waking in middle of night, etc); sexual disfunction; and lastly a huge decrease in energy... I am so tired it's not even funny.
I finally got the ball rolling with doctors because of the dizziness problem. It has gotten much worse in the past year and it's been very difficult to get any doctors to really help me. I honestly started believing I would just live with this problem for the rest of my life. My biggest problem now is this... the neurologist I saw did not even want to discuss other symptoms other than the MRI findings and said if he sent me to an MS Clinic, they would turn me away and not help me because I'm not showing enough clear evidence. What exactly justifies "clear evidence"? What more do I need to live with and experience in order to get attention from an MS clinic? I am just frustrated and looking to hear advice from your experiences. Thank you so much for listening!!
I have been experiencing symptoms for a very long time, but until this MRI result I had no idea what I was dealing with. Researching for a week straight I have realized that I had symptoms as long as 6 years ago and didn't think anything of it. I just chalked it up to bizarre things my body was occassionaly doing. Following are some of my symptoms...
Intense dizziness to the point of grabbing hold of something to balance myself so I don't fall; horrible muscle cramping in both of my feet and glutes (I have always called them "Charlie Horse Cramps"); same cramping in my right hand; foggy/cloudy thinking; bladder problems (waking in middle of night, etc); sexual disfunction; and lastly a huge decrease in energy... I am so tired it's not even funny.
I finally got the ball rolling with doctors because of the dizziness problem. It has gotten much worse in the past year and it's been very difficult to get any doctors to really help me. I honestly started believing I would just live with this problem for the rest of my life. My biggest problem now is this... the neurologist I saw did not even want to discuss other symptoms other than the MRI findings and said if he sent me to an MS Clinic, they would turn me away and not help me because I'm not showing enough clear evidence. What exactly justifies "clear evidence"? What more do I need to live with and experience in order to get attention from an MS clinic? I am just frustrated and looking to hear advice from your experiences. Thank you so much for listening!!