could be, maybe, possibly MS but not confirmed
Posted: Sun Dec 29, 2013 1:02 pm
So I'm very new here and very appreciative to any advise that anyone would like to share. I'm a 31 yr wf, single mother of 3 boys. I began having headaches oct 9th of this year. I continued working with this headache throughout the week. The following sunday it was more severe and the right side of my face began going numb. I was taken to er. CT performed due to HA and drooping of my lip and right eye. Preliminary report was fine. Received med for Migraines and sent home. I have no hx of migraines though I did report to md that I had noticed I had been having infrequent HAs and occasional numbness in my left arm but nothing to complain about and experienced bells palsy after delivery of my twins. The next day I was so weak I could not get out of the bed. Cannot explain the weakness and fatigue. It was like no matter how much I slept it didn't help. Received a message that "something" showed up on official CT result and needed mri. Saw my pcp the following tuesday. My right eye had nearly closed due to numbness and weakness on right side. Left leg and arm were getting numb at this point but were usable. Sounds crazy but couldnt sleep due to something shocking me in my right buttock ans the constant need to urinate. Pcp agreed that I needed mri and needed to see eye dr due to my blurred vision. Saw eye dr next day. Visual loss in right eye with some "blurring" never said neuritis. Saw neuro-ohpthamologist next day. Agreed that I need mri and this is where the I THINK you have MS came into the picture. The whole time they had me thinking I had a brain tumor, MS was not even a thought. Headache continues and weakness worsens on left side. Began forgetting things and repeating words I had already spoken. I was experiencing expressive aphasia and I was getting depressed with myself. Contacted pcp and was started on celexa 20mg daily. Mri came back fine. Suggested LP, ranges were in higher normal with 2 bands but normal. Was off work for three weeks and basically made myself go back. I tired out so easily and was very ashamed of my cognitive delays because I'm the DON of a rural home health. Things started getting some better. Vision had improved some but still blurred. Left leg was dragging during ambulation but was getting stronger. On dec 17 boom here we go again. Headache that wouldn't go away worsening of vision in right eye. Right eye closed up completely from the numbness and the left arm and lef were comoletely dead. Er md said I really believe u r having a ms flare. I was transferred to a bigger hospital with a neurologist ononcall. Received 1 gm of steroids daily x 3 days iv. Started on neurontin 300mg TID and did a lil PT but tired very easily. I was dicharged home with orders for outpatient PT and the not so friendly neurologist said he wasn't convinced thst it was MS bc the MRIs they performed were yet again normal. Went back to work using a rollater. I'm trying and fighting hard. On Christmas day I realized I had a lil numbness in my right foot and right thigh, didn't mention this to my family. The next morning it was feeling ok and I attempted driving to work. Not smart. Right foot was pretty heavy and I was delayed on hitting the brake and nearly hit a car. Pulled over and called for help. Back in hospital gave me one more dose of steroids and the same not so nice neurologist said I needed PT and to not be in hospital. So discharged home this friday. He still says he's not convinced its MS that my CNS is fine. I told him that I would never talk rudely to my patients as he did to me and I wanted to fo home. After this he recommended another LP and I refused. Probably a mistake but he thinks I'm crazy and its very apparant. Discharge papers showed ms vs conversion disorder. I see ms specialist jan 16. I'm praying really hard and trying my best to stay positive bc I have 6 little eyes looking up to me. I'm very athletic and its killing me to not be able to play outside with my sons. It takes all of my energy to make it up and dodown the steps to just watch them play outside. My left leg is very weak still and right eye blurred still (so overlook grammer and misspelling please). Please help. Sorry so long and drawn out. Oh also forgot to mention the horrible experience of something squeezing my stomach so badly I could not catch my breath. My neurologist (not the hospital neurologist) says this could be the MS hug??? There is nothing sweet like a hug about that. Thanks again for any help and sorry again for so long.