Specialist thinks ms
Posted: Fri May 30, 2014 11:33 am
Hi everybody. I'm a 26 year old male from Ontario Canada. Alright so I have been going through a weird and frustrating experience. It all started when I was 16 I was diagnosed with Postural orthostatic tachycardia syndrome (POTS) it's a disorder of the autonomic nervous system. I was in the hospital for one month where they did many tests including a head MRI and nothing showed. They gave me a beta blocker and that was that.
Now during that time I would get face pain that would last a day or so and go away. Now fast forward a few years ago I started getting the face pain for 5 days at a time and it would go away. Now starting late February I had the face pain 9 weeks straight before going away. When it went away I started getting the weird feelings in my groin that would shoot down to my leg. It wasn't pain it was more of a intense sensation that made me feel like I wanted to stab my leg or something. Now the odd feelings in my leg have gone down in intensity and my face pain has been back for a week again. Nothing wrong with my sinus, no tmj, they've tried me on carbamezapine, amitritpyline and now cymbalta. Nothing has helped the pain. I also get all kinda of weird tingly sensations all over my legs . Also over the years I would get tingling in my hands that would last 3 days straight before subsiding. Also I have difficulty swallowing and get random burning pains in my body . I also get weird skin sensations when being touched. If someone rubs my back I get these uncomfortable sensations down my arm etc. Another thing I noticed is when I bend my neck down sometimes I get a weird chill down my back and arms. I saw an award winning specialist last week and he said he thinks it could be ms. The MRI is on Monday .
This has been the worst experience of my life the face pain is unbearable and I have been off work for 2 months bc of all this .
I know I had an MRI 10 years ago and it was clear so does that mean this one will prob be clear as well or lesions could have formed in the last 10 years?
Another thing I've noticed the last few weeks is my right eye sight is terrible it wouldn't pass an eye test when it was 20/20 before as I had laser eye surgery 3 years ago. It doesn't hurt or anything just blurry . All my symptoms I've had over the years are getting worse and all coming back now at the same time. I've also had bouts of depression and anxiety in the past .
I've started taking magnesium and omega 3 supplements. My physical neuro exam is normal (reflexes etc) I know ms is an auto immune disease and both my sisters have auto immune diseases.
Any input would be appreciated, thank you .
Now during that time I would get face pain that would last a day or so and go away. Now fast forward a few years ago I started getting the face pain for 5 days at a time and it would go away. Now starting late February I had the face pain 9 weeks straight before going away. When it went away I started getting the weird feelings in my groin that would shoot down to my leg. It wasn't pain it was more of a intense sensation that made me feel like I wanted to stab my leg or something. Now the odd feelings in my leg have gone down in intensity and my face pain has been back for a week again. Nothing wrong with my sinus, no tmj, they've tried me on carbamezapine, amitritpyline and now cymbalta. Nothing has helped the pain. I also get all kinda of weird tingly sensations all over my legs . Also over the years I would get tingling in my hands that would last 3 days straight before subsiding. Also I have difficulty swallowing and get random burning pains in my body . I also get weird skin sensations when being touched. If someone rubs my back I get these uncomfortable sensations down my arm etc. Another thing I noticed is when I bend my neck down sometimes I get a weird chill down my back and arms. I saw an award winning specialist last week and he said he thinks it could be ms. The MRI is on Monday .
This has been the worst experience of my life the face pain is unbearable and I have been off work for 2 months bc of all this .
I know I had an MRI 10 years ago and it was clear so does that mean this one will prob be clear as well or lesions could have formed in the last 10 years?
Another thing I've noticed the last few weeks is my right eye sight is terrible it wouldn't pass an eye test when it was 20/20 before as I had laser eye surgery 3 years ago. It doesn't hurt or anything just blurry . All my symptoms I've had over the years are getting worse and all coming back now at the same time. I've also had bouts of depression and anxiety in the past .
I've started taking magnesium and omega 3 supplements. My physical neuro exam is normal (reflexes etc) I know ms is an auto immune disease and both my sisters have auto immune diseases.
Any input would be appreciated, thank you .