Why is it all MS or not MS
Posted: Sat May 31, 2014 8:15 pm
Perhaps this is not the right place for this question. I will give a little background on my specifics. I had some kind of strange neurological stuff a little over ten years ago with crawly skin numbness on the feet, supersensitivity on the face and inside my nose. Much of it has passed, but I have had chronic mild tinnitus for years, and some very mild wavy lines in certain visual fields. A couple of months ago, one finger became a little painful and eventually got a little cyst. Dermatologist thought RA , blood work said no. In the past months pretty much all of my fingers have some redness at the tips and some pain. In the last couple of weeks I have had moderate numbness on my feet and some pain from the little toes. My naturopath wants to test for B-12 and to try a gluten free diet, so I am hoping that will help.
But my real question is in why this disease is called MS. I get it that it is a catch all phrase or a kind of diagnosis by eliminating everything else. But where does that leave us in terms of epidemiology and people really sharing a common disease process. I guess I am suggesting that sufferers be grouped differently in some data base somewhere. For instance those who simply suffer from numbness and tingling might be considered one category and those who have fatigue and loss of function in another. And yes diagnostics such as blood work and lesions can serve as differential criteria as well. Indeed this may open pandoras box in terms of trying to get any common groups of patients who share a similar disease process, but at the moment we seem to have the opposite situation where we all share one big tent
A somewhat separate point is the chorus of all MS is irreversible, Pardon me if I am not a little skeptical that a good many people who have at least qualified with an MS diagnosis somewhere have never had symptoms return/. Maybe a knowledgeable person could help me understand who is keeping track of MS diagnoses and who is tracking the progress of all the patients. Don't get me wrong in that I am saying severe on-going cases are unlikely to resolve. But we would not know if a great many diagnosed with MS had B-12 deficiency. anyway I am sure this is something most of you are aware off, I just wanted to get it off my chest
But my real question is in why this disease is called MS. I get it that it is a catch all phrase or a kind of diagnosis by eliminating everything else. But where does that leave us in terms of epidemiology and people really sharing a common disease process. I guess I am suggesting that sufferers be grouped differently in some data base somewhere. For instance those who simply suffer from numbness and tingling might be considered one category and those who have fatigue and loss of function in another. And yes diagnostics such as blood work and lesions can serve as differential criteria as well. Indeed this may open pandoras box in terms of trying to get any common groups of patients who share a similar disease process, but at the moment we seem to have the opposite situation where we all share one big tent
A somewhat separate point is the chorus of all MS is irreversible, Pardon me if I am not a little skeptical that a good many people who have at least qualified with an MS diagnosis somewhere have never had symptoms return/. Maybe a knowledgeable person could help me understand who is keeping track of MS diagnoses and who is tracking the progress of all the patients. Don't get me wrong in that I am saying severe on-going cases are unlikely to resolve. But we would not know if a great many diagnosed with MS had B-12 deficiency. anyway I am sure this is something most of you are aware off, I just wanted to get it off my chest