Not sure what to believe
Posted: Sat Jun 07, 2014 5:51 pm
I am hoping to find some answers or even just some clarity.
A little background. When I was little (11), my GP brought up the possibility of MS due to short office test she did because of the numbness/tingling in my hands and feet. Nothing was every brought up again but the numbness/tingling went on/off until today. I'm 35. A few month after my first son (I was 27), it started getting worse. I set up an appt with a neuro but had to cancel because we ended up moving across the country. Fast forward to this February. Out of nowhere, both my arms went numb as well as my face and my arms were weak. I was fearful of a stroke but continued to talk and move to make sure I could. This continued for 6 days. I researched the heck out of it and the "normal" stuff that I felt seemed to all fit.
double vision, lack of concentration, loss of memory, loss of balance, numness, tingling, weakness, sexual dysfunction, extreme tiredness, slurred speech, loss of words, losing words mid sentence, lightheaded, painful eyes, shaking hands (not all the time)
I got on the phone with a neuro and got in ASAP. Brain and neck MRIs were done. Neck MRI was clean, brain MRI said a few lesions in the frontal and parietal regions but that they weren't consistant with MS. This neuro said that it wasn't MS and told me to go back to my GP.
So I found a new neuro. He said with the 2 MRIs and my history/ symptoms he does not think it is MS. He ordered a bunch of blood tests and it came back that my B12 was low, 243. I know B12 deficiency can mimic MS. I have now had 4 B12 shots and other than some extra energy for a few days, not much has changed. I don't see him for another 3 months so I am here.
I am sorry if that got long. I just wanted to be thorough. I guess I was hoping to have some light shed on if there is still the possibility of having MS even though the neuro says no? Since I started the shots the numbness/tingling in my hands and feet have gone from an almost asleep type feeling to a hard, jabbing pins, tingling, hurting, painfulness. Again, I know this is a MS board, but there may be some experience in B12- shouldn't things be getting better and not staying the same or getting worse?
I also have a vitamin D deficiency. When it was testing in January in was >15 (the lab doesn't give specific numbers below 15. I was on 8,000 iu D3 and 8 weeks later it was 16.9. I have been on 12,000 iu since and have not been back to be retested.
Thank you for taking the time to read this and I hope someone can help me with and insight, with this, MS, or B12. Thanks
A little background. When I was little (11), my GP brought up the possibility of MS due to short office test she did because of the numbness/tingling in my hands and feet. Nothing was every brought up again but the numbness/tingling went on/off until today. I'm 35. A few month after my first son (I was 27), it started getting worse. I set up an appt with a neuro but had to cancel because we ended up moving across the country. Fast forward to this February. Out of nowhere, both my arms went numb as well as my face and my arms were weak. I was fearful of a stroke but continued to talk and move to make sure I could. This continued for 6 days. I researched the heck out of it and the "normal" stuff that I felt seemed to all fit.
double vision, lack of concentration, loss of memory, loss of balance, numness, tingling, weakness, sexual dysfunction, extreme tiredness, slurred speech, loss of words, losing words mid sentence, lightheaded, painful eyes, shaking hands (not all the time)
I got on the phone with a neuro and got in ASAP. Brain and neck MRIs were done. Neck MRI was clean, brain MRI said a few lesions in the frontal and parietal regions but that they weren't consistant with MS. This neuro said that it wasn't MS and told me to go back to my GP.
So I found a new neuro. He said with the 2 MRIs and my history/ symptoms he does not think it is MS. He ordered a bunch of blood tests and it came back that my B12 was low, 243. I know B12 deficiency can mimic MS. I have now had 4 B12 shots and other than some extra energy for a few days, not much has changed. I don't see him for another 3 months so I am here.
I am sorry if that got long. I just wanted to be thorough. I guess I was hoping to have some light shed on if there is still the possibility of having MS even though the neuro says no? Since I started the shots the numbness/tingling in my hands and feet have gone from an almost asleep type feeling to a hard, jabbing pins, tingling, hurting, painfulness. Again, I know this is a MS board, but there may be some experience in B12- shouldn't things be getting better and not staying the same or getting worse?
I also have a vitamin D deficiency. When it was testing in January in was >15 (the lab doesn't give specific numbers below 15. I was on 8,000 iu D3 and 8 weeks later it was 16.9. I have been on 12,000 iu since and have not been back to be retested.
Thank you for taking the time to read this and I hope someone can help me with and insight, with this, MS, or B12. Thanks