Not sure what is going on with me. Help?
Posted: Tue May 09, 2017 6:31 pm
Hi. My name is Michelle and I just turned 45. I have been told I have a lot of the symptoms of MS, but my lumbar test was negative so they decided not to burden me with that diagnosis. Their words. I do have multiple lesions, but they think it could be from migraines. They said there is no way to know for sure.
I'm so incredibly frustrated, I about can't stand it anymore. I feel like I'm slowly losing my mind and physically feeling terrible too. If the lesions are there and there is no way to know for sure if they are from migraines, how do they know that they aren't from MS?
I started tremoring about two years ago. I noticed I was getting off balance really easy too. That was super frustrating to me as I was a dancer for the majority of my life. I have become seriously clutsy. I have burning pain in my legs, numbness in my arms, hands, legs, feet and toes. Comes and goes. Mostly left side, but sometimes right too. The fatigue I experience is unbelievable. I used to be able to go, go, go and now, I fall asleep during the day. I get a shower and get ready and I'm feeling done. I can't tolerate the heat. It was 83 here today and I felt like it was 110. I was barely moving and yet sweating and miserable with the heat.
My vision suddenly changed last fall, like became bad enough that I have to wear glasses almost all the time now (had to get a new script even) when before I just had to have them to work at computer. I have been lightheaded and dizzy off and on. Bladder and bowel issues started about two years ago and have become worse. My thinking is so foggy and all I keep hearing is it's the fibro or it's the RA. Well, my RA is minimal. It is well controlled with medication and so forth. I don't think all these things can be blamed on fibro and RA. I've had spasms and I tell the Dr. It's disregarded. I cannot get up the steps in my house without having to stop because I feel like I can't climb anymore, like I"m weak. I have literally climbed up the steps like a toddler because I can't walk up the steps.
I have to think to swallow. I had an issue similar to that before when I found out I had thyroid issues. I couldn't lay flat and I had difficulty eating/drinking/anything. Well, I don't have a thyroid any more and this is back. Has been back for about a year, maybe a little less. I have tinnitus and have problems hearing out of my left ear and my favorite...random itching for absolutely no reason whatsoever.
What can I say to this new Dr to get them to take me seriously? This isn't who I am. This isn't how I want to live. It's miserable not knowing and feeling like you are going completely insane.
Thank you so much for any tips or advice you may be able to provide.
I'm so incredibly frustrated, I about can't stand it anymore. I feel like I'm slowly losing my mind and physically feeling terrible too. If the lesions are there and there is no way to know for sure if they are from migraines, how do they know that they aren't from MS?
I started tremoring about two years ago. I noticed I was getting off balance really easy too. That was super frustrating to me as I was a dancer for the majority of my life. I have become seriously clutsy. I have burning pain in my legs, numbness in my arms, hands, legs, feet and toes. Comes and goes. Mostly left side, but sometimes right too. The fatigue I experience is unbelievable. I used to be able to go, go, go and now, I fall asleep during the day. I get a shower and get ready and I'm feeling done. I can't tolerate the heat. It was 83 here today and I felt like it was 110. I was barely moving and yet sweating and miserable with the heat.
My vision suddenly changed last fall, like became bad enough that I have to wear glasses almost all the time now (had to get a new script even) when before I just had to have them to work at computer. I have been lightheaded and dizzy off and on. Bladder and bowel issues started about two years ago and have become worse. My thinking is so foggy and all I keep hearing is it's the fibro or it's the RA. Well, my RA is minimal. It is well controlled with medication and so forth. I don't think all these things can be blamed on fibro and RA. I've had spasms and I tell the Dr. It's disregarded. I cannot get up the steps in my house without having to stop because I feel like I can't climb anymore, like I"m weak. I have literally climbed up the steps like a toddler because I can't walk up the steps.
I have to think to swallow. I had an issue similar to that before when I found out I had thyroid issues. I couldn't lay flat and I had difficulty eating/drinking/anything. Well, I don't have a thyroid any more and this is back. Has been back for about a year, maybe a little less. I have tinnitus and have problems hearing out of my left ear and my favorite...random itching for absolutely no reason whatsoever. What can I say to this new Dr to get them to take me seriously? This isn't who I am. This isn't how I want to live. It's miserable not knowing and feeling like you are going completely insane.
Thank you so much for any tips or advice you may be able to provide.
