John Hopkins?
Posted: Mon Oct 30, 2017 12:00 pm
What can i expect from JH?
I'm undiagnosed. I've had symptoms for about 4 or 5 years now. I've been hospitalized 2x. Every MRI I've had prior to 2017 showed signs of demylenating disease, but no actual lesions. Early this year I was hospitalized for weakness/numbness, and tremors. The hospital told me to schedule an appointment with a neuro as I had recently moved and did not have one, it took me a little bit to get an appointment.
He ran a full workup of bloodwork, MRI and a LP. Everything on the bloodwork came back normal. The LP was negative. However my MRI now showed, according to the radiologist report, "multiple lesions consistent with a history of multiple sclerosis". My local neuro said he wasn't sure what was going on and I needed to go to a secondary facility. I was able to get him to refer me to JH MS Center, about 3 hours away.
After sending all my records, radiologist reports, and copies of my MRI's etc from over the past 5 years, I received a call from JH and the lady said "after the doctors reviewed your records, they will be accepting your case" and scheduled and appointment.
So, I'm now a few weeks away from going in. No idea what to expect. I will be seeing Dr. Bardia (I think that was his name). Has anyone ever been there, and what can I expect? I am just used to hearing Dr's say "it looks like MS but I dont think thats it". Really, I am just nervous to be actually going to see a Dr who specializes in MS.
I'm undiagnosed. I've had symptoms for about 4 or 5 years now. I've been hospitalized 2x. Every MRI I've had prior to 2017 showed signs of demylenating disease, but no actual lesions. Early this year I was hospitalized for weakness/numbness, and tremors. The hospital told me to schedule an appointment with a neuro as I had recently moved and did not have one, it took me a little bit to get an appointment.
He ran a full workup of bloodwork, MRI and a LP. Everything on the bloodwork came back normal. The LP was negative. However my MRI now showed, according to the radiologist report, "multiple lesions consistent with a history of multiple sclerosis". My local neuro said he wasn't sure what was going on and I needed to go to a secondary facility. I was able to get him to refer me to JH MS Center, about 3 hours away.
After sending all my records, radiologist reports, and copies of my MRI's etc from over the past 5 years, I received a call from JH and the lady said "after the doctors reviewed your records, they will be accepting your case" and scheduled and appointment.
So, I'm now a few weeks away from going in. No idea what to expect. I will be seeing Dr. Bardia (I think that was his name). Has anyone ever been there, and what can I expect? I am just used to hearing Dr's say "it looks like MS but I dont think thats it". Really, I am just nervous to be actually going to see a Dr who specializes in MS.