New and tired
Posted: Mon Jan 01, 2018 4:38 pm
Hi
I have been struggling with things for a while, it seems I'm always looking for the answer to all of my issues.
I will write the list of things that goes on for me and then an explanation of tests and where I'm at.
(((((Often or regular))))) maybe 1-5 times a week consistently.
Fatigue- proper fatigue, can't get my body off the bed sometimes. This ranges from 2-7 days of intense fatigue or I will have a longer less intense period of a few weeks.
Shakes in hands - some days, when I'm trying to do something usually, hold a fork, my phone, cut something. Not necessarily when I'm holding my hands out.
Weakness in hands arms. Just a general feeling of weakness
Headache migraine) this last few months I have had a persistent headache, left temple. Goes in waves, of 3 to 4 days on - 3 to 4 off. Have to have panadol and codeine and it hurts to touch after the main pain has gone, light sensitive ***used to get these 10 years ago now have come back last few months
Spasms * legs - these are consistent, and small to large ones.
Spasms *arms/hands* this is new within the last 4ish months. Smaller. And less often.
Spasms *nerve spasms* not sure if actually neverss. But I will get an 'itch' that if I don't scratch or rub the itch it gets burning hot and will make me spasm. Usually in legs or in the folds of joints. Hips knees elbows.
Kick outs* I get an overwhelming sense that I need to fold over in my stomach, fetal position. Then if I don't do that and just ignore it the feeling will build up until my legs are buzzing and one of my legs will noticeably jump or kick out
Twitches / numbness in face and mouthlips . Usually last a few days
Cramps in large leg muscles.•
Cramps in foreArm muscle.•
Cramps in biceps.•.
•not sure if these are cramps or some other TGIF, but it's like my muscle is stuck hard on. And it's painful to move them until I massage vigorously or go to sleep
Feeling of a knot in leg or arm muscles.
Pain in back
Pain in hips.
Pain In legs hips and lower back. like I have an elephant sitting on them. Stretching helps release pain for a few minutes tops and not fully.
Constipation/runs. I used to have the runs/constipation for years like it would cycle to one to the other. Then I went vegan and it eased up and was good for nearly a year. Now I am just mainly constipated with bouts of normalcy in between
((((Less often))))) 0-2 times a week
Numbness in feet and hands (maybe twice a week if that)
Chest pain - I will get a pain in the back and front of my chest, like my rib need to be popped.
Speech - best describes what happens, took this from google
* Impaired volume control: voice becomes too quiet or loud (to quiet)
* Impaired emphasis: speech becomes slowed or broken up with inappropriate pauses, difficulty applying appropriate stress on words or varying pitches and loudness for emphasis
(((((Situationally)))))
Heat, i am heat intolerant at best. I can handle the heat vary small doses and then need to retreat to cool down. I will get dizzy and angry. Like I need to rip my skin off to get cooler.
When I have been exposed to heat (weatherheater) i get pain in the back, legs, headache, angry, burning hands and feet. Like for an hour or more afterwards. I can lay on my bed after a hot shower and I'm a hot twitchy mess. (Not boiling to the point of idiocy hot, but a decent hot shower)
********hand muscle will twitch when tired/stressed
Lose strength in my hands, so much so that I have been to the dr for it
Urine- sometimes I'm so full I will leak a tiny bit
Sex - from google again, spot on.
* decreased sex drive
* reduced genital sensation
* fewer and less intense orgasms
Prgenaxy - the spasms legs was the ONLY thing that I had in the 9 months I was pregnant. If I could spend my life being pregnant I would. I floated through my pregnancy it was that good
((((Past things prolonged)))) irregular things ))))))
Consistently hand a muscle twitch in my hand for around 3 months. Used magnesium to no effect, only thing that I can pinpoint was reduced stress that stopped it.********
Chest pain-persistent chest pain for around 4 months, all tests negative for heart stuff.
Ultrasound showed nothing, was told it was costochodritis*
Neck pain - bouts jolts or spasms, maybe 5-7 times a year when I move my neck this last for a few days at a time
(((Past things)))) one offs so far
Kidney infection in July this year (first time)
Vision, about 10 years ago my eye sight got considerably worse, I jumped up two prescription in a year. Second test I was having such bad double vision I was told to come back in a Few days to retest. Double vision lasted for around 3/4days.
--------
Bowels - as from above they haven't been the easiest to deal with.
Urine- this has been getting worse as well. Feeling full and nothing there or not noticing I'm very full until it's painful.
-depression-2017 was a horribly negative year for me.
New this year
Bladder and kidney issues
Speech
Arms and hand spasms
Chest pain (prolonged type)
Depression (never been depressed before)
Tests - this year so far have had tests for arthritis, inflammatory activity, certain cancer markers, full liver and blood work. (Only thing that comes up is I have Gilbert's syndrome)
Only time bloods were off was the kidney infection.
I am currently waiting on a call back from genetic testing people in my area. We have Charcoot Marie tooth CMT in our family and my mum has never been tested. This could fit number of these symptoms but not all.
onkt other relevant things are I'm vegan (I take b12 supplements) all my blood work is good. I use magnesium spray a few times a week and I do little excercose.
I'm thinking that I could POTENTIALLY have MS. Nothing is sure, but with this list would it be wise to push the issue for ms testing Aswell as the CMT testing. I don't think a lot of this fits CMT.
Any advice would be appreciated.
Vesuvi
I have been struggling with things for a while, it seems I'm always looking for the answer to all of my issues.
I will write the list of things that goes on for me and then an explanation of tests and where I'm at.
(((((Often or regular))))) maybe 1-5 times a week consistently.
Fatigue- proper fatigue, can't get my body off the bed sometimes. This ranges from 2-7 days of intense fatigue or I will have a longer less intense period of a few weeks.
Shakes in hands - some days, when I'm trying to do something usually, hold a fork, my phone, cut something. Not necessarily when I'm holding my hands out.
Weakness in hands arms. Just a general feeling of weakness
Headache migraine) this last few months I have had a persistent headache, left temple. Goes in waves, of 3 to 4 days on - 3 to 4 off. Have to have panadol and codeine and it hurts to touch after the main pain has gone, light sensitive ***used to get these 10 years ago now have come back last few months
Spasms * legs - these are consistent, and small to large ones.
Spasms *arms/hands* this is new within the last 4ish months. Smaller. And less often.
Spasms *nerve spasms* not sure if actually neverss. But I will get an 'itch' that if I don't scratch or rub the itch it gets burning hot and will make me spasm. Usually in legs or in the folds of joints. Hips knees elbows.
Kick outs* I get an overwhelming sense that I need to fold over in my stomach, fetal position. Then if I don't do that and just ignore it the feeling will build up until my legs are buzzing and one of my legs will noticeably jump or kick out
Twitches / numbness in face and mouthlips . Usually last a few days
Cramps in large leg muscles.•
Cramps in foreArm muscle.•
Cramps in biceps.•.
•not sure if these are cramps or some other TGIF, but it's like my muscle is stuck hard on. And it's painful to move them until I massage vigorously or go to sleep
Feeling of a knot in leg or arm muscles.
Pain in back
Pain in hips.
Pain In legs hips and lower back. like I have an elephant sitting on them. Stretching helps release pain for a few minutes tops and not fully.
Constipation/runs. I used to have the runs/constipation for years like it would cycle to one to the other. Then I went vegan and it eased up and was good for nearly a year. Now I am just mainly constipated with bouts of normalcy in between
((((Less often))))) 0-2 times a week
Numbness in feet and hands (maybe twice a week if that)
Chest pain - I will get a pain in the back and front of my chest, like my rib need to be popped.
Speech - best describes what happens, took this from google
* Impaired volume control: voice becomes too quiet or loud (to quiet)
* Impaired emphasis: speech becomes slowed or broken up with inappropriate pauses, difficulty applying appropriate stress on words or varying pitches and loudness for emphasis
(((((Situationally)))))
Heat, i am heat intolerant at best. I can handle the heat vary small doses and then need to retreat to cool down. I will get dizzy and angry. Like I need to rip my skin off to get cooler.
When I have been exposed to heat (weatherheater) i get pain in the back, legs, headache, angry, burning hands and feet. Like for an hour or more afterwards. I can lay on my bed after a hot shower and I'm a hot twitchy mess. (Not boiling to the point of idiocy hot, but a decent hot shower)
********hand muscle will twitch when tired/stressed
Lose strength in my hands, so much so that I have been to the dr for it
Urine- sometimes I'm so full I will leak a tiny bit
Sex - from google again, spot on.
* decreased sex drive
* reduced genital sensation
* fewer and less intense orgasms
Prgenaxy - the spasms legs was the ONLY thing that I had in the 9 months I was pregnant. If I could spend my life being pregnant I would. I floated through my pregnancy it was that good
((((Past things prolonged)))) irregular things ))))))
Consistently hand a muscle twitch in my hand for around 3 months. Used magnesium to no effect, only thing that I can pinpoint was reduced stress that stopped it.********
Chest pain-persistent chest pain for around 4 months, all tests negative for heart stuff.
Ultrasound showed nothing, was told it was costochodritis*
Neck pain - bouts jolts or spasms, maybe 5-7 times a year when I move my neck this last for a few days at a time
(((Past things)))) one offs so far
Kidney infection in July this year (first time)
Vision, about 10 years ago my eye sight got considerably worse, I jumped up two prescription in a year. Second test I was having such bad double vision I was told to come back in a Few days to retest. Double vision lasted for around 3/4days.
--------
Bowels - as from above they haven't been the easiest to deal with.
Urine- this has been getting worse as well. Feeling full and nothing there or not noticing I'm very full until it's painful.
-depression-2017 was a horribly negative year for me.
New this year
Bladder and kidney issues
Speech
Arms and hand spasms
Chest pain (prolonged type)
Depression (never been depressed before)
Tests - this year so far have had tests for arthritis, inflammatory activity, certain cancer markers, full liver and blood work. (Only thing that comes up is I have Gilbert's syndrome)
Only time bloods were off was the kidney infection.
I am currently waiting on a call back from genetic testing people in my area. We have Charcoot Marie tooth CMT in our family and my mum has never been tested. This could fit number of these symptoms but not all.
onkt other relevant things are I'm vegan (I take b12 supplements) all my blood work is good. I use magnesium spray a few times a week and I do little excercose.
I'm thinking that I could POTENTIALLY have MS. Nothing is sure, but with this list would it be wise to push the issue for ms testing Aswell as the CMT testing. I don't think a lot of this fits CMT.
Any advice would be appreciated.
Vesuvi