Betaseron & Cessation of Kidney Stones on Treatment!!
Posted: Tue May 28, 2013 8:46 pm
I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do about stones, just get use to having them!' (yes, there are Jerk doctors out there!)
Thankfully, patients READ!! and can become educated about their conditions, and, learn that some doctors stop reading, and are not interested in advocating for patient quality of life, as that urologist did to me...years ago.
Long story short. Someone needs to research the effects of Betaseron on Kidney stones!!
During the year I took Betaseron injections (August 2011-June 2011) I had ZERO kidney stones!! NEVER in 14 years had I gone that long without a stone!! that was a BIG DEAL TO ME!!! It improved my quality of life!! isn't that what we all want?
Sadly, it looks like the Betaseron contributed to some increase in some mystery asthma symptoms I had, and I was pulled off of it to await the BG12 release.
Just thought someone out there might do something about the needed research into why my stones stopped.
FYI: I was DX with Primary HyperParaThyroidism this year...so, it would be interesting to know what PHPT and MS and Stones and Interferon have to do with each other????
Thankfully, patients READ!! and can become educated about their conditions, and, learn that some doctors stop reading, and are not interested in advocating for patient quality of life, as that urologist did to me...years ago.
Long story short. Someone needs to research the effects of Betaseron on Kidney stones!!
During the year I took Betaseron injections (August 2011-June 2011) I had ZERO kidney stones!! NEVER in 14 years had I gone that long without a stone!! that was a BIG DEAL TO ME!!! It improved my quality of life!! isn't that what we all want?
Sadly, it looks like the Betaseron contributed to some increase in some mystery asthma symptoms I had, and I was pulled off of it to await the BG12 release.
Just thought someone out there might do something about the needed research into why my stones stopped.
FYI: I was DX with Primary HyperParaThyroidism this year...so, it would be interesting to know what PHPT and MS and Stones and Interferon have to do with each other????