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Due to the lengthy times required to wait to see a neurologist here..6 months from probable diagnosis to actually seeing one. I was left with plenty of time to research.
I am of the strong belief that diet and lifestyle play a large part in health and slowing the progression of this illness. When I mentioned diet to my neurologist her reaction was as if I was talking about voodoo!
Does anyone out there have a neurologist with a supportive attitude to diet, or do they not exist?
Is a neurologist just there to read your MRIs and perscibe pharmaceuticals? I'm still trying to work out what they are for. I don't know if I should try to seek out one that is more balanced, and whether this is important. After her reaction to diet I didn't even want to mention CCVSI!
Any thoughts or experience with this would be appreciated.

my neuros are of the smile and nod variety when it comes to lifestyle approaches. they're great for MRIs.

my family doc is tolerant of my non-pharma approach, and supportive when it comes to all the blood work i request to monitor efficacy of my dietary/supplement regimen.

HTH!

My Neuro was positive about Vitamin D and Oleic acid. He was neutral on the uric acid issue but ordered tests to see where I was.

On CCSVI - he would of held a cross up if he wasn't a Muslim

I didn't bother telling him about Helminthic Therapy

re UA, where were u, mr?

I'm bumping this thread, just saw it and I wanted to add my two cents worth.

When I was first diagnosed, through a second opinion, the neurologist handed me a piece of paper with a list of drugs to choose from. I mentioned diet and that I had heard and read such and such....and although I had a great amount of respect for him, for he took me through a diagnosis which was not easy given my great health at the time, no significant signs of lesions etc (aside from the most stressful living circumstances, gee, if I had only calculated that as part of the health equation like I do now)....anyway, he looked at me and simply nodded 'no, no, no' as if I had just mentioned taking LSD or something. My sister was sitting next to me at the time, and she said to him "If you were in her situation, would you take the drugs?" At which time he said no.
I had already told him I would not take any drugs, so he was not trying to discourage me, but I was grateful for his honesty.

That was in 2002. We left his office and I never saw him or any other neurologist again until winter 2009 when I had the one and only most serious relapse in these last years since the diagnosis and I did do a 5-day IV drip of cortisone, and am glad I did so, for it did halt the attack my body was under.
I am certainly not advising one way or the other on drugs/diet etc, just sharing what I did and my observations.

But it was clear to me that he had no clue about health through diet. Most mainstream medical physicians do not, and they are hardly adverse to handing out drug prescriptions. I do not think they are evil drug pushers, I think they are afraid, as are so many, and so they do what they were trained to do.

Every one of us here on this forum has to decide for ourselves, our lifestyles etc what is best for us.
But counting on a neurologist for diet feedback will hardly get you anywhere in my opinion.

jimmylegs wrote:re UA, where were u, mr?

Sorry I missed this JL

I was 340 Nmol. That was with a high purine diet (oily fish virtually every day) plus zinc as part of the multivitamin.

Since then I have added 1000mg of inosine a day plus an extra 15mg zinc. Not been tested since. slackened off a bit on fish consumption.

yeesh glad u answered - i'd say watch it mrb!

you're up into the zone where uric acid can start causing excess issues.

i would keep up the zinc but you can (should?) probably drop the inosine.

healthy control zinc is in the high teens (units umol/L) and healthy control uric acid is around 290-300 umol/L (i'm assuming your units were umol not nmol yes?)

hth

On the lab report it was 5.7 mg/dl. 340 was what I converted it to? Not that offay with the various measures.

I havent had any problems so far. I viewed taking the inosine as a temporary measure until I got other treatments like hookworm under way (37 days in).

I'll reduce my inosine intake to 500mg