| Author |
Message |
Topic: Waiting for an appointment... |
777
Replies: 56
Views: 3616
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Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Mon May 19, 2008 9:31 am Subject: Waiting for an appointment... |
| nobody is trolling and nothing is coincidental and cruel. I talked to Dr.Hammond when I was pregnant in december, I had a 8 month attack. He is aware of my situation but I was pregnant at the time, ... |
Topic: Waiting for an appointment... |
777
Replies: 56
Views: 3616
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Mon May 19, 2008 8:51 am Subject: Waiting for an appointment... |
too bad, you could go by the hysterical family.
I got a call back this morning, so I am going in June. My sister in law got a call back before mothers day, she said she is going sometime in au ... |
Topic: Waiting for an appointment... |
777
Replies: 56
Views: 3616
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Mon May 19, 2008 4:21 am Subject: Waiting for an appointment... |
| Are you on any anti depressants currently? |
Topic: Waiting for an appointment... |
777
Replies: 56
Views: 3616
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sun May 18, 2008 9:08 am Subject: Waiting for an appointment... |
| Part of me is anxious to get this done asap, another part is more than willing to wait. I guess I see it as, I am not dying of cancer. MS sucks sure! but I am doing fine everall, my legs seem to ge ... |
Topic: Waiting for an appointment... |
777
Replies: 56
Views: 3616
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sun May 18, 2008 6:56 am Subject: Waiting for an appointment... |
yep, same exact thing happened to me. Guess we just have to wait. At least we can enjoy the summer and recover in the fall.  |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sat May 17, 2008 7:19 pm Subject: rebooting at JHH |
| I asked because EBV lives in b cells forever once it has been contacted. Since a considerable amount of MS research seems to keep looking at that, I wondered if the EBV is gone as well and thought it ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sat May 17, 2008 4:51 pm Subject: rebooting at JHH |
since we are on the subject, are the b cells killed in treatment as well? just curious. Yes, all the white blood cells are killed in the process. T and B cells.
Bob
Is that a good thing? What i ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sat May 17, 2008 12:16 pm Subject: rebooting at JHH |
| They know I am serious, I talked to Dr. Hammond ( for about an hour and a half! ) and I have talked to Carrie 3 times. First time was when she asked for more MRI's, they wanted my history. The last ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Sat May 17, 2008 11:50 am Subject: rebooting at JHH |
| I filled out some paper work late afternoon for tysabri. Since I have MS symptoms creeping back in on me, weak legs etc... I cant wait for treatment at JH. That and the fact nobody is calling me to ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 1:17 pm Subject: rebooting at JHH |
| Thats why I am puzzled that they want to see me, I asked Carrie twice and talked to Dr. Hammond once. ButI have yet to recieve a call for an acutal appt. That's why I hope I dont invest the money to ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 12:06 pm Subject: rebooting at JHH |
| I dont have any enhanced lesions and they want to talk to me. |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 8:41 am Subject: rebooting at JHH |
| I thought of that, but I realize they are busy with other people. it is frustrating waiting but on the other hand i know I am not the only person they are trying to work in. There may be people that ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 8:18 am Subject: rebooting at JHH |
| I called twice and talked to Carrie. Both times she told me som,eone would be calling me in 2 weeks.. well the first time I waited 3 weeks called he ragain, She said some wil be calling, they defina ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 7:40 am Subject: rebooting at JHH |
| I havent heard back from anyone tey to set up an appt. I talked ti Carrie twice and she said they definatly want to see me. That was her exact words, but of course that doesn't mean I will qualify. ... |
Topic: rebooting at JHH |
777
Replies: 86
Views: 6251
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri May 16, 2008 5:59 am Subject: rebooting at JHH |
Per protocol you have to have someone of age with you 24/7 for 25 days you are there. The kids can be there I'm sure but they need to know Mom is gonna suck for a month.
They wont let you do t ... |
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