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Author Message
  Topic: Waiting for an appointment...
777

Replies: 56
Views: 3616

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon May 19, 2008 9:31 am   Subject: Waiting for an appointment...
nobody is trolling and nothing is coincidental and cruel. I talked to Dr.Hammond when I was pregnant in december, I had a 8 month attack. He is aware of my situation but I was pregnant at the time, ...
  Topic: Waiting for an appointment...
777

Replies: 56
Views: 3616

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon May 19, 2008 8:51 am   Subject: Waiting for an appointment...
too bad, you could go by the hysterical family. Smile

I got a call back this morning, so I am going in June. My sister in law got a call back before mothers day, she said she is going sometime in au ...
  Topic: Waiting for an appointment...
777

Replies: 56
Views: 3616

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon May 19, 2008 4:21 am   Subject: Waiting for an appointment...
Are you on any anti depressants currently?
  Topic: Waiting for an appointment...
777

Replies: 56
Views: 3616

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sun May 18, 2008 9:08 am   Subject: Waiting for an appointment...
Part of me is anxious to get this done asap, another part is more than willing to wait. I guess I see it as, I am not dying of cancer. MS sucks sure! but I am doing fine everall, my legs seem to ge ...
  Topic: Waiting for an appointment...
777

Replies: 56
Views: 3616

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sun May 18, 2008 6:56 am   Subject: Waiting for an appointment...
yep, same exact thing happened to me. Guess we just have to wait. At least we can enjoy the summer and recover in the fall. Smile
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat May 17, 2008 7:19 pm   Subject: rebooting at JHH
I asked because EBV lives in b cells forever once it has been contacted. Since a considerable amount of MS research seems to keep looking at that, I wondered if the EBV is gone as well and thought it ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat May 17, 2008 4:51 pm   Subject: rebooting at JHH
since we are on the subject, are the b cells killed in treatment as well? just curious. Yes, all the white blood cells are killed in the process. T and B cells.
Bob

Is that a good thing? What i ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat May 17, 2008 12:16 pm   Subject: rebooting at JHH
They know I am serious, I talked to Dr. Hammond ( for about an hour and a half! ) and I have talked to Carrie 3 times. First time was when she asked for more MRI's, they wanted my history. The last ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat May 17, 2008 11:50 am   Subject: rebooting at JHH
I filled out some paper work late afternoon for tysabri. Since I have MS symptoms creeping back in on me, weak legs etc... I cant wait for treatment at JH. That and the fact nobody is calling me to ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 1:17 pm   Subject: rebooting at JHH
Thats why I am puzzled that they want to see me, I asked Carrie twice and talked to Dr. Hammond once. ButI have yet to recieve a call for an acutal appt. That's why I hope I dont invest the money to ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 12:06 pm   Subject: rebooting at JHH
I dont have any enhanced lesions and they want to talk to me.
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 8:41 am   Subject: rebooting at JHH
I thought of that, but I realize they are busy with other people. it is frustrating waiting but on the other hand i know I am not the only person they are trying to work in. There may be people that ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 8:18 am   Subject: rebooting at JHH
I called twice and talked to Carrie. Both times she told me som,eone would be calling me in 2 weeks.. well the first time I waited 3 weeks called he ragain, She said some wil be calling, they defina ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 7:40 am   Subject: rebooting at JHH
I havent heard back from anyone tey to set up an appt. I talked ti Carrie twice and she said they definatly want to see me. That was her exact words, but of course that doesn't mean I will qualify. ...
  Topic: rebooting at JHH
777

Replies: 86
Views: 6251

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 16, 2008 5:59 am   Subject: rebooting at JHH
Per protocol you have to have someone of age with you 24/7 for 25 days you are there. The kids can be there I'm sure but they need to know Mom is gonna suck for a month.



They wont let you do t ...
 
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