| Author |
Message |
Topic: Copaxone When does the pain end? |
Arcee
Replies: 11
Views: 878
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Forum: Copaxone Posted: Sat Nov 08, 2008 9:44 am Subject: Copaxone When does the pain end? |
| I too am pretty lean and am on Copaxone. I found that even with the autoinject set on 4, the shots were painful and I was getting huge bruises that lasted a long time. I found that two things really h ... |
Topic: Spinal Tap Next Week - A few questions! |
Arcee
Replies: 30
Views: 1536
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Forum: General Discussion Posted: Thu Oct 04, 2007 8:52 am Subject: Spinal Tap Next Week - A few questions! |
| Becky, my original doctor said I could move around after the spinal tap. Whether it was because I moved or he just screwed up, I had one of those incredibly excruciating, debilitating headaches after ... |
Topic: Sad news |
Arcee
Replies: 78
Views: 6491
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Forum: General Discussion Posted: Tue Oct 02, 2007 12:18 pm Subject: Sad news |
Harry, my condolences on your loss. Your devotion to Marg, adn your willingness to share your experiences with others, will always be a part of this community.
- Arcee |
Topic: Can doctors really predict a persons course of ms? |
Arcee
Replies: 17
Views: 1482
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Forum: General Discussion Posted: Mon Aug 06, 2007 9:52 am Subject: Can doctors really predict a persons course of ms? |
| I found the abstract to thestudy I had referenced earlier. I agree with the points about predicting for any one person being difficult and that we all need to live our lives now anyway. But if this me ... |
Topic: MS risk genes identified |
Arcee
Replies: 31
Views: 2049
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Forum: General Discussion Posted: Sun Jul 29, 2007 6:51 pm Subject: MS risk genes identified |
While it doesn't make connections to potential treatments, here's the version from the New York Times. Front page news at the moment!
July 29, 2007
Advances Cited in Research on Multiple Sclerosis ... |
Topic: Can doctors really predict a persons course of ms? |
Arcee
Replies: 17
Views: 1482
|
Forum: General Discussion Posted: Mon Jul 09, 2007 8:06 am Subject: Can doctors really predict a persons course of ms? |
| Although I can't remember the exact citation, I am pretty sure that sometime in the past year there was a study that tried to pinpoint more precisely predictive factors. It seemed that problems with s ... |
Topic: Hello from MA |
Arcee
Replies: 3
Views: 598
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Forum: Introductions Posted: Wed Jan 17, 2007 10:53 am Subject: Hello from MA |
| Kristen, I'll echo connieb: feel free to contact me about my Boston area experience. Sorry you have to be here, but it is a great resource. |
Topic: Tysabri Infusion Experiences (2006) |
Arcee
Replies: 85
Views: 12910
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Forum: Tysabri (Antegren or Natalizumab) Posted: Fri Dec 22, 2006 9:09 am Subject: Tysabri Infusion Experiences (2006) |
| Lauren, my doctor and I discussed using Benadryl prophylactically but he wasn't willing to do it, didn't want to mask the reaction. My sense is that they are not willing to do it at this clinic. But i ... |
Topic: Tysabri Infusion Experiences (2006) |
Arcee
Replies: 85
Views: 12910
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Tue Dec 19, 2006 8:01 pm Subject: Tysabri Infusion Experiences (2006) |
| Thanks, Harry. I appreciate your kind words, and your ability to add a persepctive I hadn't previously considered. |
Topic: Tysabri Infusion Experiences (2006) |
Arcee
Replies: 85
Views: 12910
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Tue Dec 19, 2006 11:15 am Subject: disappointing news |
Hi All -
Sad to say but my fourth overall, and second since recommencing, Tysabri infusion was stopped midway because of an allergic reaction.
I was very focused going into it because of what I ... |
Topic: Scary experience with Tysabri |
Arcee
Replies: 27
Views: 3846
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Forum: Tysabri (Antegren or Natalizumab) Posted: Mon Dec 04, 2006 9:40 am Subject: Scary experience with Tysabri |
| I believe there are a couple of places offering the Tysabri antibodies test, including Athena Diagnostics. They have an up to 14 day turn around from when they receive the blod sample and when they re ... |
Topic: Tysabri Infusion Experiences (2006) |
Arcee
Replies: 85
Views: 12910
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Mon Dec 04, 2006 9:31 am Subject: Tysabri Infusion Experiences (2006) |
Pete -
How about wearing some kind of cooling device? I am not directly familiar with them, but I remember reading about ice wraps for the neck or the researchers from Stanford University who devel ... |
Topic: Biogen deal for PML |
Arcee
Replies: 24
Views: 2374
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Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Sep 21, 2006 7:03 am Subject: Biogen deal for PML |
from the Boston Globe
Alnylam, Biogen to partner on brain disease treatment
Alnylam Pharmaceuticals Inc. of Cambridge said it will collaborate with Biogen Idec Inc. to develop a treatment for a r ... |
Topic: coping |
Arcee
Replies: 19
Views: 2596
|
Forum: Daily Life Posted: Fri Jun 30, 2006 9:27 am Subject: coping |
Ian -
The responses to your post have been so meaningful, I'm not sure that I can add much. But I want to respond because I appreciate all you do for this site and because I want to echo the sugges ... |
Topic: Celebrities w/ MS |
Arcee
Replies: 11
Views: 1238
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Forum: General Discussion Posted: Mon Jun 05, 2006 7:33 am Subject: Celebrities w/ MS |
Jeb Bartlett  |
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