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Author Message
  Topic: My second trip to Poland
Brynn

Replies: 48
Views: 4802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun Jul 25, 2010 4:32 pm   Subject: My second trip to Poland
Hi everyone! Thanks for the well wishes! I wanted to send out an update…Not meaning to sound too overly dramatic, I have had a challenging few months. I unfortunately have not seen a return of the tr ...
  Topic: My second trip to Poland
Brynn

Replies: 48
Views: 4802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Mon Jul 12, 2010 8:34 pm   Subject: My second trip to Poland
Sorry to be off the radar for so long. It has been a tough time for me for several weeks. I have improved coloring in my feet and do not have fatigue but have had four UTIs since mid-march. I am ha ...
  Topic: My second trip to Poland
Brynn

Replies: 48
Views: 4802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Wed May 26, 2010 6:18 pm   Subject: My second trip to Poland
Hi Paul, I told the doctor's that I can't afford the trip again, so if it seemed at all reasonable, to please give me a stent. I got my stent. I am sure you would, too.

Thanks, Sunlounger. Ho ...
  Topic: My second trip to Poland
Brynn

Replies: 48
Views: 4802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Wed May 26, 2010 11:35 am   Subject: My second trip to Poland
Sorry for taking so long, I was taking a bit of a break. My procedure on May 13 went great, just real easy like my trip in January. My Doppler revealed that my left IJV had indeed collapsed again, s ...
  Topic: Has anyone decided to "reschedule"?
Brynn

Replies: 42
Views: 1628
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun May 09, 2010 8:22 pm   Subject: Has anyone decided to "reschedule"?
Johnson, thumbs up for your optomistic posts! I totally support your positive attitude and get so tired of these folks that take so much energy trying to slap down the possibility of improvement. Fo ...
  Topic: My second trip to Poland
Brynn

Replies: 48
Views: 4802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun May 09, 2010 11:41 am   Subject: My second trip to Poland
Hi everyone! My husband and I made our way across the pond on 5/6 from Seattle into Frankfurt, rented a car and drove down to northern Spain to spend the weekend with my brother and his family. It ...
  Topic: Mags is off to Poland!!!!!!!!!!!
Brynn

Replies: 47
Views: 4193
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Tue May 04, 2010 8:41 pm   Subject: Mags is off to Poland!!!!!!!!!!!
Wonderful luck, Mags! Very Happy Very Happy
  Topic: esta and poland - finally my turn
Brynn

Replies: 51
Views: 4742
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Tue May 04, 2010 8:37 pm   Subject: esta and poland - finally my turn
Have a wonderful couple of life changing days, Esta! It will happen! Very Happy
  Topic: LIVABIRD's Poland Adventure
Brynn

Replies: 130
Views: 9856
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun May 02, 2010 12:42 pm   Subject: LIVABIRD's Poland Adventure
Livabird- I got a bladder infection when I got back, too. I think the catheter that we are on for the procedure gets those going! Get on some antibiotice quick and get well! Very Happy All in all, you wi ...
  Topic: esta and poland - finally my turn
Brynn

Replies: 51
Views: 4742
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun May 02, 2010 10:05 am   Subject: esta and poland - finally my turn
Esta, have a fantastic trip! I am a week behind you on the 13th! Good luck to everyone!
  Topic: Once is never enough
Brynn

Replies: 32
Views: 2286
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sat May 01, 2010 11:00 am   Subject: Once is never enough
I never have the energy right now to get too scientific, but I had a couple thoughts to share, based on my experience thus far. My right leg has gotten progressively non-functioning, every since my f ...
  Topic: Once is never enough
Brynn

Replies: 32
Views: 2286
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Thu Apr 29, 2010 8:45 pm   Subject: Once is never enough
Hi everyone, I had one stent placed in January with tremendous improvements for 6 weeks then apparently re-stenosed on my left side, which had only been ballooned. I am scheduled in Poland for May 13 ...
  Topic: fiddler finally flying... to Poland
Brynn

Replies: 107
Views: 8802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Tue Apr 27, 2010 5:31 pm   Subject: fiddler finally flying... to Poland
Never fear, Ted, you will have it and then everything will change for the better! Very Happy Brynn
  Topic: fiddler finally flying... to Poland
Brynn

Replies: 107
Views: 8802
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Sun Apr 25, 2010 9:40 pm   Subject: fiddler finally flying... to Poland
Hi Fiddler! So glad you made it! I always think that everything happens for a reason...I was realizing that I was the only one who didn't make it with our week three group. But then, I started havi ...
  Topic: LIVABIRD's Poland Adventure
Brynn

Replies: 130
Views: 9856
 PostForum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)   Posted: Thu Apr 22, 2010 1:08 pm   Subject: LIVABIRD's Poland Adventure
Such Fantastic news! Very Happy Very Happy Very Happy Given how complicated her situation was, I am so glad she was working with the best! We will all watch for more and we are all still waiting for that Facebook link! ...
 
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