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Author Message
  Topic: My vascular (?) problems - related to MS?
Damjan

Replies: 16
Views: 905

PostForum: General Discussion   Posted: Tue Aug 19, 2008 12:48 pm   Subject: My vascular (?) problems - related to MS?
Hi to all,

first of all, I have my MS diagnosis since 2004, had about 15 relapses since then, remission incomplete.

I've been reading about MS as a vascular disease and want to ask you something ...
  Topic: Tysabri: 2 new cases of PML
Damjan

Replies: 22
Views: 1513

PostForum: General Discussion   Posted: Fri Aug 01, 2008 12:11 am   Subject: Tysabri: 2 new cases of PML
I certainly hope that PML with Tysabri isn't just a matter of time... WHEN, not IF...
  Topic: I am just asking......
Damjan

Replies: 12
Views: 1163

PostForum: Rebif   Posted: Mon Jul 14, 2008 11:35 am   Subject: I am just asking......
Let me just say hello to you (we are from the same small country):


Lepo, da si se opogumila tudi tukaj na precej bolj globalnem forumu.

Glede rebifa ti žal ne morem pomagati, ker nisem na nob ...
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Mon Jul 14, 2008 11:28 am   Subject: Temporary paralysis - ten second flashes
Thank you for your post. I'm obviously not the only one.

Sorry to hear that you're not getting better for two years... How long do your "flashes" usually last? Can you walk at that time? I lose my ...
  Topic: Minocycline trial risults
Damjan

Replies: 4
Views: 773

PostForum: Drug Pipeline   Posted: Sun Jul 13, 2008 4:36 am   Subject: Minocycline trial risults
Any dosage info?

I'm interested in ABX but I can't find any useful info about the regime (dosage, timing...).

Can you provide some useful links?

Thank you.
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Fri Jul 11, 2008 1:17 am   Subject: Temporary paralysis - ten second flashes
Reading the article about seizures:

http://en.wikipedia.org/wiki/Seizure

Seizures can cause involuntary changes in body movement or function, sensation, awareness, or behavior. A seizure can las ...
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Thu Jul 10, 2008 2:38 pm   Subject: Temporary paralysis - ten second flashes
Thank you both for sharing your thoughts.

First, I have been tested for Lyme. CSF and blood tests were negative during my first real relapse in 2004... I'm from Europe though (Slovenia), thank you ...
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Thu Jul 10, 2008 1:52 pm   Subject: Temporary paralysis - ten second flashes
I do have official diagnosis for 4 years (based on my neurological status, positive MRI, LP and SEP). Had second MRI scan last year, which confirmed the diagnosis (14 or so lesions).

I talked to my ...
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Thu Jul 10, 2008 12:45 pm   Subject: Temporary paralysis - ten second flashes
No ideas?

I'm thinking of some possible reasons:
- mini relapses/remissions (but 10 seconds??? - that's what should be called RRMS!)
- MS is causing some kind of ...lepsy (like "narcolepsy" - but ...
  Topic: Temporary paralysis - ten second flashes
Damjan

Replies: 13
Views: 663

PostForum: General Discussion   Posted: Sun Jul 06, 2008 1:46 pm   Subject: Temporary paralysis - ten second flashes
Hi to all,

I have a question. For about a month I'm getting partial temporary paralysis to my left hand and parts of my face - mostly lips, chin and the right eye. It happens every few (15 or so) m ...
  Topic: Cellcept
Damjan

Replies: 11
Views: 1734

PostForum: Drug Pipeline   Posted: Thu May 29, 2008 11:52 am   Subject: Cellcept
Just ran into this info:

May 16, 2008 — The FDA today underscored the risk of miscarriage and birth defects in women taking the immune-suppressing drugs CellCept or Myfortic.

Those drugs are app ...
  Topic: Research presentation movie
Damjan

Replies: 12
Views: 1107

PostForum: Drug Pipeline   Posted: Wed May 07, 2008 9:26 am   Subject: Research presentation movie
I have some questions about this movie, maybe worth of discussion:

Are all the cells that use the "red" potassium channel bad? It seemed to me that those are the cells that sustain our life-time im ...
  Topic: Research presentation movie
Damjan

Replies: 12
Views: 1107

PostForum: Drug Pipeline   Posted: Tue May 06, 2008 10:44 am   Subject: Research presentation movie
Not really an FDA approved (yet), but looks promising... Worth watching, at least was for me... Any comments?

http://www.youtube.com/watch?v=uzw6_cWqdkY

Regards from Slovenia, Europe.
  Topic: Genomed
Damjan

Replies: 3
Views: 829

PostForum: Drug Pipeline   Posted: Sun Mar 05, 2006 2:24 am   Subject: Genomed
I felt pretty much the same, watching those two videos. Almost like a bad commertial...
  Topic: Hype? Rituximab
Damjan

Replies: 3
Views: 960

PostForum: Drug Pipeline   Posted: Sun Jan 29, 2006 9:09 am   Subject: Hype? Rituximab
Anybody noticed safety warnings on Rituxan homepage?



Important Safety Information

WARNINGS

Fatal Infusion Reactions: Deaths within 24 hours of RITUXAN infusion have been reported. These ...
 
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