| Author |
Message |
Topic: My vascular (?) problems - related to MS? |
Damjan
Replies: 16
Views: 905
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Forum: General Discussion Posted: Tue Aug 19, 2008 12:48 pm Subject: My vascular (?) problems - related to MS? |
Hi to all,
first of all, I have my MS diagnosis since 2004, had about 15 relapses since then, remission incomplete.
I've been reading about MS as a vascular disease and want to ask you something ... |
Topic: Tysabri: 2 new cases of PML |
Damjan
Replies: 22
Views: 1513
|
Forum: General Discussion Posted: Fri Aug 01, 2008 12:11 am Subject: Tysabri: 2 new cases of PML |
| I certainly hope that PML with Tysabri isn't just a matter of time... WHEN, not IF... |
Topic: I am just asking...... |
Damjan
Replies: 12
Views: 1163
|
Forum: Rebif Posted: Mon Jul 14, 2008 11:35 am Subject: I am just asking...... |
Let me just say hello to you (we are from the same small country):
Lepo, da si se opogumila tudi tukaj na precej bolj globalnem forumu.
Glede rebifa ti žal ne morem pomagati, ker nisem na nob ... |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Mon Jul 14, 2008 11:28 am Subject: Temporary paralysis - ten second flashes |
Thank you for your post. I'm obviously not the only one.
Sorry to hear that you're not getting better for two years... How long do your "flashes" usually last? Can you walk at that time? I lose my ... |
Topic: Minocycline trial risults |
Damjan
Replies: 4
Views: 773
|
Forum: Drug Pipeline Posted: Sun Jul 13, 2008 4:36 am Subject: Minocycline trial risults |
Any dosage info?
I'm interested in ABX but I can't find any useful info about the regime (dosage, timing...).
Can you provide some useful links?
Thank you. |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Fri Jul 11, 2008 1:17 am Subject: Temporary paralysis - ten second flashes |
Reading the article about seizures:
http://en.wikipedia.org/wiki/Seizure
Seizures can cause involuntary changes in body movement or function, sensation, awareness, or behavior. A seizure can las ... |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Thu Jul 10, 2008 2:38 pm Subject: Temporary paralysis - ten second flashes |
Thank you both for sharing your thoughts.
First, I have been tested for Lyme. CSF and blood tests were negative during my first real relapse in 2004... I'm from Europe though (Slovenia), thank you ... |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Thu Jul 10, 2008 1:52 pm Subject: Temporary paralysis - ten second flashes |
I do have official diagnosis for 4 years (based on my neurological status, positive MRI, LP and SEP). Had second MRI scan last year, which confirmed the diagnosis (14 or so lesions).
I talked to my ... |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Thu Jul 10, 2008 12:45 pm Subject: Temporary paralysis - ten second flashes |
No ideas?
I'm thinking of some possible reasons:
- mini relapses/remissions (but 10 seconds??? - that's what should be called RRMS!)
- MS is causing some kind of ...lepsy (like "narcolepsy" - but ... |
Topic: Temporary paralysis - ten second flashes |
Damjan
Replies: 13
Views: 663
|
Forum: General Discussion Posted: Sun Jul 06, 2008 1:46 pm Subject: Temporary paralysis - ten second flashes |
Hi to all,
I have a question. For about a month I'm getting partial temporary paralysis to my left hand and parts of my face - mostly lips, chin and the right eye. It happens every few (15 or so) m ... |
Topic: Cellcept |
Damjan
Replies: 11
Views: 1734
|
Forum: Drug Pipeline Posted: Thu May 29, 2008 11:52 am Subject: Cellcept |
Just ran into this info:
May 16, 2008 — The FDA today underscored the risk of miscarriage and birth defects in women taking the immune-suppressing drugs CellCept or Myfortic.
Those drugs are app ... |
Topic: Research presentation movie |
Damjan
Replies: 12
Views: 1107
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Forum: Drug Pipeline Posted: Wed May 07, 2008 9:26 am Subject: Research presentation movie |
I have some questions about this movie, maybe worth of discussion:
Are all the cells that use the "red" potassium channel bad? It seemed to me that those are the cells that sustain our life-time im ... |
Topic: Research presentation movie |
Damjan
Replies: 12
Views: 1107
|
Forum: Drug Pipeline Posted: Tue May 06, 2008 10:44 am Subject: Research presentation movie |
Not really an FDA approved (yet), but looks promising... Worth watching, at least was for me... Any comments?
http://www.youtube.com/watch?v=uzw6_cWqdkY
Regards from Slovenia, Europe. |
Topic: Genomed |
Damjan
Replies: 3
Views: 829
|
Forum: Drug Pipeline Posted: Sun Mar 05, 2006 2:24 am Subject: Genomed |
| I felt pretty much the same, watching those two videos. Almost like a bad commertial... |
Topic: Hype? Rituximab |
Damjan
Replies: 3
Views: 960
|
Forum: Drug Pipeline Posted: Sun Jan 29, 2006 9:09 am Subject: Hype? Rituximab |
Anybody noticed safety warnings on Rituxan homepage?
Important Safety Information
WARNINGS
Fatal Infusion Reactions: Deaths within 24 hours of RITUXAN infusion have been reported. These ... |
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