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Author Message
  Topic: What exactly is four days of HiCy like??
Davis

Replies: 5
Views: 575
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sun Oct 26, 2008 4:55 pm   Subject: What exactly is four days of HiCy like??
Thanks Jamie and Keri.

So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case?

And once the four days are over t ...
  Topic: HiCy in Chicago @ Rush Hospital
Davis

Replies: 14
Views: 1841
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon Sep 22, 2008 7:24 pm   Subject: HiCy in Chicago @ Rush Hospital
Guess what, Rush has apparently been flooded with inquiries today, hmm....wonder why. Does anyone know if the Rush therapy is identical to Revimmune? As you know, they don't respond to that name.
La ...
  Topic: Reactivation ?
Davis

Replies: 20
Views: 1327
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri Sep 12, 2008 11:02 am   Subject: Reactivation ?
Well I have clonus like a MoFo lol.

Get this, last couple of days the whole right side of my body, and my trunk, feels like when I was very first diag'd. All weird like. Drives me nuts...so I wor ...
  Topic: HiCy in Chicago @ Rush Hospital
Davis

Replies: 14
Views: 1841
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu Sep 11, 2008 3:03 pm   Subject: HiCy treatment @ Rush MS center Chicago
Can anybody out there tell me who to contact at Rush in Chicago? I called the MS center at 312-942-8011 and the little girl who answered had no idea what I was talking about and told me to call Northw ...
  Topic: HiCy in Chicago @ Rush Hospital
Davis

Replies: 14
Views: 1841
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu Aug 07, 2008 3:37 pm   Subject: HiCy in Chicago @ Rush Hospital
A woman named Kathy has gone through the procedure in Chicago.
Type in www.rebootingkathy.blogspot.com to read and watch.

Davis
  Topic: Bioness L 300 users
Davis

Replies: 1
Views: 386
 PostForum: Medical Devices   Posted: Fri Jul 11, 2008 1:57 pm   Subject: Bioness L 300 users
I am interested in the device and would appreciate any information from people with MS that have used or are using the device.
I am investigating the device for purchase.

Davis
  Topic: Hickman line vs. Power Hickman (and time frames)
Davis

Replies: 2
Views: 485
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Wed Jul 09, 2008 7:53 am   Subject: Hickman line time frame
When I was at JHH I remember it being called a line and a hickman but that was in May, 08. I was in IPOP for 18 days after the 4 days in the hospital. For me, it took 9 days of infusion rebooting medi ...
  Topic: High blood pressure and revimmune
Davis

Replies: 4
Views: 668
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri Jun 27, 2008 12:18 pm   Subject: Re: High blood pressure and revimmune
I am interested in this treatment possibly, but I do have nigh BP. I am on medication, but my BP seems to spike really easy and I do have a family history of heart problems.

Does anyone here who ...
  Topic: Rush Hospital Info
Davis

Replies: 3
Views: 754
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu Jun 26, 2008 12:38 pm   Subject: Rush MS Center
Rush MS Center Chicago, Ill
1725 W Harrison St.
312-942-8011
is definitely beginning the HiCy treatment for Multiple Sclerosis as of May 2008.

Davis
  Topic: Housing question
Davis

Replies: 10
Views: 880
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu May 29, 2008 5:38 pm   Subject: Housing question
For housing we stayed at the Chase Street Properties. Phone 410-935-4848 It is about 10 blocks from JHH and they have a web site to view apt. Ask for Lorraine

Davis
  Topic: rebooting at JHH
Davis

Replies: 86
Views: 6251
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 02, 2008 4:08 pm   Subject: rebooting at JHH
Good stuff.

We'll still be here then!
I hope I do as good a job as you are doing.
The others that shared their experience helped me understand the process. I know for some its too much, but for m ...
  Topic: rebooting at JHH
Davis

Replies: 86
Views: 6251
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri May 02, 2008 12:55 pm   Subject: rebooting at JHH
As of May 6,2008 I will be at JHH for the HiCy treatment for MS.
My intention is to try and keep those interested informed of the procedure and my experience with the procedure.

5/6/08

At 7:15 ...
  Topic: cyclophosphamide patients from Johns Hopkins
Davis

Replies: 59
Views: 5838
 PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat Jan 26, 2008 10:06 am   Subject: cyclophosphamide patients from Johns Hopkins
Is there anyone that would like to share their experience with Drs Brodsky & Kerr's high dose cyclophosphamide treatment for multiple sclerosis?
 
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