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Author Message
  Topic: New to Board and on Copaxone
DizzyDean

Replies: 5
Views: 311

PostForum: Copaxone   Posted: Thu Aug 14, 2008 7:39 pm   Subject: New to Board and on Copaxone
Welcome to the forum.

The "A" drug your docs talked about is Avonex. Its a once per week interferon IM injection.

I've been on copaxone for 14 months, other than having 3 IPIRs its gone fine fo ...
  Topic: Copaxone and Lipoatrophy - when to stop?
DizzyDean

Replies: 6
Views: 515

PostForum: General Discussion   Posted: Sun Aug 10, 2008 4:58 pm   Subject: Copaxone and Lipoatrophy - when to stop?
This is a tough one, at first glance most of us would far rather have lipoatrophy than be at an EDSS of 9. But lipoatrophy to the degree you're describing (severely disfiguring) is very damaging to ...
  Topic: Treatment of acute relapses with oral dexamethasone
DizzyDean

Replies: 4
Views: 330

PostForum: General Discussion   Posted: Sat Aug 09, 2008 4:55 pm   Subject: Treatment of acute relapses with oral dexamethasone
Dexamethasone, like prednisone - is an anti inflammatory.

My Dr prefers to use dexamethasaone to treat MS relapses because he believes it is as effective if not more effective than prednisone with ...
  Topic: Treatment of acute relapses with oral dexamethasone
DizzyDean

Replies: 4
Views: 330

PostForum: General Discussion   Posted: Fri Aug 08, 2008 7:20 pm   Subject: Treatment of acute relapses with oral dexamethasone
My neuro strongly believes that dexamethasone is preferable to oral or even IV prednisone in treating relapses. Protocol that he has used is similar to what the paper talks about - 4 mg qds for 5 day ...
  Topic: avoiding IPIRs with copaxone
DizzyDean

Replies: 13
Views: 950

PostForum: Copaxone   Posted: Thu Jul 17, 2008 7:53 pm   Subject: avoiding IPIRs with copaxone
Thanks for the replies. To me, the IPIRs are much worse than any site reactions I have.

I'd like to ask the collective wisdom of the group as to what causes IPIRs. The leading theories are a vasc ...
  Topic: To Copaxone or not to Copaxone
DizzyDean

Replies: 8
Views: 727

PostForum: General Discussion   Posted: Mon Jul 14, 2008 7:41 pm   Subject: To Copaxone or not to Copaxone
I will make one last comment to dreddk, and that is some thoughts about the planning time horizon.

Take a look at the site http://mspipeline.wordpress.com and notice that there are ~20 drugs in pha ...
  Topic: avoiding IPIRs with copaxone
DizzyDean

Replies: 13
Views: 950

PostForum: Copaxone   Posted: Sun Jul 13, 2008 7:34 pm   Subject: avoiding IPIRs with copaxone
I have mostly been a lurker on this board, but I do post now and then. I have been on copaxone for 13 months now, and just got the results of my 1 year brain MRI. The results are favorable (some imp ...
  Topic: To Copaxone or not to Copaxone
DizzyDean

Replies: 8
Views: 727

PostForum: General Discussion   Posted: Sun Jul 13, 2008 7:22 pm   Subject: To Copaxone or not to Copaxone
I had to make the same decision that you are going through, in my case I was fortunate to not have the financial implications as I'm in the USA and I have good private insurance.

I read the Cochran ...
  Topic: Copaxone 40mg
DizzyDean

Replies: 3
Views: 500

PostForum: Drug Pipeline   Posted: Mon Jul 07, 2008 7:29 pm   Subject: Copaxone 40mg
Thanks for posting that. Double dose copaxone has been in the literature before, from what I recall the skin reactions were greater than those experienced by the 20 mg cohort.

If I am not mistaken ...
  Topic: Lipoatrophy Survey
DizzyDean

Replies: 19
Views: 2123

PostForum: Copaxone   Posted: Sat Mar 15, 2008 5:04 pm   Subject: Lipoatrophy Survey
At the risk of whistling on the way past the graveyard, I'll mention that
the studies I've read have only found lipoatrophy to occur in females.

One example of this is in the link below (take a ...
  Topic: Copaxone long-term study
DizzyDean

Replies: 5
Views: 1335

PostForum: Copaxone   Posted: Sun Jan 27, 2008 8:56 pm   Subject: Copaxone long-term study
Actually I wouldn't be so cynical. I think that this is a fairly significant data point showing copaxone really does slow the disease down even over the long haul. The reduction in relapses to 0.1 ( ...
  Topic: United Arab Emirates, Abu Dhabi
DizzyDean

Replies: 1
Views: 659

PostForum: Copaxone   Posted: Sun Jan 27, 2008 8:48 pm   Subject: United Arab Emirates, Abu Dhabi
I would call Shared Solutions and ask them this question.

I'd also be concerned about finding a neurologist there that is familiar with treating MS. Assuming you had a valid prescription, I cannot ...
  Topic: just got LDN Rx
DizzyDean

Replies: 21
Views: 3924

PostForum: Low Dose Naltrexone   Posted: Sun Jan 13, 2008 6:30 pm   Subject: just got LDN Rx
Another important factor is to make sure that your pharmacy chooses an appropriate filler. I do not know the details but I am pretty sure that delayed release is not appropriate. You might contact S ...
  Topic: Reimported Cop
DizzyDean

Replies: 1
Views: 758

PostForum: Copaxone   Posted: Sun Jan 13, 2008 6:27 pm   Subject: Reimported Cop
I am not aware of reimported copaxone being a factor in the US.

With a generic copaxone allegedly coming (from India) in the next few years perhaps we'll see more of this.
  Topic: LDN study at UCSC ... when will results be out?
DizzyDean

Replies: 1
Views: 915

PostForum: Low Dose Naltrexone   Posted: Sun Jan 13, 2008 5:54 pm   Subject: LDN study at UCSC ... when will results be out?
I know that the study has finished. Does anybody know when they will publish? Any inside word on the trial findings?
 
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