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Author Message
  Topic: THE EXPERIENCE OF PATIENTS WITH MARIJUANA
Grumpster

Replies: 12
Views: 423

PostForum: General Discussion   Posted: Thu Nov 20, 2008 1:52 pm   Subject: THE EXPERIENCE OF PATIENTS WITH MARIJUANA
Legal issues aside - I believe I am an outlier as MJ makes me almost instanly worse and unable to function even more than before. I get tremor and almost imediate balance issues. I even had a "frien ...
  Topic: Depression and MS
Grumpster

Replies: 7
Views: 360

PostForum: General Discussion   Posted: Thu Nov 20, 2008 10:49 am   Subject: Depression and MS
Shortly after MS diagnosis and onset of major symptoms I became really depressed. The interferon and the MS both are known for that effect. I had some really dark days where I just wanted to take a ...
  Topic: Does the FDA hinder progress?
Grumpster

Replies: 5
Views: 297

PostForum: General Discussion   Posted: Sun Nov 16, 2008 9:46 pm   Subject: Does the FDA hinder progress?
If the FDA speeds the approval process and then problems surface once the drug is on the market they are to blame. If they take time to fully evaluate safety and efficacy and that delays a potential ...
  Topic: Treatment after long term RRMS
Grumpster

Replies: 4
Views: 388

PostForum: Campath   Posted: Sun Nov 16, 2008 9:38 pm   Subject: Treatment after long term RRMS
I am in discussions right now with a trial site in S. california. It looks likely that I will start in a few weeks. I hope that others who are trying to get on board are able to. I am nervous of c ...
  Topic: Clonazepam
Grumpster

Replies: 22
Views: 879

PostForum: General Discussion   Posted: Sun Nov 09, 2008 8:53 pm   Subject: Clonazepam
Maybe someone has been slipping it to me...???? That explains it.
  Topic: Clonazepam
Grumpster

Replies: 22
Views: 879

PostForum: General Discussion   Posted: Thu Nov 06, 2008 11:06 pm   Subject: Clonazepam
Hey Robbie. I have never tried that one, but diazapam - valium works well for my ntremor and spacicity
  Topic: wonder drug?
Grumpster

Replies: 12
Views: 1166

PostForum: General Discussion   Posted: Wed Nov 05, 2008 5:53 pm   Subject: wonder drug?
A ten person study sounds really weak....sorry. Antibiotics such as mino have been helpful for some. I was on a combination antibiotic protocol for >8 months and it definately did not help me.
  Topic: Another Trial Participant story
Grumpster

Replies: 7
Views: 1053

PostForum: Campath   Posted: Tue Nov 04, 2008 2:34 pm   Subject: Another Trial Participant story
Thanks Bob,

I need something to give me that hope and sense that this is not really the end of the road, just a junction. Who knows, but what is certain is that my current protocol is not working ...
  Topic: Another Trial Participant story
Grumpster

Replies: 7
Views: 1053

PostForum: Campath   Posted: Mon Nov 03, 2008 2:50 pm   Subject: Another Trial Participant story
I am likely to start a trial for Campath in a week or two and I have heard different stories on how things go for people. I am a bit nervous, but things are pretty bad for me right now, so I kind of ...
  Topic: Imuran anyone
Grumpster

Replies: 4
Views: 264

PostForum: General Discussion   Posted: Mon Nov 03, 2008 12:44 pm   Subject: Imuran anyone
Dignan, those posts you linked were helpful thanks.
  Topic: Imuran anyone
Grumpster

Replies: 4
Views: 264

PostForum: General Discussion   Posted: Mon Nov 03, 2008 12:37 pm   Subject: Imuran anyone
I guess from the lack of response that noone else is on this as an adjunct / add on therapy. i wonder why my neuro passed it out in such a cavalier manner??
  Topic: Imuran anyone
Grumpster

Replies: 4
Views: 264

PostForum: General Discussion   Posted: Wed Oct 29, 2008 2:37 pm   Subject: Imuran anyone
I searched the forums a bit, but too many off topic hits. Is anyone on Imuran for MS. My ahole neuro gave me an Rx for that crap like passing out M&Ms on Halloween. I am skeptical of the immuno ...
  Topic: Assisted suicide article (woman with MS)
Grumpster

Replies: 19
Views: 933

PostForum: General Discussion   Posted: Wed Oct 29, 2008 2:35 pm   Subject: Assisted suicide article (woman with MS)
For me when the quality of life becomes so horrible that it doen not make since to open your eyes or do anything else then I think that may be time to consider this option. If you have to blow into a ...
  Topic: Allergies and Campath, update 6 months after Campath
Grumpster

Replies: 30
Views: 1796

PostForum: Campath   Posted: Sun Oct 26, 2008 1:19 pm   Subject: Allergies and Campath, update 6 months after Campath
Good data Ursula, unfortunately some of us are in a really bad spot and will roll the dice....
  Topic: Phase 2 complete....results in NEJM
Grumpster

Replies: 10
Views: 799

PostForum: Campath   Posted: Sun Oct 26, 2008 1:17 pm   Subject: Phase 2 complete....results in NEJM
You have a good point Frank. The clinicaltrials.gov site might have more details on the study results. the NEJM may have the full published study results, not just the abstract which is what everyon ...
 
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