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Author Message
  Topic: Some SUPERLATIVE news
Jamie

Replies: 7
Views: 174

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu Dec 04, 2008 12:09 pm   Subject: Some SUPERLATIVE news
Thanks Lew!

Bob may find this interesting, my understanding has always been that once you have a black hole its there for good, i.e. dead matter.

Well, Mel's two black holes have disappeared sin ...
  Topic: Some SUPERLATIVE news
Jamie

Replies: 7
Views: 174

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Thu Dec 04, 2008 9:00 am   Subject: Some SUPERLATIVE news
ITS A UTI ITS A UTI ITS A UTI

MRI is clear, no change from three months ago apart from the major lesion on her 'pons' continues to shrink.

Chaps, this news makes me so happy.
  Topic: Some good news
Jamie

Replies: 5
Views: 184

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Wed Dec 03, 2008 5:04 pm   Subject: Some good news
that makes me feel better mate for sure.

i guess the moral is NO ONE KNOWS.

keep on trucking pal.
  Topic: Someone other than Chris
Jamie

Replies: 18
Views: 636

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Wed Dec 03, 2008 12:04 pm   Subject: Someone other than Chris
Lets also not forget that JH are learning this as they go along too.

There'll be people who are harder (perhaps even impossible) to treat than others.

The MS process is not understood fully so a ...
  Topic: Someone other than Chris
Jamie

Replies: 18
Views: 636

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Wed Dec 03, 2008 12:01 pm   Subject: Someone other than Chris
Also a good point about the BBB.

Honestly, if I hadn't have found this forum I probably would have had a nervous breakdown by now and its not even ME with the MS.

thanks guys.
  Topic: Someone other than Chris
Jamie

Replies: 18
Views: 636

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Wed Dec 03, 2008 12:00 pm   Subject: Someone other than Chris
Mel has her MRI today, we'll know then whether there's current activity.

The good thing is last time I freaked out the MRI was clear, this time I'm freaking out its time for an MRI.

Bob - all do ...
  Topic: Someone other than Chris
Jamie

Replies: 18
Views: 636

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Tue Dec 02, 2008 4:56 pm   Subject: Someone other than Chris
Mel's having some issues, including new symptoms (bladder).

She's having an MRI next week, she will do this again with a longer period of being at 'zero' if necessary.
  Topic: HiCy Check
Jamie

Replies: 10
Views: 518

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon Nov 24, 2008 10:20 am   Subject: HiCy Check
Mel's doing well.

6 months out, doesn't have to go to hopkins for 6 month check, doing MRI and EDSS locally.

2xlesions had shrunk @ 3 months.

No enhancing lesions (down from 4).

bowel, vi ...
  Topic: High Dose Cyclophosphamide outside of the US
Jamie

Replies: 24
Views: 1404

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Fri Nov 07, 2008 4:56 pm   Subject: High Dose Cyclophosphamide outside of the US
Bloody hell, a Newcastle fan.

Don't make the mistake of keeping Kinnear, it's the same as what happened with Roeder.

Good luck with getting this treatment.
  Topic: High Dose Cyclophosphamide outside of the US
Jamie

Replies: 24
Views: 1404

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Mon Nov 03, 2008 10:07 am   Subject: High Dose Cyclophosphamide outside of the US
zero
  Topic: Allergies and Campath, update 6 months after Campath
Jamie

Replies: 30
Views: 1796

PostForum: Campath   Posted: Sun Nov 02, 2008 1:42 pm   Subject: Allergies and Campath, update 6 months after Campath
Fair enough, apologies.
  Topic: High Dose Cyclophosphamide outside of the US
Jamie

Replies: 24
Views: 1404

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sun Nov 02, 2008 1:41 pm   Subject: High Dose Cyclophosphamide outside of the US
absolutely fantastic news.

what protocol will they be mirroring?

I guess they can't follow the revimmune protocol exactly as that would be patent infringement.

After all its the process that ...
  Topic: Allergies and Campath, update 6 months after Campath
Jamie

Replies: 30
Views: 1796

PostForum: Campath   Posted: Thu Oct 30, 2008 11:23 am   Subject: Allergies and Campath, update 6 months after Campath
'We' appears to be everybody except you right now.
  Topic: WCTRIMS & Cyclophosphamide
Jamie

Replies: 4
Views: 665

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Tue Oct 28, 2008 9:11 am   Subject: WCTRIMS & Cyclophosphamide
Cyclops,

Many thanks for the info.

Appreciated.

Jamie
  Topic: What exactly is four days of HiCy like??
Jamie

Replies: 5
Views: 575

PostForum: Revimmune (cyclophosphamide or cytoxan)   Posted: Sat Oct 25, 2008 6:00 pm   Subject: What exactly is four days of HiCy like??
Day 4 was hard for Mel, but she remembers little of the whole experience now.

The anti-puke shots keep you sleepy.

Some have it a lot worse though with the nausea and headaches, ask Chris!

I ...
 
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