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Author Message
  Topic: Copaxone for ppms? (also posted in general disscussion)
Longing4Cheese

Replies: 8
Views: 1435

PostForum: Copaxone   Posted: Thu Nov 20, 2008 6:35 pm   Subject: How they Dx PPMS
If you haven't had any identifiable "attacks" or spells or symptoms that occurred, lasted days to weeks, then got better (or mostly better), then you don't neatly fit into the description of RRMS, whi ...
  Topic: Copaxone for ppms? (also posted in general disscussion)
Longing4Cheese

Replies: 8
Views: 1435

PostForum: Copaxone   Posted: Thu Nov 20, 2008 1:48 am   Subject: I've been RECLASSIFIED -- and will be starting Copaxone
I have had an interesting turn in my MS journey:

I was Dx in June 2007, and have seen a total of three different neuros, at least one of whom is a well-known MS researcher and professor at UCLA. E ...
  Topic: Minocycline Promising for Fragile X Syndrome - autism, MMP-9
Longing4Cheese

Replies: 9
Views: 656

PostForum: Antibiotics   Posted: Sun Oct 12, 2008 12:48 am   Subject: Minocycline Promising for Fragile X Syndrome - autism, MMP-9
Forgive me if this is already covered -- I did search for "autism" in the Antibiotics forum and got zero results. So, this may be very interesting news...

UCR Researchers Propose Minocycline as a ...
  Topic: Alpha Lipoic Acid
Longing4Cheese

Replies: 4
Views: 416

PostForum: Natural Approach   Posted: Wed Oct 08, 2008 1:27 am   Subject: Hit the online body building sites for inexpensive supplemts
I got a POUND of N-Acetyl L-Carnitine for about $32 (incl. shipping) from www.trueprotein.com, a body-building supplements site.

It was hard to find the supplements area at first; click on Formulas ...
  Topic: avoiding IPIRs with copaxone
Longing4Cheese

Replies: 13
Views: 1159

PostForum: Copaxone   Posted: Fri Sep 12, 2008 2:01 pm   Subject: The Weiners
Yes, I've read Howard Weiner's book, Curing MS, and heard him speak at the same event where I heard Leslie P. Weiner (it was at the Nancy Davis Foundation "Roundtable" (actually several tiers of table ...
  Topic: avoiding IPIRs with copaxone
Longing4Cheese

Replies: 13
Views: 1159

PostForum: Copaxone   Posted: Fri Sep 12, 2008 12:37 am   Subject: PPMS and Copaxone; this site is great
Thanks for the clarification.

I actually thought that was a very common reaction. I have a friend on Avonex, and of course have read many accounts online about people's struggles with the once wee ...
  Topic: avoiding IPIRs with copaxone
Longing4Cheese

Replies: 13
Views: 1159

PostForum: Copaxone   Posted: Fri Sep 12, 2008 12:08 am   Subject: What does IPIR stand for?
I have read every post in this thread, and I understand the symptoms / reactions reported ... but I'm still tryin' to figure out what "IPIR" stands for.

I'm struggling with deciding about taking Co ...
  Topic: Copaxone for ppms? (also posted in general disscussion)
Longing4Cheese

Replies: 8
Views: 1435

PostForum: Copaxone   Posted: Sat Sep 06, 2008 12:03 am   Subject: PPMS and Copaxone
Hi Mick,

I, too, have PPMS, and have had neurologists recommend Copaxone/glatiramer acetate as a treatment. So far I haven't done it, but, of the currently available drugs, it is the only one that ...
  Topic: Omega 3 & 6 - how much do you take?
Longing4Cheese

Replies: 17
Views: 2261

PostForum: Natural Approach   Posted: Thu Jul 31, 2008 1:08 am   Subject: Take the plunge...take your oil in liquid form
I am saving money and having fewer pills to swallow by ingesting my omega3s in liquid form. I haven't settled on the "perfect" approach yet, so right now I have, in the fridge, a bottle of each:

U ...
  Topic: Triomar, aka omega-3s - Norwegian study-RESULTS?
Longing4Cheese

Replies: 8
Views: 1035

PostForum: Drug Pipeline   Posted: Sat May 24, 2008 12:21 am   Subject: Translation of Dietary Advice
Wow, thanks, CureOrBust. That's some good internet sleuthing.

The dietary advice sure sounds Swanky to me.

I'm glad to know that I've already been doing all of this, and more, and that this t ...
  Topic: Triomar, aka omega-3s - Norwegian study-RESULTS?
Longing4Cheese

Replies: 8
Views: 1035

PostForum: Drug Pipeline   Posted: Fri May 23, 2008 12:31 am   Subject: Still waiting for the report from the latest study
That's the publication that is listed/linked under "more information." It's the earlier study, published in 2000/2001, where they studied the effects of "dietary advice" and fish oil.

I guess they ...
  Topic: Triomar, aka omega-3s - Norwegian study-RESULTS?
Longing4Cheese

Replies: 8
Views: 1035

PostForum: Drug Pipeline   Posted: Thu May 22, 2008 6:04 pm   Subject: Actually, it's a more recent study
Thanks, DIM ... but that was an older study, of "dietary advice" (was the advice to reduce sat fats?) and to take fish oil, reported in 2001.

I'm looking for the one started in 2004 and due to comp ...
  Topic: Triomar, aka omega-3s - Norwegian study-RESULTS?
Longing4Cheese

Replies: 8
Views: 1035

PostForum: Drug Pipeline   Posted: Thu May 22, 2008 8:22 am   Subject: Triomar, aka omega-3s - Norwegian study-RESULTS?
Anyone know what's up with the study on "Triomar," which is I guess a pharmaceuticalized form of omega-3s?

It is listed as "COMPLETED" in its listing at ClinicalTrials.gov (identifier # NCT003609 ...
  Topic: Progressive MS Pipeline
Longing4Cheese

Replies: 15
Views: 3396

PostForum: Drug Pipeline   Posted: Thu May 22, 2008 7:23 am   Subject: Fingolomod?
Is this where information about Fingolomod / FTY720 should be posted? Or am I looking in the wrong place?

Thanks for this sticky. We PPMSers are particularly challenged to find information pertin ...
  Topic: Recommendations for MS specialist in Los Angeles?
Longing4Cheese

Replies: 10
Views: 868

PostForum: General Discussion   Posted: Sun May 04, 2008 2:31 pm   Subject: Nancy Davis Foundation MS Roundtable - short version
Hi, Cheerleader. I will be happy to attempt a recap of the MS Roundtable later; right now I have to run around and do some errands. The short version is that the lineup included lots of accomplished ...
 
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