| Author |
Message |
 Topic: PPMS - does it always mean the patient will end up bedbound? |
Loobie
Replies: 12
Views: 366
|
 Forum: General Discussion Posted: Thu Jul 03, 2008 9:41 am Subject: PPMS - does it always mean the patient will end up bedbound? |
Dom,
I know I've told you this before, but you are truly my idol. Whether you realize it or not, you are the man. If I ever get to where you are, I can only hope I handle it with 1/2 the grace that ... |
| Topic: does rrms lead to ppms? |
Loobie
Replies: 16
Views: 318
|
Forum: General Discussion Posted: Thu Jul 03, 2008 9:35 am Subject: does rrms lead to ppms? |
Hey dude, either you are getting bigger or that's the smallest redfish I have ever seen  . Just kidding. I hope your brain comes to rest on that. Speculating about the future is something I t ... |
| Topic: Loobie's 100 day club thread |
Loobie
Replies: 17
Views: 658
|
Forum: Tovaxin Posted: Wed Jul 02, 2008 4:32 pm Subject: Loobie's 100 day club thread |
| Mike, to answer your question, No things haven't bounced back for me. I'm sorry I went on a rant like that, but that's what I do. I suppose I could just write stuff like that in Word and then erase ... |
| Topic: Loobie's 100 day club thread |
Loobie
Replies: 17
Views: 658
|
Forum: Tovaxin Posted: Wed Jul 02, 2008 3:54 pm Subject: Loobie's 100 day club thread |
| No they haven't. I can't say they've gotten drastically worse like I've had a massive attack or anything, but I do not feel like any improvement at all is happening. I'm in a real bad spot as I writ ... |
| Topic: Tovaxin Users |
Loobie
Replies: 88
Views: 8932
|
Forum: Tovaxin Posted: Tue Jul 01, 2008 3:18 pm Subject: Tovaxin Users |
| That sentence is a little goofy. What I meant is that it is a change from absolutely no shot site ANYTHING. My nurse also told me that he noticed a slight flushing around the area that he has to pho ... |
| Topic: Tovaxin Users |
Loobie
Replies: 88
Views: 8932
|
Forum: Tovaxin Posted: Tue Jul 01, 2008 2:03 pm Subject: Tovaxin Users |
| You know I thought the same thing. There isn't even a trace of it today. Weird, but I don't think it was probably connected either. It was weird though because it was full hearing loss. I mean no ... |
| Topic: Support Group? |
Loobie
Replies: 9
Views: 228
|
Forum: General Discussion Posted: Mon Jun 30, 2008 3:21 pm Subject: Support Group? |
| Ha! That is some profound shit right there Robbie! I agree, "I can't stand this congestion!", is a bit different than "I can't walk today!". |
| Topic: Tovaxin Users |
Loobie
Replies: 88
Views: 8932
|
Forum: Tovaxin Posted: Mon Jun 30, 2008 2:36 pm Subject: Tovaxin Users |
| I had my fourth extension dose on Wednesday the 25th. From what I've been reading, everyone seems to be on schedule and not experiencing delays like were present around X-mas. |
| Topic: Hearing loss |
Loobie
Replies: 4
Views: 153
|
Forum: General Discussion Posted: Mon Jun 30, 2008 9:04 am Subject: Hearing loss |
| I'm going to my GP at 2:00 to have him make sure I don't have something in there or an infection. I have no pain or anything. If he finds nothing, I'll call my neuro. Now I've worked around stampin ... |
| Topic: Hearing loss |
Loobie
Replies: 4
Views: 153
|
Forum: General Discussion Posted: Mon Jun 30, 2008 4:59 am Subject: Hearing loss |
| I need some help on this potential symptom. It's only been one day so I may be freaking out, but the issue came on in dramatic fashion (overnight) and I can't figure out a root cause. I went to bed ... |
| Topic: Something my neuro said about Tovaxin |
Loobie
Replies: 15
Views: 696
|
Forum: Tovaxin Posted: Sun Jun 29, 2008 7:42 am Subject: Something my neuro said about Tovaxin |
| I am lucky in that regard. There are not many neurologists in Dayton, but my neuro. speaks at lots of MS Society functions. He was at Harvard when they were first trying Cytoxan in the late 60's. H ... |
| Topic: Something my neuro said about Tovaxin |
Loobie
Replies: 15
Views: 696
|
Forum: Tovaxin Posted: Sat Jun 28, 2008 7:38 am Subject: Something my neuro said about Tovaxin |
OK,
Today I'm going to figure out the quote box thingy. |
| Topic: Something my neuro said about Tovaxin |
Loobie
Replies: 15
Views: 696
|
Forum: Tovaxin Posted: Sat Jun 28, 2008 7:37 am Subject: Something my neuro said about Tovaxin |
[
A doctor who specializes in neurology and then sub-specializes in MS, is going to be aware of what is in the pipeline and will not be content to wear the comfortable shoes of a stagnant pool of kno ... |
| Topic: Flu Symptoms on Avonex |
Loobie
Replies: 4
Views: 159
|
Forum: General Discussion Posted: Sat Jun 28, 2008 7:31 am Subject: Flu Symptoms on Avonex |
| I took Avonex for about three years and stopped for the same reasons you did. The only times I didn't get crushed by the side fx were when I took 800mg of Ibuprofen, a full swig of Nyquil and smoked ... |
| Topic: Why would you NOT take meds? |
Loobie
Replies: 20
Views: 715
|
Forum: General Discussion Posted: Fri Jun 27, 2008 4:47 am Subject: Why would you NOT take meds? |
| I think if you are not progressing and the Avonex isn't making you feel like complete hell, then you are absolutely correct to keep taking it. You got that part right in terms of that being the philo ... |
| |
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